Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Grrr! Having To Eliminate More Foods.... Venting!


em2005

Recommended Posts

em2005 Rookie

Hello...

Haven't been on here in awhile!

I am venting!

Having visited a naturopath over the past couple of months, I have had gone on an elimination diet. Before going to the naturopath, I had maintained a strict, gluten-free diet for years! However, over the past year or two i've had a lot of trouble w/ stomach upset, despite my gluten-free diet, along with weird rashes appearing all over my body. I went to my regular doc. about it, a dermatologist, an allergist, and another allergy specialist.......and they could find nothing! So, I went to see a naturopath with the hopes that something could be done.

Well, having been on the elimination diet for a few weeks, now and have reintroduced corn, dairy and soy into my diet. I did the corn for three days, and on the third day had really bad tummy troubles (you understand!). I waited a couple of days of eating my rice and veggies/fruit to detox my body again, and then did dairy for three days. Woah! Dairy broke me out in a massive, all-over body rash!! So, i detoxed with the rice/veggies again for a few days, and then reintroduced soy. Today is day two on soy and my tummy is horrible. I keep running to the bathroom!

This is awful! Not only can I not eat gluten, but now it seems that I am intolerant to corn, dairy and soy so far. Don't get me wrong, I am glad I am figuring out what is wrong, but still...it sucks! I still have to reintroduce meat, nuts/seeds, and beans/legumes to see how I will react to those, but hopefully nothing else will cause a reaction.

Anyway, just wanted to vent!! I'm so frustrated!!

Emma


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancym Enthusiast

Yeah, I know, I know. I've been on the SCD diet for a short while. It doesn't include any grains, any dairy (except yogurt and I omit that because it makes my innards unhappy).

Anyway, I'm on the diet to see if it helps my intestines and joint aches (what I suspect might be an autoimmune issue). The good part about it is there are a LOT of people following this diet and a lot of recipes and things out there. The bad part is you have to cook for yourself a lot. Fortunately I love cooking! I go wild on the weekend and cook a lot and freeze for meals later. I've made SO many dietary changes in the last 3 years I now look on it as just another challenge. Every time I come up with foods I love to eat and end up pretty happy. I need to thank Mom for teaching me how to cook and giving me the confidence to experiment in the kitchen.

Lets just hope you're ok with eggs! Man, if I end up intolerant to eggs I'm going to be missing the 2nd to last staple in my diet (last staple being meat).

One thing I'm wondering about all these food intolerances is, if we're not fully healed up from gluten damage maybe it makes us more susceptible to other intolerances? So perhaps once I've followed SCD for 6 months to a year, I'll be ready to slowly try to add the things I believe my body was rejecting before. Maybe that is just wishful thinking. Gosh, I miss cheese. :(

Nantzie Collaborator

Have you and your naturopath explored the possibility of candida overgrowth? The first naturopath I ever went to never mentioned a thing about it and he wasn't able to help with any of my tummy problems in the three months I went to him. He was trying, it just wasn't helping. Then I went to another naturopath who told me that he thought I had candida the very first time I saw him. Less than a week later, I was 100% better. I know that when I'm having a problem with candida, I have tons of problems with food. I just ordered some Threelac to get my candida under control. Should be getting it today, I hope. I've used it with great results many times in the past, but not since learning about my gluten intolerance. I'm hoping it will help with my intolerances to soy, vinegar and dairy so I'll only have to worry about the gluten. So much gluten-free stuff has soy that if it only helps with that, it will make my life so much easier.

Hope you start feeling better soon.

Nancy

jenvan Collaborator

It can be hard when you have to keep pulling things out of your diet. My tests revealed I am intolerant of just about everything. I haven't cut out everything on the list...but I do have gluten, soy, dairy, caffeine, chocolate, turkey, corn (only a little bit on occasion). It takes discipline...and another suggestion is to take the focus off the food--the ol' "eat to live not live to eat" approach. Changing ones attitude takes discipline, but like I said, it has helped me tremendously. Also, search out some good products that are free or your food culprits and enjoy them--like enjoylife products (no dairy, gluten, soy, corn, nuts etc.) Open Original Shared Link or Namaste, great baking mixes.

Celiac is linked to a leaky gut which does increase food intolerances--as a 'leaky gut' allows food proteins to enter the blood stream where they aren't supposed to be, thereby kicking your body's immune response into gear. The best strategy for food intolerances is to stay on your gluten-free diet, which will promote healing, elminate food intolerances (or the worst ones) and eat a variety of foods--don't eat the same food each day. That encourages new food intolerances to develop.

I can get you more info on all this if you want, but there's the nutshell :)

Nantzie Collaborator

I've heard of leaky gut, but haven't looked into it yet. Is it something an M.D. would know about, or is it more a naturopath type of issue?

jenvan Collaborator

That's a good question ! I guess I'd say it depends on the doc. You could try your conventional doc, but you may need to try more a holistic one. It's hard to say. You can investigate these types of things w/o a typical doctor's help though, so that's good. My last GI was familiar with it, but didn't really treat it as valid. Not that he disagreed...but more just didn't know what to do with it. I think many docs just know about/deal with the typical IgE allergies vs. intolerances and Leaky Gut. There are some great articles online that you can learn more from. Do a search and ck it out: Open Original Shared Link These types of things can't easily be diagnosed, its sometimes a matter of 'detective work.' I need to bust out at the moment, but can write more later......

kabowman Explorer

I know what you mean - at first it can be so upsetting but after a while, you do adjust. After the first few attempts with beans, I gave up trying any others. I won't even add any to chili for the rest of the household because I don't want to take that chance - all the ones I have tried so far bother me so I gave up on the rest. I can eat hazlenuts which are nice every now and then.

