Daily stomach pain and nauseated

[Bshake]

Hi ...my 19 year old daughter in January of 2019 started having stomach pain. Since we have had endoscopy and colonoscopy...in April it was determined she had a non functioning gall bladder and was removed, we were happy just knowing that once it was gone things would go back to normal but was not the case... a few months later still having stomach pain we were told she has celiac disease so once again we figured okay stay away from gluten then things will get better but once again nothing changed....so had another endoscopy  and colonoscopy to find she had to small ulcers...she’s been taking all medicine they’re trying to give us from protonix (for gastritis and small ulcers) to others vitamins like fiber and other stuff to try and keep her colon clean as possible...but to this point even after having gall bladder removed and diagnosis of celiac she has basically all the same issues we started with from day one...we also done had a full panel of blood test and everything was good even her celiac blood test (which she has been very faithful to avoiding gluten) but still having entire stomach/mid section pain...we don’t know what else to do as we’re on our second gastrologist and still looking for help...if anyone here is having or had similar issues please give us any info or advice you have...any help would be greatly appreciated, GOD BLESS

[Corinne D.]

Hello Bshake, sorry to hear your daughter is struggling. Sometimes celiacs have additional intolerances apart from gluten. In many cases, these intolerances are temporary and resolve once healing has occurred. However, to speed healing and prevent symptoms, it is recommended to eliminate these additional foods and reintroduce them after a while, like six months, to see if they are better tolerated.

The most common one seems to be lactose, which is found in milk and other dairy products. About half of the celiacs cannot digest lactose for a while until they heal. Other common intolerances can include soy, gluten-free grains like corn, quinoa or buckwheat, legumes, sugar, eggs, nightshades... and the examples can go on and on. Everyone is different and can have their own more or less severe intolerances.

To help identify possible intolerances, your daughter should start keeping a food diary, logging everything she eats and her symptoms, to see if any foods can be correlated with how she feels.

Also, she could look into an elimination diet that focuses on whole foods and eliminates processed foods. The Fasano diet for unresponsive celiacs is a good place to start: http://www.thepatientceliac.com/2013/03/04/the-gluten-contamination-elimination-diet/

Then there is the Specific Carbohydrate Diet, which eliminates all grains and starchy vegetables: http://www.breakingtheviciouscycle.info/

It is fairly similar to the Paleo diet - there is lots of information about this one, just google it. A quite restrictive, but very effective version of this is the Paleo Autoimmune Protocol: https://www.thepaleomom.com/start-here/the-autoimmune-protocol/

I hope this helps. Good luck and all the best to you and your daughter!

[Ennis-TX]

Connie gave some good advice, the dairy issue is very common as the enzymes to break it down come from the villi which celiac disease destroys, Oats, 10% of celiacs react just the same and most oats are contaminated anyway. Here is some info on keeping a food diary that might help.
https://www.wikihow.com/Keep-a-Food-Diary
The elimination diet and going to whole foods will help find other issues, I used to have a huge list and many have come and gone over the years.  Now days I myself and paleo with keto macros with some other stuff avoided. And yes some foods just caused extreme stomach pain and sometimes vomiting for me peanuts were one for almost 6 years after no apparent reason.

Another concept is healing and pain, how long has she been gluten free? Is she truly gluten free? It can take months/years to heal depending on accidental exposures. Celiac is a Auto Immune Disease, our immune system which can react to germs is having a reaction to a even smaller protein "gluten" in wheat, barley, and rye. Tiny amounts of cross contamination can make us sick, this can come from shared knifes, condiment jars/butter with crumbs/residue from spreading and sticking the spoon/knife back in, scratches in a cutting board, scratches in pots/pans with gluten residue, shared toasters, wooden spoons, even in a shared kitchen where flour is used as it can go airborne and settle everywhere for up to 24 hours, or get inhaled, stuck in mucus then digested later.  In some cases lotions, shampoos, etc can have gluten, sure your not eating it but how often do you get it on your hands from touching your skin/hair then touch food you eat?
You have to have dedicated cook ware, dedicated prep area normally, some super sensitive individuals need to go whole house gluten free.

