Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help, I Need Answers And I'm Scared


honedo

Recommended Posts

honedo Newbie

I have had problems with bloating for about 6 years. First I was told it was because I had fibroids, then a couple of years later my Dr. had me do an upper GI and told me I had acid reflux. Then in December my gas and bloating got so bad he ran some blood tests on me and a food allegy test came back and Jan 12th he told me I have an allergic reaction to wheat. The IgE shows .90 KU/L which states a moderate level.

He told me to go on a wheat free diet and he would have to do some research and call me (I'm still waiting). Since then I've found out about Celiac Disease. I also have hypothyroidism.

It seems to explain the bloating. I've been trying to cut all wheat, oats and barley and look for the hidden glucose in the ingredients but it seems so hard and overwelming! I felt better for a few days but then the bloating is back. I used taco seasoning today, Is there something in the spices? Does it take a while to feel relief, maybe I'm too anxious but the reason I'm scared is because all the sudden I feel aches and pains and I've lost about 5 lbs in the last two weeks.

Is it a common symtom to only have bloating with this?

Any help would be much appreciated!!

Also where can I get a list of all the safe name brands in the store?

Thanks!

Kirsten


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest BERNESES

Hi Kirsten- If you post your email I will send you the Delphi gluten free list which has 70 pages of information. Or if you don't want top post your email, email me at babrennanov@gmail.com and I'll send it to you. It could very well have been the taco seasonings- a lot of them have fillers that could contain gluten. For future reference, Mccormack's brand spices (including their seasoning packets for taco and chile) will clearly list any gluten ingredients. I am micro-sensitive and haven't had a problem with their taco or chili mix. but remember to ALWAYS read labels!

Bloating is VERY common with this as well as weight loss, acid reflux. I have had all 3. Hang in there, Beverly

Jnkmnky Collaborator
I have had problems with bloating for about 6 years. First I was told it was because I had fibroids, then a couple of years later my Dr. had me do an upper GI and told me I had acid reflux. Then in December my gas and bloating got so bad he ran some blood tests on me and a food allegy test came back and Jan 12th he told me I have an allergic reaction to wheat. The IgE shows .90 KU/L which states a moderate level.

He told me to go on a wheat free diet and he would have to do some research and call me (I'm still waiting). Since then I've found out about Celiac Disease. I also have hypothyroidism.

It seems to explain the bloating. I've been trying to cut all wheat, oats and barley and look for the hidden glucose in the ingredients but it seems so hard and overwelming! I felt better for a few days but then the bloating is back. I used taco seasoning today, Is there something in the spices? Does it take a while to feel relief, maybe I'm too anxious but the reason I'm scared is because all the sudden I feel aches and pains and I've lost about 5 lbs in the last two weeks.

Is it a common symtom to only have bloating with this?

Any help would be much appreciated!!

Also where can I get a list of all the safe name brands in the store?

Thanks!

Kirsten

Glucose is sugar. You can have glucose. It's just gluten that you can't have. Beware of the word MALT as well as wheat, oats, barley, rye, spelt, kamut... call and confirm the "source" of Modified Food Starch as it could be derived from a gluten containing source. I use the company, Kinnikinnick for all of my bread products.. There is a link below in my sig. Check your lip gloss for wheat germ oil, check your other bath products as well. Wheat free doesn't equal gluten free.

honedo Newbie
Hi Kirsten- If you post your email I will send you the Delphi gluten free list which has 70 pages of information. Or if you don't want top post your email, email me at babrennanov@gmail.com and I'll send it to you. It could very well have been the taco seasonings- a lot of them have fillers that could contain gluten. For future reference, Mccormack's brand spices (including their seasoning packets for taco and chile) will clearly list any gluten ingredients. I am micro-sensitive and haven't had a problem with their taco or chili mix. but remember to ALWAYS read labels!

Bloating is VERY common with this as well as weight loss, acid reflux. I have had all 3. Hang in there, Beverly

Hi Beverly,

Thank you for the info. My email address is honedo10@sbcglobal.net. I did use Mccormack's but maybe it was something else. I've felt bloated all day today so far, I made an appointment for tomorrow, I'm hoping he'll have more answers for me or can send me to a Gastroenterologist.

Kirsten

Glucose is sugar. You can have glucose. It's just gluten that you can't have. Beware of the word MALT as well as wheat, oats, barley, rye, spelt, kamut... call and confirm the "source" of Modified Food Starch as it could be derived from a gluten containing source. I use the company, Kinnikinnick for all of my bread products.. There is a link below in my sig. Check your lip gloss for wheat germ oil, check your other bath products as well. Wheat free doesn't equal gluten free.

