Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Everyone Have Setbacks In The Beginning?


Guest cassidy

Recommended Posts

ebrbetty Rising Star

thanks to all who shared their experiences with the healing process. I wonder what we would all do if not for boards like this to share information, console each other etc.. jeeze, I wouldn't even know what to eat.

karen, those severe pains are/were the worst :o I'm still new to this and everytime I eat I'm just waiting for it to get that bad, so far it hasen't been that bad,at least I can deal with it, its a start

Hugs, Betty


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor

Why don't you return the Amy's dinners? Then you won't have to feel guilty about wasting money. When I first went gluten-free, I was returning several things a week after getting them home and realizing they contained gluten.

nathela Rookie
Why don't you return the Amy's dinners? Then you won't have to feel guilty about wasting money. When I first went gluten-free, I was returning several things a week after getting them home and realizing they contained gluten.

Hi everybody!

I would like to add a thought, here. Let's not forget that the cause is gluten. But, after years of damage, our intestines are like overworked. Soy, caseine, milk, egg and complex food like potatoes, rice... refined sugar are difficult to digest. Also, keeping a food journal is the only way to understand the missing parts of our solution.

Please, have a look at these three books:

( once again they changed my understanding of the problem/solution)

-The new Eating rigth for a bad gut by James Scala.

-Breaking the vicious cycle by Elaine Gottschall

-Dangerous grains by James Braly.

I wish to all of us to start a spiritual and physical healing. Thank you so much for your support, Nathela. ;)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,524
    • Most Online (within 30 mins)
      7,748

    Rob71
    Newest Member
    Rob71
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Lynnard
      Thank you! Eating out/take out has been half of my meals for a while so you are correct that this will be my biggest challenge. This has been a journey and I appreciate your help!
    • trents
      "Bonus points". I like that analogy!  At this point, the following article might be helpful: Eating out will be the biggest challenge and will present the most threat to avoiding gluten since you don't have control over how food is prepared and handled back in the restaurant kitchen. Become comfortable with asking questions of restaurant staff and requesting that your food be cooked in clean pots/pans/surfaces that haven't been used for gluten containing foods since last washed. In time, you will become more comfortable with taking control in these situations and learn to be appropriately assertive. One thing that will take time for you to get a handle on is how sensitive you are to minor amounts of gluten such as you might get in cross contamination scenarios. Each of us is different in that sense and there is no substitute for personal experience. When in doubt, however, avoid foods that you feel may be significantly cross contaminated. Better safe than sorry. In time, you will develop a sixth sense about these things.
    • Lynnard
      Thank you!  Yes - labs are above but Deamidated Gliadin was super high, tTG was a weak positive and Immunoglobulin A was way below normal which gives "bonus points" to the positive tests because it can also cause false negative results.  This information confirms my thinking and I really appreciate your feedback!!!  
    • trents
      By far, the most likely cause of villous atrophy in the Marsh 3 range is celiac disease but there are other possible causes. Did you also have positive antibody tests? My guess is that when you see your physician he/she will declare you to have celiac disease. Of course, the ultimate proof of the pudding will be if you experience definite improvement in symptoms after going gluten free which, since you have now completed testing, you should begin to do.  
    • Lynnard
      Hi again - I received the biopsy results but haven't had follow up appointment with Dr. yet.  Wondering if you could comment on this: "Duodenum, random, Biopsy (Cold Forceps): MILD VILLOUS BLUNTING WITH PROMINENT INTRAEPITHELIAL LYMPHOCYTES, CONSISTENT WITH SPRUE (MARSH TYPE 3A). See Comment. Negative for Infectious Organisms, Dysplasia or Malignancy. COMMENT: While characteristic, the histologic findings are not diagnostic for gluten-sensitive enteropathy / celiac disease. A number of additional entities can enter into the differential diagnosis of celiac disease based on the histologic features, including tropical sprue, bacterial overgrowth / stasis, unclassified sprue, specific food allergies, many drugs including NSAIDs, olmesartan and immune checkpoint inhibitors, and a wide range of autoimmune diseases including adult-onset autoimmune enteropathy, diabetes, thyroiditis, lupus and multiple sclerosis and occasionally common variable immune deficiency. History of drug take, celiac serologies, HLA-DQ status and response to a gluten-free diet might be a key for a definitive diagnosis" They say "consistent with Sprue (Marsh Type 3A)" and then comment that the findings are not diagnostic for celiac disease.  I thought Marsh type 3 was conclusive (and I know that 3A is the best outcome as it relates to intestinal damage). Is this just normal caveat language or am I missing something?  I had appt scheduled for tomorrow but Dr. is sick and now rescheduled to over a week from now.  Appreciate any insight you can offer in the mean time.  Thanks!!
×
×
  • Create New...