Edited December 12, 2019 by Ennis_TX

[anasss]

11 hours ago, Bshake said:

Hi ...my 19 year old daughter in January of 2019 started having stomach pain. Since we have had endoscopy and colonoscopy...in April it was determined she had a non functioning gall bladder and was removed, we were happy just knowing that once it was gone things would go back to normal but was not the case... a few months later still having stomach pain we were told she has celiac disease so once again we figured okay stay away from gluten then things will get better but once again nothing changed....so had another endoscopy  and colonoscopy to find she had to small ulcers...she’s been taking all medicine they’re trying to give us from protonix (for gastritis and small ulcers) to others vitamins like fiber and other stuff to try and keep her colon clean as possible...but to this point even after having gall bladder removed and diagnosis of celiac she has basically all the same issues we started with from day one...we also done had a full panel of blood test and everything was good even her celiac blood test (which she has been very faithful to avoiding gluten) but still having entire stomach/mid section pain...we don’t know what else to do as we’re on our second gastrologist and still looking for help...if anyone here is having or had similar issues please give us any info or advice you have...any help would be greatly appreciated, GOD BLESS

Hi , 

 

I’m 24 years old and have had very similar symptoms that your daughter may Be experiencing . My gallbladder was low functioning and has come back to function.  In the beginning , even though I was following a strict diet , I realized it was not enough . Sometimes , cross contamination may trigger symptoms , such as shared utensils and even ovens . Even the slightest contamination is enough to trigger a reaction. My family has gone completely gluten free , since we share a kitchen .  Cross contamination is very serious once you know she has celiac. unfortunately, gluten is everywhere. Her immune system is on attack mode at this time, like mine was also. I had to drop out of college to get better.  When i moved, i had family external family visiting and was exposed to cross contamination. now recovering from exposure to cross contamination, however I was doing amazing, when I was living in 100 percent gluten free home. the cross contamination brought back my stomach problems and now I am in recovery again.  No one uses my utensils and i have my own mini oven, refrigerator and such things. when visitors come they eat outside in the patio and gluten gets disposed outside with plastic cups and plates. My family now understands, how serious celiac disease is and that it can kill me slowly and painfully.  Rice can also have traces of gluten and eggs chicken and such. Anything that is not grass fed.  farm raised salmon can also eat gluten.  I wondered why on a gluten free diet, I wasn't getting any better. My numbers went back to normal when i went gluten free like your daughter, but I was in so much stomach pain. i could hardly touch my stomach. Then studied and understood the science of cross contamination in food and environment. I gave it another push and got better. My stomach aches went away for 8 months, however moved closer to family and they exposed me to cross contamination when using my utensils and pans. I got a set back. Now, getting back to  normal. Don't feel discouraged. I have even lost friends because I have to pack my food when i am out of the house and cannot eat in any restaurant anymore. Most people don't understand the severity of celiac disease.  Stay away from packaged foods, even if they say gluten free. they can have trace gluten from different chemicals. they are more for people with gluten sensitivity not celiac.  There is not enough gluten in them, to change her numbers that have gone back to normal, but tiny bits to trigger a reaction.  I am surviving and my goal is to thrive. 

I can suggest the products and brands that I use and share the studies of hidden gluten to watch out for. It took me a while to figure it all out.

[Scott Adams]

I’ve never heard of a pure rice, eggs, salmon or chicken that would contain gluten (no matter what is fed to the animals). Please be careful of the claims you make in a public forum like this, and provide evidence when you make such claims. It would be very easy to test these for gluten and I’ve never heard of any that contain gluten. Likewise products that are labeled gluten-free have been shown to be generally  safe by several studies, although there have been a few exceptions.

[kareng]

1 hour ago, anasss said:

Hi , 

 

I’m 24 years old and have had very similar symptoms that your daughter may Be experiencing . My gallbladder was low functioning and has come back to function.  In the beginning , even though I was following a strict diet , I realized it was not enough . Sometimes , cross contamination may trigger symptoms , such as shared utensils and even ovens . Even the slightest contamination is enough to trigger a reaction. My family has gone completely gluten free , since we share a kitchen .  Cross contamination is very serious once you know she has celiac. unfortunately, gluten is everywhere. Her immune system is on attack mode at this time, like mine was also. I had to drop out of college to get better.  When i moved, i had family external family visiting and was exposed to cross contamination. now recovering from exposure to cross contamination, however I was doing amazing, when I was living in 100 percent gluten free home. the cross contamination brought back my stomach problems and now I am in recovery again.  No one uses my utensils and i have my own mini oven, refrigerator and such things. when visitors come they eat outside in the patio and gluten gets disposed outside with plastic cups and plates. My family now understands, how serious celiac disease is and that it can kill me slowly and painfully.  Rice can also have traces of gluten and eggs chicken and such. Anything that is not grass fed.  farm raised salmon can also eat gluten.  I wondered why on a gluten free diet, I wasn't getting any better. My numbers went back to normal when i went gluten free like your daughter, but I was in so much stomach pain. i could hardly touch my stomach. Then studied and understood the science of cross contamination in food and environment. I gave it another push and got better. My stomach aches went away for 8 months, however moved closer to family and they exposed me to cross contamination when using my utensils and pans. I got a set back. Now, getting back to  normal. Don't feel discouraged. I have even lost friends because I have to pack my food when i am out of the house and cannot eat in any restaurant anymore. Most people don't understand the severity of celiac disease.  Stay away from packaged foods, even if they say gluten free. they can have trace gluten from different chemicals. they are more for people with gluten sensitivity not celiac.  There is not enough gluten in them, to change her numbers that have gone back to normal, but tiny bits to trigger a reaction.  I am surviving and my goal is to thrive. 

