Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Genetic Testing


nothungry

Recommended Posts

nothungry Contributor

I want to have my children genetically tested for celiac disease. I don't really know the first thing about it and I would appreciate any information anybody has to offer me...Is this done in a doctor's office, a laboratory or with a home kit? How do I go about finding out of my insurance company will pay for it? Has anybody else had their insurance company cover the costs?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator
I want to have my children genetically tested for celiac disease. I don't really know the first thing about it and I would appreciate any information anybody has to offer me...Is this done in a doctor's office, a laboratory or with a home kit? How do I go about finding out of my insurance company will pay for it? Has anybody else had their insurance company cover the costs?

Use Prometheus Labs on the west coast or Enterolab on the east coast. I used Prometheus Labs. My insurance covered most of it. It was $300 per test. I got the test kit, took it to my dr who drew the blood and the kit is picked up by Prometheus labs for the running of the test.

nothungry Contributor

Do I mail order these test kits?

Jnkmnky Collaborator
Do I mail order these test kits?

I picked ours up at the R.O.C.K. walk last May. I think you can order them from the labs. Google their names and you'll get a link to them. They give out the kits for free as far as I know... it's the testing that they charge for! :)

nothungry Contributor

Thanks for the information. I tried to call my insurance company. They said that my doctor has to call their resource coordination department and convince them that my kids are at high risk, then they will consider paying for it. How did your insurance company handle it?

Jnkmnky Collaborator
Thanks for the information. I tried to call my insurance company. They said that my doctor has to call their resource coordination department and convince them that my kids are at high risk, then they will consider paying for it. How did your insurance company handle it?

Well, we're military. It's different for us. I picked up the kits, took them to our PCP *civilian, not military* and said I want the tests done. She did them, sent them off and I waited to see if they'd get paid for. I got a small bill later. I generally do whatever I want medically and they always cover it. I'm forunate that way. I realize it's difficult for those not in the military. Good luck.

I want add that it hasn't always been so easy medically speaking, in the military. Only in the last 4 years has it gotten to the point where they're more agreeable. Frankly, military medicine was, imo, dangerous prior to that. We had the WORST care. With the wars and the farming out of medical care, we're getting so much better care. I and my kids see civilian doctors and I can't tell you how great that is in just words. Did anyone see that 20/20 show a few years back where the head of the Army's OBGYN got out of the army and was delivering pizza for a living??? I had "drs" who couldn't get a job delivering pizza after they got out. <_<

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      28

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      28

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - Kathleen Mostek replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      28

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      dairy? gluten in chocolates?? calcium?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      dairy? gluten in chocolates?? calcium?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,488
    • Most Online (within 30 mins)
      7,748

    vicwit1
    Newest Member
    vicwit1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      It needs to be said that 50k IU daily is certainly safe for correcting vitamin D deficiency when used for a limited amount of time, for a few months maybe, as was the case in the two studies linked by knitty kitty. But it would not likely be a safe dosage when used for an indefinite period of time.
    • knitty kitty
      It's much easier to correct low Vitamin D if you take high doses.  It's safe and health improvement is much faster.  This is how I corrected my severely low Vitamin D level.  I had no ill effects correcting my deficiency this way. High-Dose Vitamin D Supplementation Can Correct Hypovitaminosis D Prior to Total Knee Arthroplasty https://pubmed.ncbi.nlm.nih.gov/34737019/ Therapeutic high-dose vitamin D for vitamin D-deficient severe COVID-19 disease: randomized, double-blind, placebo-controlled study (SHADE-S) https://pubmed.ncbi.nlm.nih.gov/38291897/
    • Kathleen Mostek
      I have had low Vit D for years before my Celiac diagnosis. I recommend Nature Made, it’s everywhere. GET THE TABLET, not the oil based capsule. The soy oil in the capsules give me diarrhea!
    • catnapt
      ack!! seriously???  just googled all the different things I ate Milky Way: Contains barley malt and is not gluten-free. Krackel: Contains barley malt.   good grief 
    • catnapt
      oh I forgot I also had some Doritos (those are corn chips aren't they?)
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.