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Change of career post diagnosis?


Keight

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Keight Enthusiast

I am finding, as I get to reset my body and start to know a gluten-free version of me, that my job is a place of stress and angst. I do not want this sort of life any more. I need a job and work environment more in tune with who I am becoming. 

Have any of you found the same happening to you, post diagnosis? How did you handle it? What changes did you make to suit the healthier you?


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Ennis-TX Grand Master

>.< Well since cooking all my own food and trying to recreate things from my past in a safe version became a passion I was good at I started selling gluten free baked goods at farmers markets to help pay for my new diet. Sorta evolved over the years to paleo and keto, and I make baked goods, almond butters, and during the market I now set up a tent and cook and serve meals and get chef jobs.

Oddly I also used to work at a Automotive Machine Shop....I ended up with another worker finding my diet and new found corn and diary allergies funny, sorta made a habit of exposing me for a while. I stopped working full time there, but I now bring food over and serve lunch there since it is next door...oddly I pay most my rent this way and still go over there for some odd jobs no one else can do (No one else there knows how to run the boring machine to bore blocks or hone them)

BTW as you heal you will have more energy and be able to do more. I will admit I have issues with HITT  and running/jumping makes me sick. But I go about 10miles a day between the stationary bike, elliptical, and walking, and do resistance and weight training daily.

Unglutenedlife Newbie
(edited)

I love hearing stories how diagnoses led to life-changing career shifts. It ia the small business that really understand the celiac disease community needs. 

It has been around eight years since my  official diagnosis and before that it was over a decade of figuring out why I was sick. My wellness has always been time consuming and something I thought about making a career change for. Yoga instructor and health coach are two of the career changes that are on the back of my mind.  Recently I decided to test the waters and start writing about what I learned to share with the celiac disease community. Such a supportive community with so many resources and such a need for many more. 

Edited by Unglutenedlife
Removed personal link.
  • 3 weeks later...
BuddhaBar Collaborator

Didn't make a career change because there are a lot of benefits working in the health care system in Norway if you have a chronic disease. I get 24 days of fully paid sick leave each year and because I have a documented chronic disease my employee doesn't have to pay anything when I get sick. The welfare administration pay. There aren't a better place to work as a celiac.
However I changed other things. Like my style of clothes. And I generally stopped caring about what other people think of me. When I got diagnosed I think I realized for real that I can actually get diseases and that I'm mortal. 

Keight Enthusiast

Yes, BuddhaBar, I can relate! I thought I was bullet proof til mid 2019. Was a rude shock to discover my frailty. 

  • 5 months later...
DJFL77I Experienced
On 1/19/2020 at 1:59 PM, BuddhaBar said:

Didn't make a career change because there are a lot of benefits working in the health care system in Norway if you have a chronic disease.

i think i read norway has the highest % of celiac

  • 2 years later...
Kyndryl Rookie

I got diagnosed 8 years ago with celiac disease and now recently with colitis and gall bladder sludge. Have been in the hospital 4 times this year. Point is I wish I had walked away from my retail management job when I first got diagnosed to properly heal and figure out this autoimmune disease. I didn't really understand it. I just pushed forward with constant pain in the mornings and just got used to being in pain. 

Now I have enrolled in college and finishing up my bachelors degree in my 30's and so proud of myself for doing a career pivot. Focusing on my bloodwork and health and weight. It's been great to be at a place where I can control the food I cook everyday and I walk 2 miles each morning. Before my schedule was like 11 hours of my day at work or commuting to work and I wasn't putting my health first and was too tired to cook. I wish I knew now what I didnt know back then. I struggled with fatigue for such a long time and it took something dramatic like a juice cleanse for 2 weeks to get my body sorted out and kick my cravings to the curb and stop my reliance on coffee. 

Now I want to help people. But I want to have the freedom to have a flexible schedule and always put my health first.