I can suggest the products and brands that I use and share the studies of hidden gluten to watch out for. It took me a while to figure it all out.

No. I agree with what Scott said.  So much is not true in this post.  

[cyclinglady]

If her celiac blood test normalized and her second endoscopy and colonoscopy (with the pathologist confirming this besides the GI) revealed a healed small intestine, but found ulcers, she may be dealing with something else like Inflammatory Bowel Disease.  Did your GI/pathologist say what the root cause of the ulcers were?  Where were they located?  

My niece who does not have celiac disease (repeated negative blood tests and biopsies) was diagnosed with Crohn’s which was out of reach of both scopes.  Her 4th GI ordered a pill camera.  

Then there is Nicole who had celiac disease, but they found a scar tissue attached to her colon (a veil) that was the real root cause of her continuing problems (she still has celiac disease).  She was featured in gluten-free living (magazine) , but I do not subscribe to it).  

Are your daughter’s  bile ducts still functioning?  I had a non-functioning gallbladder (0% on the HIDA scan) and it was removed.  It is a family curse.  A few of my family members did develop gallstones after their gallbladders were removed even though their original issue was non-functioning (not squeezing and emptying).  

I think you need to find a third GI, especially if she is on a strict gluten-free diet, maybe  never eats out and follow-up  testing shows normalized blood tests and normal small intestinal biopsies.  Something is clearly wrong and it may not just be celiac disease.  Do not let her get a “boxed in” diagnosis.

I shared all this with you because I think you need to keep researching.  Be persistent.  Your daughter is lucky that she has a mom who cares so much).  

p.S.  has her pancreas been checked?  It might not be cranking out enzymes.  Pancreatic Insufficiency.

https://www.webmd.com/digestive-disorders/epi-linked-conditions#1

Edited December 12, 2019 by cyclinglady

[anasss]

14 hours ago, Bshake said:

Hi ...my 19 year old daughter in January of 2019 started having stomach pain. Since we have had endoscopy and colonoscopy...in April it was determined she had a non functioning gall bladder and was removed, we were happy just knowing that once it was gone things would go back to normal but was not the case... a few months later still having stomach pain we were told she has celiac disease so once again we figured okay stay away from gluten then things will get better but once again nothing changed....so had another endoscopy  and colonoscopy to find she had to small ulcers...she’s been taking all medicine they’re trying to give us from protonix (for gastritis and small ulcers) to others vitamins like fiber and other stuff to try and keep her colon clean as possible...but to this point even after having gall bladder removed and diagnosis of celiac she has basically all the same issues we started with from day one...we also done had a full panel of blood test and everything was good even her celiac blood test (which she has been very faithful to avoiding gluten) but still having entire stomach/mid section pain...we don’t know what else to do as we’re on our second gastrologist and still looking for help...if anyone here is having or had similar issues please give us any info or advice you have...any help would be greatly appreciated, GOD BLESS

I wanted to respond again, since I was criticized for not having the research. I am posting the research and explaining better.  For starters, I stumbled upon this post, while doing research on a chemical that may have gluten for my safety.  Then, read your story about your daughter and It reminded me of me 2 years ago.  In another post, I talk about how I set back and why.  I saw 3 gastro doctors, primary and neurologist.  I ruled out MS, lupus, lyme and had so much blood work. all blood work clean. HOWEVER, MY CELIAC NUMBERS where off the charts. I was really sick. After going gluten free, I was still suffering from stomach aches and nausea. I DID NOT GET BETTER GLUTEN FREE UNTIL I WENT GLUTEN FREE NO CONTAMINATION. let me explain, the FDA allows gluten free labeled food to have a certain amount of gluten, though it is gluten free. this is TRACE GLUTEN... i will paste the link here and keep talking..

