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Congestion and Celiac Disease


RD13

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RD13 Rookie

Hi - Is ongoing congestion and sinuses a frequent occurrence in Celiacs, even when gluten free? I have been suffering from severe congestion since I had my endoscopy for celiac disease confirmation done approximately 2 months back. I have consulted a few ENT's but haven't found much relief. To be honest, given the condition of my gut at this point in time, I am quite fearful of taking antibiotics since they almost always hurt my gut and make matters worse.


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Momofvmej Rookie
13 hours ago, RD13 said:

Hi - Is ongoing congestion and sinuses a frequent occurrence in Celiacs, even when gluten free? I have been suffering from severe congestion since I had my endoscopy for celiac disease confirmation done approximately 2 months back. I have consulted a few ENT's but haven't found much relief. To be honest, given the condition of my gut at this point in time, I am quite fearful of taking antibiotics since they almost always hurt my gut and make matters worse.

You may also be allergic to milk. I also have milk allergies which give me congestion and sinus headaches. 

cyclinglady Grand Master

I had some bad congestion for a long time.  It was always blamed by my allergies.  Years later,  it turned into a tooth infection (facial swelling) from an old root canal that did not show up until the infection was severe.  No pain. Once I healed from the tooth infection, all that sinus congestion went away.  

While celiacs can be lactose intolerant (as a huge chunk of the  general population) and that might resolve, you can also have a milk protein allergy as Momo suggested.  

RD13 Rookie

Thank you so much for your responses. 

Whitepaw Enthusiast

My allergist recommends avoiding or minimizing dairy for this reason. Also, seasons may have changed, and exposure to new allergens may have coincided with the test. Dust and mold tend to trigger congestion, whereas grasses, trees, etc. tend to cause runny noses.  Outdoor molds occur with fall changes.  

You likely don't need antibiotics,  unless you develop a sinus infection.  You can relieve congestion with OTC guaifenesin. Find some online that say gluten-free, if you dont have time to contact companies.  Brand name is Mucinex. You can also try this site, can't recall if OTC is included.  https://dailymed.nlm.nih.gov/dailymed/

Non drug options are steaming your sinuses and saline nasal sprays (OTC or look up making your own). I find even breathing through a wet washcloth can help in a pinch. Products like Sudafed can also help. 

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    • trents
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      They did. I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea. This is what makes me believe it's food related.  I do check all of my food products and supplements and I am very careful about them being gluten free and trying to stay away from corn starch etc. However, I am eating gluten free breads that sometimes have rice flour, yeast, etc. - I seem to do fine with these breads/bread products some days, but then am sick other days.  I have never really had any GI symptoms outside of bloating. My symptoms are dizziness, brain fog, and a general feeling of unwellness or malaise, sort of like when you're going to get the flu.  I have had a lot of bloodwork done over the last three years, but I don't recall doing the CBC, CMP, or a celiac-specific test recently. That's helpful so that could at least provide some insight to see if I'm still being exposed.  Do you see most individual with celiacs having to take a period of time away from even gluten free breads and other cross-reactive foods to let their guts heal? I'm not sure how restrictive to get with my diet again since it's so challenging. 
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      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
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      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
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