Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Im getting so unwell again...


Dannielizabeth

Recommended Posts

Dannielizabeth Rookie

I’ve gone back to being bloated CONSTANTLY like I was before I gave up gluten..
In the last 6 weeks I’ve never really not been bloated for a like noticeable length Of time as I’ve p much had gluten like 1x a week and then I’d be recovering from it then have it again accidentally just as it was going down or my period and then I’d have gluten so basically just constant bloat!!
I’ve just had my period but I’ve also been bloated and in pain after everything I eat? and my face is starting to look less bright/more tired as well which I know is signs I’m having gluten..so I’m wondering how you would try to find out if cross contamination is happening? Like how would I stop it? Also HOW do I STOP having gluten ALL the time bcos im vv clearly reversing the BIT better I was feeling and I can’t go back to how I was several months ago?
I’ve got like 3 weeks before I start my new job and I just want to feel and look better by then..
Yesterday I added baking powder to my pancakes?! I didn’t think It has gluten in!!!
It says rice flour not wheat flour in the run and doesn’t say may contain...
But I wonder whether when I’ve baked previously (I was using normal flour most recently to bake as when I got home from pgl I binned a bag of opened flour and had to get gluten-free flour) some actual flour has gotten in there? Not quite sure how or if it could gag but definitely felt horrible after the pancakes,then horribly ill and my stomach like churning in the evening as well as falling asleep for 2 hours at 5.30pm? and feeling nausea in general and I just don’t know.
I’m basically bloated now when I wake up in the mornings too. This is l much what it was like 4 months ago?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

If your a diagnosed celiac I see several flags here and would suggest reading the newbie 101 section. First off you should never use wheat flour in your kitchen or even be in a kitchen that uses it. It can be airborne for hours and if you inhale it in your nose the trapped particles will eventually run down your throat and be digested and can trigger a reaction. It also settles on everything -_-.
Some things also need to be replaced for someone on a gluten free diet IE colanders, scratched pots/pans, etc. Again covered in the newbie 101 section. https://www.celiac.com/forums/topic/91878-newbie-info-101/
A reaction can have various lasting symptoms for over 6 weeks in some individuals as it can take awhile for the antibodies to go back down.
From personal experience I use a low carb paleo diet that is pretty much keto to manage gas and bloat. But I have other AI issues, and also do it to manage them and my blood sugar.

A food diary and recording your symptoms can help you track down trigger foods for your issues and I would suggest a whole foods only diet for while so it will be easier to manage and keep track of what you eat and boost healing. It could be a new food intolerance or sensitivity also.

 

Ranchers Wife Apprentice

Also, many Celiacs don't tolerate xanthan gum well. It can cause bloating, diarrhea, gut pain.

Xanthan gum is a common ingredient in gluten free flour, and gluten free baked goods.

 

If you are getting unintentionally exposed to gluten once a week, you need some help staying clean! The Newbie section, as suggested by EnnisTX, is a good place to start.

Changing over to a diet that is mostly whole foods, unprocessed, is a great step in the right direction. Once you are stable and feeling good, you can experiment with adding things back to your diet.

Check out the Fasano diet, designed to get Celiac people who are having trouble healing, healthy and truly gluten free. It's quite restrictive, but designed to be used for just 3 or 4 months.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,136
    • Most Online (within 30 mins)
      7,748