MANUFACTURES ARE NOT REQUIRED TO BATCH TEST FOR GLUTEN, YOU CAN FIND MORE INFORMATION ON BEYOND CELIAC OR THE LINK.

to continue my story, my numbers where really high and like your daughter had gall bladder problems and ulcers.  They where going to take my gall bladder out, but when I went gluten free CONTAMINATION FREE my gall bladder was tested the 2nd time and was functioning a lot better, just slightly under.  The surgery never happened and I kept it. I still have my gall bladder..   furthermore, my stomach aches did not go away and I could not understand why, since I was gluten free.   My numbers where normal.   I went a step further and became gluten free contamination free.  Also no trace gluten. I got better for 8 months.  remission. no stomach ache... I MOVED AND GOT EXPOSED TO CROSS CONTAMINATION FROM FAMILY MEMBERS VISITING BEING EXPOSED TO CROSS CONTAMINATION. PLATES OR WHATEVER.  I RELAPSED BACK TO STOMACH PROBLEMS. NOW, 7 WEEKS WITHOUT A STOMACH ACHE. MY FAMILY DOES NOT BRING ANY GLUTEN OVER. I HAVE MY OWN REFRIGERATOR, POTS, PANS UTENSILS.  THE HOUSE IS GLUTEN FREE CONTAMINATION FREE.   dont you want to get advice from someone in remission.   every chemical, i read to find a trace to gluten.   Sometimes it has a different name, but its gluten.   I am not ignorant because i research on both sides of the isle.  I wish someone would have alerted me and I would have been in remission right after diagnosis.   this affected beyond what i can say here. Meat is not regulated gluten free either. I can send more links. Furthermore, I went farm to table, got to know my farmer, I dont eat anything in a package, everything is made from scratch. I took out all preservatives, corn, soy and such. these are digestive disruptors. this part is super obvious and you can find a lot of information.   Most corn in the market is GMO.  What the animal, eats you eat. BTY bone broth helped me a lot when I felt really sick like your daughter is now. I also source my meat local and grain free.  I visit the farms that eat from and know my farmer.  I had no idea about this stuff into I woke up to a new reality...   please do a little research on the VILI which gets damaged every time you have crossed contamination. smallest amount. The intestine needs it to absorb minerals, otherwise she will be tired a lot.  I wish I could tell you more, but these forums are censored in a way.. I am living without a stomach ache. I am living proof. I am not ignorant. I was accepted and given incredible opportunities when i was at my lowest celiac point.  From prestigious opportunities, to IV league in China all expenses paid. 

https://www.beyondceliac.org/gluten-free-diet/food-labeling-laws/compliance-the-gluten-free-labeling-rule/

https://www.foxnews.com/health/32-percent-of-foods-labeled-gluten-free-contain-gluten-study

[Scott Adams]

So first, nobody here has called you ignorant. Second, "What the animal, eats you eat" isn't correct, especially if you are implying that gluten fed animals mean that their meat would not be gluten-free. There is no research to back this up, and again, this would be a very simple thing to test, so if it were true, I, and my board moderators would know about this by now.

There is something called meat glue that does seem to cause a reaction in some people, so perhaps this is what you mean?:

This would have nothing to do with what the animal ate, but how their meat was processed. 

The link you posted talks about "gluten-free" restaurant foods being contaminated, which nobody here will argue about. Eating out can be a challenge, and many celiacs won't eat out. Packaged foods labelled "gluten-free," however, have been shown to be very safe, and that is something else that you implied isn't safe.

It definitely sounds like you had a bad time, and I'm glad to hear that you are doing better now.

[NNowak]

I cannot expound on the factual information listed in previous posts. I can, however, encourage you to follow your instincts as the mom, but also caution you with the statement that it takes a lot of time to heal. My 12 year old daughter has been having problems for a few years. I’ve been a diagnosed celiac for 24 years with new autoimmune diseases now popping up. My family is full of celiacs and NCGS - we all “flare” and rally around with advice on how to heal. While that sounds somewhat comical, the lesson we’ve learned over the years is to give it time.  Encourage your daughter to research so she understands and can gain some feeling of control over her situation. As an adult, she should be as much of an advocate for herself as you are. 
 

The Fasano Diet, FODMAP, Dairy free should give your daughter a starting point. It may be too much to combine another structured diet while learning how to accept the gluten-free diet. If dairy isn’t a known problem at this point, there’s a very high probability that it will be a problem in the near future. In my opinion, that’s the easiest next move in the dietary department. 
 

I hope your daughter gets some answers and starts to feel better soon. Good job, momma!!

[cyclinglady]

I follow a strict gluten free diet.  I know that I am doing a good job because I have had repeat biopsies and they revealed healthy, healed villi.  However, since my celiac disease diagnosis, I have developed Autoimmune Gastritis (as diagnosed by my GI and the pathologist).    I learned that not everything is due to a gluten exposure/celiac disease flare up. You can have more than one illness going on.  

You can drive yourself crazy trying to avoid gluten.  I did that for almost a year, prior to finally agreeing with my GI that I needed another endoscopy.  So, I have been in your shoes.  

I do live in a gluten-free house, because my hubby has been gluten-free some 12 years prior to my diagnosis.  It is just easier for us.  We also do not eat out except at dedicated gluten-free restaurants.  I learned that once my celiac disease flares, my other autoimmune disorders flare as well.  Eating out is not worth months of misery.  