Opps, I meant gluten and typed glucose. Thanks for the info! I didn't know about Malt.

par18 Apprentice

Kirsten,

I understand your concern. The thing that helped me the most in the beginning of this diet was to develop a plan. I tried to get a certain amount of naturally gluten free foods and stick to them for at least a couple of weeks to see how I responded. Although it seemed like I was eating a lot of the same things for breakfast and lunch, the intent was to make sure I did not ingest "any" gluten. I don't think I ate anything like tacos for the first few months. The most I varied my menu was during dinner. I would rotate the type of meat and few vegetables. I also kept a list of everything I ate and when I ate it. If it would help I think you should write down a sample menu for a week at a time and try to stick to it. I'm sure there were times when my wife thought I was paranoid because I would not try seasonings other than salt and pepper. Once again I wanted to be sure I was doing it right. In my case my body started to respond to the diet in only a few days. I no longer had the bloating, reflux, gas and diarrhea. The absence of these symptoms made sticking to the diet worthwhile. I understand now 9 months later that this diet was not overwhelming or hard. It was and still is only one thing to me and that is "inconvenient". The fact that I feel so much better physically is worth the inconvenience. Good luck to you.

Tom

honedo Newbie
Kirsten,

I understand your concern. The thing that helped me the most in the beginning of this diet was to develop a plan. I tried to get a certain amount of naturally gluten free foods and stick to them for at least a couple of weeks to see how I responded. Although it seemed like I was eating a lot of the same things for breakfast and lunch, the intent was to make sure I did not ingest "any" gluten. I don't think I ate anything like tacos for the first few months. The most I varied my menu was during dinner. I would rotate the type of meat and few vegetables. I also kept a list of everything I ate and when I ate it. If it would help I think you should write down a sample menu for a week at a time and try to stick to it. I'm sure there were times when my wife thought I was paranoid because I would not try seasonings other than salt and pepper. Once again I wanted to be sure I was doing it right. In my case my body started to respond to the diet in only a few days. I no longer had the bloating, reflux, gas and diarrhea. The absence of these symptoms made sticking to the diet worthwhile. I understand now 9 months later that this diet was not overwhelming or hard. It was and still is only one thing to me and that is "inconvenient". The fact that I feel so much better physically is worth the inconvenience. Good luck to you.

Tom

Tom

Thanks for the advice. And here I was thinking I was paranoid. Your right I'll stick to the basics for a while. It will be so great to feel better!

Kirsten :)

ebrbetty Rising Star

Hi Kirsten, as you know from reading my post, I'm new too this too and having trouble, I just wanted to say I hope you feel better real soon. lots of helpful ppl here, we should be ok ;) I agree, its scary at times.

hugs, Betty


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest BERNESES

Kirsten and Betsy- My computer is offline today (I'm on my hubbies) but if you both send me an email to babrennanov@gmail.com to remind me to send you the Delphi list I will send it out to you as soon as I get reconnected to the Internet. thanks, Beverly

ebrbetty Rising Star

thank you so much for the offer, its a great site and I go there often to look up products.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,118
    • Most Online (within 30 mins)
      7,748

    Momoosa
    Newest Member
    Momoosa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      You may be reacting to some of the ingredients used to imitate gluten products. I eat Amy's Chilli quite often with no problems. When I eat Bush's chilli beans or Hormel Chilli with the same ingredient list, I get heartburn.  Break out the alka seltzer.   Barillo spaghetti has CORN FLOUR, RICE FLOUR, MONO AND DIGLYCERIDES. Udi's White bread Ingredients - water, tapioca starch, brown rice flour, canola oil, dried egg whites, sugar, tapioca maltodextrin, tapioca syrup, sorghum flour, less than 2% of: rice starch, sorghum grain, flaxseed meal,  gum blend (xanthan gum, sodium alginate, guar gum), apple cider vinegar, apple fiber, molasses, salt, amaranth flour, teff flour, yeast, cultured brown rice, locust bean gum, enzymes Chobani Greek Yogurt Cultured nonfat milk, cane sugar, water, natural flavors, fruit pectin, guar gum, locust bean gum, vanilla extract, lemon juice concentrate.
    • Soleihey
      My TTG was 167 one year ago. Recently had it retested one month ago and it went down to 16. I only recently had an endoscopy done as I was pregnant within the last year. I did not eat gluten prior to this endoscopy as I get very sick. Prior to obtaining the biopsies, the endoscopy said “ diffuse moderately erythematous mucosa to the second part of the duodenum without bleeding.” However, the biopsy came back negative. I assume it’s a false negative as I have also had genetic testing to confirm celiac. However, what would cause the inflammation to the second part of the duodenum and continued positive blood markers if the intestines have healed?
    • TerryinCO
      Thank you for direction.  Eating out is a concern though we rarely do, but I'm prepared now.
    • trents
      This might be helpful to you at this point:   
    • cristiana
      Thank you for the update.  So interesting to know how things are changing, when I was diagnosed I had very similar blood results but still had to have the endoscopy.  Glad you know where you stand.  As your father has celiac disease you probably already know a lot about it, but do contact us if we can help further.
×
×
  • Create New...