    kfkynett
    Newest Member
    kfkynett
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, I'd have been here sooner, but I got tangled up in yarn... Restless leg syndrome (RLS) I've had. It's often associated with iron deficiency and B12 deficiency, but can also show up with any deficiencies in Vitamin C, copper, Vitamin D, and Thiamine, Pyridoxine, and magnesium.  B12, Thiamine, and Pyridoxine will also help with peripheral neuropathy, that burning sensation.   (See... https://pmc.ncbi.nlm.nih.gov/articles/PMC9804944/ ) Long Covid can be the result of nutritional deficiencies, as well.  Zinc, Selenium, Vitamin D, B12, Thiamine, Riboflavin, Pyridoxine, Niacin, and Choline.  (See... https://pmc.ncbi.nlm.nih.gov/articles/PMC10015545/  and https://pubmed.ncbi.nlm.nih.gov/36587225/ ) I agree with @Wheatwacked to get Vitamin D level higher, 80 ng/ml.  Taking high doses of Vitamin D to correct a deficiency has been found to be beneficial.  I took Vitamin D3 supplements throughout the day when I had a severe deficiency.  It got my level up quickly and I started feeling much better.   (See... https://pubmed.ncbi.nlm.nih.gov/28167237/ , https://pmc.ncbi.nlm.nih.gov/articles/PMC4824637/) Vitamin D is a fat soluble vitamin.  Fats can be difficult to digest and absorb, so most of the newly diagnosed can be low in the four fat soluble vitamins (A,D,E,K).  A deficiency in Vitamin A can cause dry eyes.  Omega Threes and Evening Primrose Oil help with dry eyes, too.  (https://pmc.ncbi.nlm.nih.gov/articles/PMC10363387/) Blood tests are not accurate measurements of vitamin levels.  Blood tests will reflect any supplements being taken.  Blood tests do not measure how much of a vitamin is stored inside cells.  Supplementing with all eight essential B vitamins for several months will boost your ability to absorb the needed nutrients. A deficiency in Cobalamine, B12, can be aggravated by anesthesia.  Cobalt in Cobalamine binds irrevocably, irreversibly with the Nitrogen in anesthesia, rendering B12 useless.  Supplementing with B12 after exposure to anesthesia is beneficial.  (https://pubmed.ncbi.nlm.nih.gov/8250714/) Pyridoxine B6 and Riboflavin B2 as well as B12 are needed to lower histamine levels (produced during the inflammation process that occurs in Celiac Disease). This can help relieve the sinus pressure.  Riboflavin B2 and Thiamine B1 are helpful with headaches.   We need more Thiamine when we are emotionally stressed, physically ill, and physically active.  Benfotiamine, a form of Thiamine, has been shown to promote intestinal healing.  Thiamine is helpful in relieving anxiety.   (https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/  , https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ ) Celiac Disease causes malabsorption of vitamins and minerals.  It is rare to have a single vitamin deficiency.  Malabsorption in celiac disease affects all the nutrients we need.  Some vitamins just run out sooner than others because they can't be stored or we have a metabolic need for more.  (https://pmc.ncbi.nlm.nih.gov/articles/PMC10106602/ ) Hope this helps!
    • Jtestani
      My question is .. my test results Ttg (IgA 1.7 u/ml & IgG 3:3 u/ml)  both negative & DGP IGG 7.1025 negative but DGP IGA postive at 36.2007 U/ML.  Am I showing a negative test result?  any insight helps as I have to wait till new year for next Doctor’s appt.  Thanks 
    • StaciField
      There’s a Cosco in Auckland in New Zealand. It’s a bit away from where I live but it’s worth the travel for me. Very appreciative of your advice.
    • Wheatwacked
      It seems you have proven that you cannot eat gluten.  You've done what your doctors have not been able to do in 40 years. That's your low vitamin D, a common symptom with Celiac Disease.  Zinc is also a common defiency.  Its an antiviral.  that's why zinc gluconate lozenges work against airborne viruses.  Vitamin D and the Immune System+ Toe cramps, I find 250 mg of Thiamine helps.   When I started GFD I counted 19 symptoms going back to childhood that improved with Gluten Free Diet and vitamin D. I still take 10,000 IU a day to maintain 80 ng/ml and get it tested 4 times a year. Highest was 93 ng/ml and that was at end of summer.  Any excess is stored in fat or excreted through bile.   The western diet is deficient in many nutrients including choline and iodine.  Thats why processed foods are fortified.  Celiac Disease causes malabsorption of vitamins and minerals from the small intestine damage.  GFD stops the damage, but you will still have symptoms of deficiency until you get your vitamins repleted to normal.  Try to reduce your omega 6:3 ratio.  The Standard American Diet is 14:1 or greater.  Healthy is 3:1.  Wheat flour is 22:1.  Potatoes are 3:1 while sweet potatoes are 14:1.  So those sweet potatos that everyone says is better than Russet: they are increasing your inflammation levels.   
    • John.B
      Hello, Target recently changed their branding on the Up & Up Loratadine and no long have it labeled gluten free. I've not been able to find any meds labeled gluten free for allergies. Some lists showed them but the the packaging isn't labeled.  Wondering if anyone knows of or has a list that would be safe for Celiac kiddos.
×
×
  • Create New...