I do consume meat and fish.  I do not worry about if animals were fed gluten (exception my pets because they can slobber on me!) If there was any truth to gluten being in the flesh of meat or fish, I would never had healed.  I do worry about how some meats are processed, cut or sold (e.g. chicken sitting next to “stuffed” pork chops at the butcher).  

So, I disagree about your comments about meat.  I agree that cross contamination is a huge issue, but it can be managed.  I also agree that we need to clean up our food sources.  It is why I promote real foods.  But that is for other reasons, not because they will trigger celiac disease.  

We each need to find our own way because we all have so many other concurrent illnesses or intolerances.  ?

 

[Bshake]

Thank all of you for your reply’s ..I forgot to mention we did cut out dairy as she found that was giving her problems . We will look at info both you gave and continue to do what we can to get her feeling better...thanks y’all very much for the suggestions and advice but if anyone else has anything please reply ...thanks again

[knitty kitty]

On 12/11/2019 at 11:09 PM, Bshake said:

Hi ...my 19 year old daughter in January of 2019 started having stomach pain. Since we have had endoscopy and colonoscopy...in April it was determined she had a non functioning gall bladder and was removed, we were happy just knowing that once it was gone things would go back to normal but was not the case... a few months later still having stomach pain we were told she has celiac disease so once again we figured okay stay away from gluten then things will get better but once again nothing changed....so had another endoscopy  and colonoscopy to find she had to small ulcers...she’s been taking all medicine they’re trying to give us from protonix (for gastritis and small ulcers) to others vitamins like fiber and other stuff to try and keep her colon clean as possible...but to this point even after having gall bladder removed and diagnosis of celiac she has basically all the same issues we started with from day one...we also done had a full panel of blood test and everything was good even her celiac blood test (which she has been very faithful to avoiding gluten) but still having entire stomach/mid section pain...we don’t know what else to do as we’re on our second gastrologist and still looking for help...if anyone here is having or had similar issues please give us any info or advice you have...any help would be greatly appreciated, GOD BLESS

Hello.  Sorry you're so worried about your daughter.  You're a good mom to search for answers. Hope you're ready to read some articles.....

B12 deficiency can cause abdominal pain...

https://www.livestrong.com/article/478308-can-abdominal-pain-be-caused-by-a-vitamin-or-mineral-deficiency/

Symptoms of B12 deficiency...

https://www.medicalnewstoday.com/articles/324265.php#about

Gallbladder malfunction is caused by B12 deficiency...

https://healthfully.com/connection-between-vitamin-b-12-and-gallbladder-pain-6598342.html

Often B12 deficiency causes health problems before blatent anemia shows up....

https://medium.com/feed-your-brain/the-four-stages-of-vitamin-b12-deficiency-f2cad865da46

Gastritis causes B12 deficiency.....

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5292330/#!po=32.4561

Anesthesia for those endoscopies and gallbladder surgery can cause B12 deficiency several weeks later....

https://www.b12-vitamin.com/anesthesia/

I went through a long period of declining health before I was diagnosed with Celiac Disease.  During that time I had several medical procedures (endoscopy, colonoscopy, dental procedures, surgical procedures) that lowered my B12 levels and precipitated a host of health problems including gallbladder surgery, gastritis, pernicious anemia, and iron deficiency anemia, hyperhomocysteine and Type II diabetes, osteoporosis and fractures and depression.  I never had blood test results indicative of megaloblastic anemia.   My doctors seemed more intent on giving me prescriptions to treat the symptoms than on finding the cause of my deteriorating health.  I found another doctor who helped me find answers.  I hope my story can help you find answers.  

Kitty

 

P.S.  Mr. Adams is correct....

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5622696/

Edited December 13, 2019 by knitty kitty
Typographical error

[GFinDC]

Some alternative medicine treatments for stomach ulcers are DGL licorice, mastic gum, and caprylic acid.  Caprylic acid comes from coconut.  I'd try all of these at once for a couple months daily.  They may add a little extra boost to the medicines she already takes for ulcers.

Her stomach pain could very well be from the ulcers and not from celiac disease.  They usually give a cocktail of 3 antibiotics for 3 months to treat h. pylori caused ulcers.  Antibiotics can cause digestive  issues themselves though.  H pylori is hard to kill.

Pepto Bismol may provide a little temporary relief.

Healing from celiac damage is not a fast thing.  It can take a year or two or more.  It is helpful to stick to a whole foods, home cooked diet until things get better.  Things that sometimes trip people up are shared condiments. toasters, beverages.  Even vitamin pills and other supplements needs to be checked for gluten.

Probiotics and digestive enzymes may help some.

