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Celiacs Who Dont Recover On Gluten Free Diet

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minigimp Newbie
minigimp
Posted

I dont know if this type of intolerance can be labled coeliacs (even though it can lead to enteropathy and dammage to organs), but it is the type in part responsible for a large array of autoimmune diseases which can remit on a gluten and casein free diet and the elimination of certain infections containing offensive proteins. Milk proteins are the difference here. I believe that pancreatitis was the result of gluten intolerance because the pain, vomiting and diahrreah stopped when I cut it out completely. Tiny amounts of gluten can bring on pain and vomiting (a delayed reaction of 4-8 hours varying). I now have severe enzyme deficiency as a result of the damage. This alone would cause protein intolerance. I also had systemic lichen sclerosis which went into remmision after eliminating casein. The dammage to organs has lead to low globulin which only enhances the intolerances. I have a clever doctor who is figuring things out. I suspect gluten does similar types of systemic damage in people with this gene type and possibly others. It can't be ruled out until proven otherwise. I haven't had the biopsy for coeliacs. I went through the elimination process with a dietician. My reactions became so extreme on reintroduction that it was too risky to go through the biopsy process. A gene test is probably the first thing to do as far as diagnosis is concerned. Dq7 is the gene for MS, sjogrens, systemic sclerosis, lupus etc. The tissue trauma of a biopsy can trigger another autoimmune disease. This happened to me although I believe I got an infection as the result of a biopsy for IBD. Really they should have gone the other route, then I'd know if there were villi. I'll know when the tests are more sophisticated.

The term gluten sensitive diminishes the long term damage gliadins can cause in a subset of people with gluten and other intolerances. According recent research which can be found on the web, the gliadin peptide and others trigger autoantibodies to extracellular matrix 1, the process responsible for tissue damage in many with the common dq7 mutation.

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ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

Non-responsive Celiac Disease

I really think this is what I have. I have been gluten dairy free for 5-years. I'm not getting better.

GOOGLE THE WORDS "Non-responsive Celiac Disease"

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https://www.celiac.com/st_prod.html?p_prodi...-07104375103.9d

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