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Uveitis


Frances of Alaska

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Frances of Alaska Newbie

Has anyone else experienced uveitis as a result of celiac? 


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knitty kitty Grand Master

Welcome, Francis! 

Yes, I've experienced uveitis.  Horrible experience.  My heart goes out to you.   Turned out my Vitamin D level was very severely low.  Your eyes need vitamin D and Vitamin A to keep the eyes lubricated.  Celiacs have trouble absorbing enough of the fat soluble vitamins, Vitamins A, D, E, and K.  Your eyes also need these water soluble vitamins: B Complex vitamins, riboflavin and thiamine, and Vitamin C.  You may want to have your doctor check for vitamin and mineral deficiencies that commonly occur with Celiac Disease.  Sometimes supplementation for a little while is beneficial.

Hope this helps!

Knitty Kitty

cyclinglady Grand Master

I second that your doctor should screen you for vitamin and mineral deficiencies as recommended by all leading celiac disease research centers.  Annual follow up testing should occur.  

https://celiac.org/about-celiac-disease/treatment-and-follow-up/

If your uveitis is related to celiac disease, your goal should be to put celiac disease into remission by strictly adhering to a gluten free diet.  Consider the Autoimmune Paleo diet (which is also gluten free), if you have other concurrent autoimmune issues like rheumatoid arthritis or Crohn’s.  A gluten free diet might not be enough.  

How long have you been gluten free?  

Here is one old post about this topic: 

Welcome to the forum!  

NNowak Collaborator

Oh my!!  I’ve had sclerosis for 13 years. Thought it was leftover from my HELLP syndrome after my last pregnancy. I’ve been taking diuretics to keep that and other edema under control.  Vitamin deficiencies make sense as I’m low I’m several already. Super. 

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    • trents
      @llisa, back then when you tried magnesium and it upset your tummy, I'm guessing you were using the most common form of magnesium found on store shelves, namely, magnesium oxide. It has a reputation for having a laxative effect. It is not very well absorbed and so draws a lot of water into the colon, just like the laxative known as milk of magnesia. I'm guessing if you would switch to the "glycinate" form of magnesium you would not have this problem. Magnesium glycinate is absorbed much better. If you can't find magnesium glycinate at your local stores, you can order gluten free brands of it off of Amazon.
    • llisa
      I've tried magnesium before. Twice in 2 years. It really upset my stomach. And that was before this celiac disease diagnosis. (Finally, after 2 years of trying to find out what was wrong with me.) I have no idea how sensitive I am. When my stomach was upset, I'd go to my comfort foods: cream of wheat, cheese and crackers, scrambled eggs and toast...so, making myself worse by trying to feel better.  Just got results of biopsy yesterday, so today is first day of trying no gluten and reading that it can be hiding in vitamins and meds. So, I welcome ALL advice and personal experiences. No advice is too basic. I know nothing. Thank you!
    • trents
      Have you considered also supplementing with magnesium and zinc? We usually recommend these two as well. D3, Calcium and Magnesium all important for bone and nerve health.
    • trents
      Not sure if it's the same formulation as what they sell to Costco. Look for "Gluten Free" on the packaging. And realize that "Gluten Free" does not mean "no gluten". It simply means not more than 20 ppm of gluten. That's fine for most celiacs but if you are of the super sensitive subset it may not be.
    • llisa
      Trents: I read the label and it does say gluten-free. I have used these before, so will be getting some from our local Jewel. Bonus: they are Buy One Get One right now! Thanks.
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