[anasss]

On 12/12/2019 at 12:09 AM, Bshake said:

Hi ...my 19 year old daughter in January of 2019 started having stomach pain. Since we have had endoscopy and colonoscopy...in April it was determined she had a non functioning gall bladder and was removed, we were happy just knowing that once it was gone things would go back to normal but was not the case... a few months later still having stomach pain we were told she has celiac disease so once again we figured okay stay away from gluten then things will get better but once again nothing changed....so had another endoscopy  and colonoscopy to find she had to small ulcers...she’s been taking all medicine they’re trying to give us from protonix (for gastritis and small ulcers) to others vitamins like fiber and other stuff to try and keep her colon clean as possible...but to this point even after having gall bladder removed and diagnosis of celiac she has basically all the same issues we started with from day one...we also done had a full panel of blood test and everything was good even her celiac blood test (which she has been very faithful to avoiding gluten) but still having entire stomach/mid section pain...we don’t know what else to do as we’re on our second gastrologist and still looking for help...if anyone here is having or had similar issues please give us any info or advice you have...any help would be greatly appreciated, GOD BLESS

Hi again. This will be my last post.  I wanted to add some last bits of important information on how I have reached remission.  First, I want to address on comments about animals and feed.   I eat from a farmer that is USDA inspected and they have their own kill facility.  One of the only ones, in my state. The chicken eats Sorghum. You can read about Sorghum yourself. It is an alternative, to traditional chicken feed, such as corn and soy. The owner of the farm is gluten free, so her farm is also GLUTEN FREE.  This farm is amazing.  A lot of people with Celiac and other disorders and such eat from this farm.

FOR THE READER THAT CALLS ME IGNORANT.  BASICALLY, POULTRY CAN HAVE INTESTINAL INFLAMMATION AND ONE OF THE MAIN FACTORS THAT CAUSES THIS CONDITION IS THE BIRDS DIET.  INGREDIENTS, SUCH AS SOY BEAN MEAL, WHEAT, RYE CAN CAUSE INTESTINAL DISTURBANCE, WHICH CAN LEAD TO INFLAMMATION.  THIS WAS SOURCED FROM...ESSEANTIALFEED.ZINC.PRO.COM. I WILL PASTE THE LINK BELOW.  

BTW FOR THE READER THAT CALLS ME IGNORANT, THEY ARE FEEDING POULTRY ZINC TO REDUCE THE EFFECTS, THE FEED HAS ON THE POULTRY... HMMM SOUNDS GREAT FOR A CELIAC. LETS TO EAT MORE INFLAMMATION...   

I AM SURE YOU ARE WONDERING WHY SUDDENLY WE HAVE TO FEED CHICKEN ZINC, HERE IS THE ANSWER.. MOST OF THE CORN IN AMERICAN IS A GMO AND ITS TOXIC... I BELIEVE GMO IS TOXIC.. CHICKENS ARE MEANT TO EAT WILD SEEDS, ANIMALS FOODS AND GREEN PLANTS. ALSO, WE INTRODUCED GMO CORN AND ITS AN EXPERIMENT.  EXPERIMENT ON GUTT BIOME.  THERE IS A LOT OF RESEARCH ON HOW GMOS BREAK DOWN OUR GUTT BIOME. NOT SURE HOW ORGANIC PEOPLE HERE ARE, SO I AM NOT GOING TO SHARE. YOU CAN LOOK IT UP YOURSELF.   

OBVIOUSLY, SOMETHING IS WRONG WITH THE EXPLOSION OF GUTT DISEASE IN AMERICA.  

MOST PEOPLE ON THIS FORM STATISTICALLY PROBABLY HAVE A SECONDARY AUTO IMMUNE DISEASE, WHICH MEANS YOUR INFLAMMATION IN YOUR BODY, CANT BE THAT GREAT.  INFLAMMATION IS A MAJOR CAUSE OF DISEASE ALONGSIDE PRE DISPOSITION DNA-GENES AND ENVIRONMENTAL FACTORS

 

