Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Genetic Testing


nothungry

Recommended Posts

nothungry Contributor

I want to have my children genetically tested for celiac disease. I don't really know the first thing about it and I would appreciate any information anybody has to offer me...Is this done in a doctor's office, a laboratory or with a home kit? How do I go about finding out of my insurance company will pay for it? Has anybody else had their insurance company cover the costs?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator
I want to have my children genetically tested for celiac disease. I don't really know the first thing about it and I would appreciate any information anybody has to offer me...Is this done in a doctor's office, a laboratory or with a home kit? How do I go about finding out of my insurance company will pay for it? Has anybody else had their insurance company cover the costs?

Use Prometheus Labs on the west coast or Enterolab on the east coast. I used Prometheus Labs. My insurance covered most of it. It was $300 per test. I got the test kit, took it to my dr who drew the blood and the kit is picked up by Prometheus labs for the running of the test.

nothungry Contributor

Do I mail order these test kits?

Jnkmnky Collaborator
Do I mail order these test kits?

I picked ours up at the R.O.C.K. walk last May. I think you can order them from the labs. Google their names and you'll get a link to them. They give out the kits for free as far as I know... it's the testing that they charge for! :)

nothungry Contributor

Thanks for the information. I tried to call my insurance company. They said that my doctor has to call their resource coordination department and convince them that my kids are at high risk, then they will consider paying for it. How did your insurance company handle it?

Jnkmnky Collaborator
Thanks for the information. I tried to call my insurance company. They said that my doctor has to call their resource coordination department and convince them that my kids are at high risk, then they will consider paying for it. How did your insurance company handle it?

Well, we're military. It's different for us. I picked up the kits, took them to our PCP *civilian, not military* and said I want the tests done. She did them, sent them off and I waited to see if they'd get paid for. I got a small bill later. I generally do whatever I want medically and they always cover it. I'm forunate that way. I realize it's difficult for those not in the military. Good luck.

I want add that it hasn't always been so easy medically speaking, in the military. Only in the last 4 years has it gotten to the point where they're more agreeable. Frankly, military medicine was, imo, dangerous prior to that. We had the WORST care. With the wars and the farming out of medical care, we're getting so much better care. I and my kids see civilian doctors and I can't tell you how great that is in just words. Did anyone see that 20/20 show a few years back where the head of the Army's OBGYN got out of the army and was delivering pizza for a living??? I had "drs" who couldn't get a job delivering pizza after they got out. <_<

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Borky's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Gluten food test strips

    2. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Going for upper endoscopy today

    3. - elisejunker44 commented on Scott Adams's article in Latest Research
      1

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Borky posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Gluten food test strips


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,269
    • Most Online (within 30 mins)
      7,748

    powergs03
    Newest Member
    powergs03
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Welcome to the forum! Do you mean this article, and if so, I don't think these are available yet.  
    • Scott Adams
      First of all, I want to wish you the very best of luck with your procedure today. It's completely understandable to feel a mix of apprehension and hope. Your proactiveness in researching and advocating for that endoscopy was incredibly smart; securing that formal diagnosis is crucial for both insurance and long-term health management. While it's natural to worry that those five gluten-free days could affect the results, your logic is spot-on—it's highly unlikely your intestines healed completely in that short time, and the fact that your joint pain and stomach issues have flared back up aggressively after reintroducing gluten is a very strong, and unfortunate, sign that the inflammation is indeed present and active. It's also very common for people to look back and connect dots, like your lifelong migraines, once a potential celiac diagnosis is on the table, as it's a systemic condition with many non-gastrointestinal symptoms. I truly hope this scope provides the clear answers you need to finally start on the right path to managing your health and finding lasting relief from the fatigue and pain. Safe travels for your drive, and here's hoping for a definitive answer and a brighter, healthier chapter ahead.
    • Scott Adams
    • Borky
      I just recently saw something on this.  Has anyone tried test strips?  Which brand is better?  Not sure how they really work and if they really do work.  Thank you, Nancy (aka Borky)
    • Wheatwacked
      Surge of information on benefits of vitamin D McCarthy has been employing these methods since February 2007, and patient acceptance has been high. He said he checks each patient’s 25(OH)D level and supplements to reach a target of 80 ng/mL in adults and children. Of the first 1,500 patients McCarthy tested, 40% began with vitamin D levels less than 20 ng/mL and 70% less than 35 ng/mL. Only 1% initially had values within his target range. According to McCarthy, his target range is based upon several factors: A lifeguard study that found vitamin D levels in the 70 ng/mL range up to 100 ng/mL (nature’s level) were associated with no adverse effects; Data in patients with breast cancer showing a reduction in the incidence of new cancer with postulated 0 point at 80 ng/mL; Colon cancer data showing a reduction in the incidence of new cancer (linear) with postulated 0 point at 75 ng/mL; More than 200 polymorphisms of the vitamin D receptor requiring higher D levels to attain same desired outcomes;
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.