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    • Jason Hi
      "Commit in a serious way to the gluten-free diet"....I've been Gluten-free since 2008. That's why I was so sick and had to take nausea and bloating medications during the gluten challenge week prior to the upper gastrointestinal endoscopy performed by the gastroenterologist. The "younger" doctor (the internal medicine who did the blood test), said the antibodies should remain in your system and you don't have to eat gluten (i.e., blood test last year). Hence my posting on finding a good doctor.
    • trents
      Well, the next step would logically be to commit in a serious way to the gluten-free diet and see if you have significant improvement in your symptoms. You should see improvement very soon with regard to GI issues and within weeks if there are other symptoms if gluten is indeed the issue. If there is significant improvement after going gluten free, that would tell you that you must avoid gluten and given the test results you already have, the logical conclusion is NCGS. As I said, an NCGS diagnosis is arrived at by first ruling out celiac disease, which seems to have been done. Then you could go back to that doctor with the other evidence component (improvement of symptoms with gluten-free eating) and ask if he/she would now be willing to declare an official dx of NCGS and give you a note. Or, you could book an appointment with another doctor who could look at your test results online, together with symptom improvement after going gluten-free, who might be more cooperative. I would seek out a younger practitioner as they are more likely to not be operating on outdated info about gluten disorders. By the way, NCGS is about 10x more common than celiac disease. 
    • Jason Hi
      Thank you for clarifying the terminology. Based on what my doctor told me, I understand that I do not have celiac disease, but that I’m “likely gluten sensitive.” From what I’ve researched, that places me in the category of Non-Celiac Gluten Sensitivity (NCGS)—as you mentioned, the key difference is that with NCGS there are no damaged villi and no positive celiac-specific antibodies. Either way, my treatment is the same: follow a gluten-free diet to avoid feeling sick. My understanding is that there are three main issues related to gluten: 1. Celiac Disease (produces specific antibodies and damages the small bowel) 2. Wheat Allergy (an immune response to wheat proteins) 3. Non-Celiac Gluten Sensitivity (negative celiac tests but still symptomatic from gluten) Regarding tax breaks or workplace accommodations, I came across a statement from celiac.org (https://celiac.org/gluten-free-living/federal-benefits/tax-deductions/) indicating that having any formal diagnosis—celiac disease or non-celiac gluten sensitivity—plus a prescription from a physician is typically required to qualify. In my case, my goal is to avoid feeling sick and secure documentation for both work and potential tax benefits. If I do pursue further tests or get more detailed lab results, I’ll share those here to confirm whether the doctor is suggesting celiac disease or truly NCGS. But as of now, the doctor’s comments lead me to believe I fall under NCGS.
    • trents
      Welcome to the forum, @Jason Hi! First, we need to deal with some squishy terminology. There are two terms which are, unfortunately, used interchangeably and indiscriminately to refer to two different gluten-related disorders. The two terms are "gluten sensitive" and "gluten intolerant". Because these terms are used carelessly we are not certain what you mean when you say your doctor told you that your are likely "gluten sensitive". The actual medical terms for these two gluten disorders are: "celiac disease" and "Non Celiac Gluten Sensitivity" or NCGS for short. The test you had run by the GI doc are intended to check for celiac disease. There is no test for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out.  Because these terms are used by many people interchangeably I'm not sure that your doctor, after running the tests, was intending for you to understand that he believes you have celiac disease or NCGS. So, to clear up the confusion, can you post the results of your blood test, not just the test scores but the reference ranges used by the lab analyzing the blood sample to determine negative/positive or normal/high? The difference between celiac disease and NCGS is that celiac disease damages the lining of the small bowel over time whereas NCGS does not. However, they may share many of the same gastro intestinal symptoms. Both need to be addressed with a gluten free diet but the tax breaks and work place accommodations you speak of would likely only accrue from an official celiac disease diagnosis. So, can you post the blood test results along with the reference ranges and also the endoscopy report. We can help you decipher whether or not the doc was suggesting you may have celiac disease or NCGS if you will do that.
    • Jason Hi
      I recently had an upper gastrointestinal endoscopy and blood tests, and my gastroenterologist concluded that I’m “likely gluten sensitive.” However, they wouldn’t provide a prescription or a formal doctor’s note—just a test result saying I’m likely gluten sensitive, along with the advice to avoid gluten. I’m frustrated because I know that proper documentation could help with tax breaks for gluten-free foods and even workplace accommodations. I’m also not willing to go through another gluten challenge—it was rough! Does anyone have recommendations for a doctor (U.S. based preferably Texas) who is more understanding and willing to provide the necessary documentation for gluten sensitivity? I’d really appreciate any suggestions!
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