 Grass fed meats are not inflammatory.  However, if the person loses the gallbladder or there is too much damage to the intestine, they would would have a harder time digesting red meat.  I was not able to eat chicken until I ate chicken with this alternative diet.  I do agree with someone else post about meat and gluten.   I have gone TO extraordinary measures to stay in remission.  Most importantly, most Celiacs end up with a secondary immune condition.  Some people with severe celiac do not get better because the small daily exposure will continue to chip away at the tissue. Basically, inflammation for LIFE, EVEN SMALL DOSES CAUSES DAILY DAMAGE.  THIS IS WHY MOST CELIACS WILL CALL OUT THEIR SECONDARY AUTO IMMUNE DISEASE AT SOME POINT.   PEOPLE WITH ONE AUTO IMMUNE DISEASE DISORDER ARE AT RISK FOR ANOTHER ONE. THE CHANCES OF DEVELOPING ANOTHER DISORDER INCREASES BY 34 PERCENT, IF YOU WERE DIAGNOSED AT AGE 20 OR ABOVE.  AGES 12 TO 20 IS 27 PERCENT.  ALL THIS INFORMATION WAS QUOTED FROM CELIAC.ORG.    FURTHERMORE, FARM TO TABLE IS ONE ASPECT OF HEALING, IF YOU GET TO KNOW THE FARM AND CHEMICALS USED.  ORGANIC FARMS ARE ALLOWED TO USE A FLUE OF CHEMICALS.  YOU SHOULD LOOK UP THE DIFFERENCE BETWEEN GRASS FED AND GRAIN FED BEEF...  WHAT A COW EATS CAN SIGNIFICANTLY AFFECT THE NUTRIENT COMPOSITION OF THE BEEF.  EVEN THE COMPOSITION OF FATTY ACIDS IS DIFFERENT.  GRASS FED HAS 5 TIMES MORE OMEGA 3 AND TOW TIMES MORE LINOLEIC  ACID. 

 

I KNOW ITS A CHALLENGE TO EAT FARM TO TABLE, BUT MOST PEOPLE ARE CLUELESS ABOUT HOW FOOD IS GROWN. THE SOIL IS A LIVING ORGANISM. THINK OF IT LIKE A STOMACH THAT EATS, JUST LIKE YOU. CURRENTLY FOOD REGULATIONS ARE CRAP.  ORGANIC IS NOT ALWAYS ORGANIC AND USES PESTICIDES.  SMALL FARMERS USUALLY USE MANURE FROM GRASS FED COWS.  MEDIUM TO LARGE FARMS CAN USE MANY CHEMICALS, WHICH ARE FDA APPROVED.   I HAVE EVEN VOLUNTEERED AT ORGANIC FARMS, BEFORE EATING THEIR FOOD TO SEE WITH MY EYES THEIR PRACTICES.   IF YOU CANT DO THAT, ASK THE FARMER, IF YOU HAVE ACCESS TO FARM TO TABLE.  HOW DO YOU FERTILIZE YOUR LAND? WHAT DOES YOUR SOIL EAT? WHAT COMPOST DO YOU USE?  ASK ASK ASK... I DID AND FOUND FARMERS TO BE SUPER HONEST, EVEN THE ONES THAT USE CHEMICALS, SHARED WHY THEY DID. I SAY, I AM A CELIAC AND THIS IS WHY I NEED TO KNOW.. 

 

CURRENTLY, SAVING TO BUY A DRY FREEZER. HARVEST RIGHT IS THE BRAND.  THIS WAY, WHEN CERTAIN FOODS THAT COME INTO SEASON ARE AVAILABLE, I CAN DRY FREEZE THEM, KEEPING 97 PERCENT OF THE NUTRITIONAL VALUE. CHECK THEM OUT AT INSTAGRAM. WHEN SUPER FOODS ARE NOT IN SEASON, I CAN HAVE FOOD OR TRAVEL WITH DRIED FREEZE FOOD. DO NOT CONFUSE DEHYDRATED FOOD, WHICH IS NOT THE SAME. ITS A PRICEY INVESTMENT.  

I AM IN REMISSION AND I WAS SEVERE.  I HAVE A LOT OF INFORMATION TO SHARE, BUT PEOPLE HERE ARE VERY CLOSED MINDED.  A LOT OF PEOPLE ARE EAGER TO CRITICIZE BECAUSE THEY ARE NOT WILLING TO ACCEPT THE LIFESTYLE CHANGE AND SACRIFICE THAT IT TAKES TO LIVE IN REMISSION, IF YOU ARE SEVERE.  CELIAC IS AN AUTO IMMUNE DISEASE THAT CAN DEVELOP INTO MULTIPLE DIAGNOSIS, AS YOU GET SICKER... GOOD LUCK WITH YOUR JOURNEY... I HOPE SHE GETS BETTER

I PRAYED ON MY KNEES ALL THE TIME AND THE DIVINE DID NOT HELP ME, BUT HE GAVE ME A FARMER ,THAT DID HELP ME AND A BRAIN TO MAKE SENSE OF IT ALL.. BTW STUDY ORIENTAL YAMS, GREAT PROBIOTICS. LOOK UP, OIL TEMPERATURES. OLIVE OIL WHEN HEATED PAST A CERTAIN TEMPERATURE FOR COOKING CAN BE INFLAMMATORY. 

HEALING THE STOMACH IS NOT EASY. YOU HAVE TO KNOW A LOT ABOUT NUTRITION AND FOOD COMBINATIONS... SO MUCH INFORMATION THAT I AM LEAVING OUT. GOOD LUCK . Prior to getting sick , I didn't know anything. I learned everything on my own. 