Just this week, I gave up what little sugar I was eating due to energy swings that would actually knock me out like yeast does. After drinking homemade lemonade made with mostly splenda but with a little bit of sugar, I would be out for about 15-30 minutes (I have pre-diabetes). So, I took the sugar out and am doing much better. I will only use small amounts for my homemade BBQ sauce (nothing comercial because of the vingar).

Meat and veggies with potatoes and rice...in lots of different combinations.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
One thing I'm wondering about all these food intolerances is, if we're not fully healed up from gluten damage maybe it makes us more susceptible to other intolerances?

Nancy,

What my doc says, and I dont know if its true, is that once we go gluten-free we feel much better (obvious huge load lifted off the immune sysyem)....but....after that initial feeling of well-being other problems kick in. He says the vast majority of gluten intolerant people end up with intestinal infections from bacteria overgrowth or parasites. It is these lingering problems that keep the gut "leaky" and cause new food intolerances or other allergy symptoms. Waiting to see if I get better before I start suggesting people get tested for this stuff.

tarnalberry Community Regular

and be aware of checking for specific forms of food - which may just be a red herring in the food intolerance hunt. what I mean is the following: some corn chips (plain tortilla chips, no flavors) give me some annoying symptoms (not gluten-like) and I don't seem to digest whole corn kernels much at all, but corn in a plain tortilla (just corn flour and water) isn't a problem.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      1

      Second chance

    3. - cristiana replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,564
    • Most Online (within 30 mins)
      7,748

    Greg C
    Newest Member
    Greg C
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      I found some articles that illustrate the immune reaction to casein and gluten. Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/   Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and Casomorphin and Their Biological Consequences https://www.researchgate.net/publication/397908713_Gliadin_and_Casein_Metabolism_Synthesis_of_Gliadomorphin_and_Casomorphin_and_Their_Biological_Consequences   Effects of milk containing only A2 beta casein versus milk containing both A1 and A2 beta casein proteins on gastrointestinal physiology, symptoms of discomfort, and cognitive behavior of people with self-reported intolerance to traditional cows’ milk https://pmc.ncbi.nlm.nih.gov/articles/PMC4818854/#:~:text=Results,lactose tolerant and intolerant subjects.   Casomorphins and Gliadorphins Have Diverse Systemic Effects Spanning Gut, Brain and Internal Organs https://pmc.ncbi.nlm.nih.gov/articles/PMC8345738/   Brain Opioid Activity and Oxidative Injury: Different Molecular Scenarios Connecting Celiac Disease and Autistic Spectrum Disorder https://pmc.ncbi.nlm.nih.gov/articles/PMC7407635/  
    • Mari
      Ijmartes71 I  son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog  , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties abd think more clearly. .Stop taking your herbs for at least one week because some of them will have side ellectsif you take them too long. You can add them back if you don't notice any good changes. Be more careful about being strictly gluten free.  
    • cristiana
      Just to say that I too was hesitant to come off dairy products completely @dsfraley.  Milk, yoghurt and soft cheeses definitely caused bloating.  This bloating gave me rib and pelvic pain, and I remember  the pain was so horrible at times it was almost a sick feeling., kind of like the sort of aches you get with flu.   Milk, yoghurt and soft cheeses also gave me diarrhea, but I noted I could still eat small amounts of hard cheese like cheddar without any issues. Re: milk, my gastroenterologist told me at that time that I could just by lactofree products, and should be fine, but when my gut was still very damaged they went right through me regardless. Thankfully I am able to tolerate milk very well again, although I have noted that too much of it can have a slightly laxative effect. The other thing that made me feel off were heavy iron supplements, which contributed to bloating and diarrhea.  In the end a GP told me to take ferrous gluconate, which is a much gentler supplement, with water an hour before breakfast in the morning.  That was helpful.  If your son is supplementing  (which needs to be under medical supervision as too much iron can cause issues) Floravital fruit syrup is another alternative, but make sure you don't buy Floradix as it contains gluten. Lastly, all oats, soya products and certain pulses also made my stomach sore.  Apart from the oats (which need to be certified 'pure' aka gluten free ones) I was able to eat these things again some months after adopting a gluten-free diet. I would say keeping a food diary might be worth a try, noting any negative symptoms following eating.  Patterns start to emerge which might otherwise be difficult to identify.
    • trents
    • Wheatwacked
      Anyway, I have no problem with grass fed milk other than the price.  Maybe I should move to Ireland or New Zealand.  They're the only countries that don't feed grains to their cows to increase milkfat and milk volume. A side note: I just came back trom the vascular surgeon about the scan of my carotid arteries done last week.  A year ago I had over 90% stenosis in the right artery and 80% in the left.  Tcar procedure done in the right with a stent.  The results today were right side downgraded to Moderate stenosis and the surgeon did not expect to see as much improvement on the left. (untouched). I must be doing something right.  Recheck in six months.   Mucosal reactivity to cow's milk protein in coeliac disease This paper proves that cassein is the protein in cow's milk is the trigger but the study did not differentiate as grass fed milk.  I haven't found any studies specific to grassmilk. The study does not differentiate alpha or beta cassein.  Google says: some clinicians speculate that grain-based proteins could potentially pass into the milk, though scientific studies typically find no detectable gluten or gliadin fragments in bovine milk regardless of the cow's diet. So given alpha cassein as the trigger, grass fed A2 cassein; thought to be easier to digest and less likely to trigger the specific inflammatory pathways associated with standard commercial dairy; plus the omega 6:3 ratio of grain fed milk is 5.8:1 vs grass fed ratio of 1:1, grass fed milk is less inflammatory.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.