 

Links 

 

https://essentialfeed.zinpro.com/2018/10/reducing-leaky-gut-intestinal-inflammation-in-poultry-with-zinc/

 

https://celiac.org/about-celiac-disease/related-conditions/autoimmune-disorders/

 

 

[Posterboy]

Anasss, (Not to Moderator's I am going to list two links and this might go two paragraphs)

I do a lot of research and the "chicken" topic containing gluten has come up before.....so I bookmarked the research...other foods have toxic peptide sequences that mimic gluten in the body...this was studied circa 2007...https://journals.sagepub.com/doi/abs/10.1177/1082013207077954  entitled "Computational Characterisation and Identification of Peptides for in silico Detection of Potentially Celiac-Toxic Protein"....chicken is listed as a potential toxic peptide for those who react to gluten...I will quote from the abstract " Rich sources of celiac-disease-potentiating peptides were wheat gliadins, barley hordeins and rye secalins as well as low-molecular weight fractions of glutenin. In addition, amino acid sequences with a high degree of identity to the toxic peptides examined were detected in maize zein, oat avenin, protein of rice, yeast and chicken muscles, as well as β-casein and galanin." this sounds like the problems you are having.

the other link research that might help you is this study of 14 food allergens done in china that list how other food allergens can cause an autoimmune response....this is not a gluten response but it is an autoimmune response...https://www.ncbi.nlm.nih.gov/pubmed/23301096  see the 4 images/graphs at the bottom of the abstract that show's other foods that can trigger an immune response.

I hope this is helpful but it is not medical advise.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

Posterboy by the grace of God,

 

 

[Ennis-TX]

@anasss Perhaps you should start another thread in say the Leaky gut and food intolerance area? I am myself have Celiac and UC, and when I started eating meats again recently I found I felt better on Grass Fed Longhorn from a local farmer and other grass fed beef. There is a inflammatory issue with grain fed and couped up animals and it even effects the omega ratios in the end meat thus causing inflammation, not gluten. 

This thread is getting a bit out of focus, we are trying to help someone else so key coverage of in some people meats can be issue if the animal is eating grains/gluten and it can trigger a inflammatory response. So trying meat Grass Fed and Finished could help some people.

[Posterboy]

19 hours ago, Bshake said:

Thank all of you for your reply’s ..I forgot to mention we did cut out dairy as she found that was giving her problems . We will look at info both you gave and continue to do what we can to get her feeling better...thanks y’all very much for the suggestions and advice but if anyone else has anything please reply ...thanks again

Bshake,

Look up the "baking soda test" ...it is a nice home test to see if your daughter could have low stomach that is triggering the ulcers or creating the perfect conditions for ulcers to develop....mastic gum as has been mentioned is popular for ulcers....you might also try some cabbage juice....it is a home remedy for ulcers....here is the research on it...https://www.hhmi.org/news/excessive-growth-bacteria-may-also-be-major-cause-stomach-ulcers  ...I hope this is helpful but it is not medical advise.

Posterboy,

 

[Scott Adams]

@anasss Nobody in this thread has called anyone "ignorant," so please don't say that if it did not happen. Also, the use of all capitals is, in forums and other places on the Internet, generally considered yelling and impolite, and there is no need for that in this forum, or this thread. 

I know you are trying to help others with what you've learned, which is great, but if you imply that meat is not safe for one reason or another such a claim can cause unnecessary fear in a forum like this, so I wanted to address that claim. 

Sure, some people might get inflammation from chicken and are sensitive to it. All of us here know that many foods can trigger different reactions in people, but the primary focus of this forum is the reaction to gluten in those who are sensitive to it. For many people it will take an elimination diet and food diary to find out all of their issues, but bear in mind that everyone's issues will be different, and not everyone will end up recovering using the diet that works for you.

[knitty kitty]

On 12/12/2019 at 9:49 PM, Bshake said:

Thank all of you for your reply’s ..I forgot to mention we did cut out dairy as she found that was giving her problems . We will look at info both you gave and continue to do what we can to get her feeling better...thanks y’all very much for the suggestions and advice but if anyone else has anything please reply ...thanks again

Hello again.  I forgot to mention Small Intestinal Bacterial Overgrowth (SIBO), which can also cause abdominal pain and B12 deficiency which is "hidden".  

https://health.usnews.com/health-news/blogs/eat-run/articles/2018-05-21/4-overlooked-causes-of-vitamin-b12-deficiency

And...

https://www.ncbi.nlm.nih.gov/pubmed/3942698

And the best article on SIBO with a section about Celiac Disease....

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3099351/

And the best way I found to deal with SIBO is the Autoimmune Paleo Protocol diet....

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5647120/

Hope this helps!