Why Are You Looking For Doctors?

[jerseyangel]

I definately agree about the nurses, etc.--And I think they say "it's rare" sometimes when either they aren't familiar with it or have never heard of it!

[key]

Berneses,

Same thing would have happened to me if I had had the biopsy. My GI doctor said to eat wheat for one week. I had been off of it for six weeks. I knew it wouldn't tell me anything. I knew when I ate wheat I felt sick. I wasn't going to have a biopsy, that he even said may come back negative and probably would come back negative. He even said it. I know if I had, he would have said the same thing yours said, that it was all in my head!

That was VERY rude what he did to you. WHy do any of them care how we choose to eat. That is what gets me.

My blood tests were borderline even after not eating wheat for two months before the blood work. THat is good enough for me.

Yeah, I am a nurse and I don't know everything, but my physician husband jokes that I should have been a doctor, because I have diagnosed everyone in my family, properly, I might add. Maybe it is that I paid attention in school! HA! I think it is my instinct. The other day he was having this problem and I diagnosed him with it. He was cracking up laughing. He would have just ignored even trying to figure it out, but he laughed when he found out there was a name for it. Our whole family is like a medical textbook!!! I have learned more from having three kids and I know I know more about the stuff they have then my pediatrician. He just looks at me now when I talk about stuff.

Monica

[floridanative]

On my previous rant I forgot to mention something ridiculous my GI said when he called with my results. After reading my biopsy test results over the phone to me stating my case is classic Celiac Sprue, he said the following: The question now is should we treat you with the gluten free diet, even though you are not presenting with the gastro symptoms. What - did he really just say that? I remained calm and asked if I continued to eat normally (knowing of course my gluten free life just began) wouldn't I eventually get the gastro symptoms and he said 'probably'. Okay then thanks doc I guess I'll go on the diet to which he responded 'yes that's probably a good idea. DUHHHHHH!!!!!!

[jerseyangel]

I would have asked him how my intestine is supposed to heal if I stay on a normal diet. Not to mention all of the other diseases I'd be at higher risk for. Jeesh! That ranks right up there with the most ridiculous things I've ever heard a doctor say

[floridanative]

I know!!! I'm glad I'm not just being overly critical of him. I'm not even mad at him at this point since this new lifestyle takes up so much of my energy right now. But just think of someone like my mom for instance being told this. She would have had two platefuls of pasta for dinner that night!

[Rachel--24]

He asked her if she has diarhea and she says, "no" and he says, well it isn't celiac then!! I was ticked. I told her he doesn't have a clue, so go to a new doctor.

Thats exactly what my doctor told me. When I found out about Celiac and went in to tell my doc to test me...he said "Yeah...I was gonna say you might have Celiac...but you dont have diarreah so you cant have it.". Nevermind that I had lost 25 lbs., had a bloated belly and pretty much every other symptom. Also, he was NEVER gonna say Celiac because he had never thought about it and had NEVER in his career ordered the tests for it. He didnt even know HOW to order the tests.

It said that, on the average, a physician listens to a patient for seven seconds before interrupting them. SEVEN SECONDS!

Its so true! Well...maybe mine gave me 10 seconds.

BTW: I read the whole thread!

Good cuz there's gonna be a quiz later!

[Lollie]

I'm totally new here, but I must say it sure feels good to know that I'm not crazy. I have had serious GI problems for 10 years. I went to my regular physician who prescribed the regular acid reducers. I didn't get better so he had me go to the specialist. Who did an upper endoscope found I had lesions in my esophagus' ulcers, and gastritus. He did biopsys, found no cancer. Told me that I didn't deal well with stress and told me I have bad genes. Keep taking the meds. Five years later, still sick and now anarexic (due to the pain), I see another specialist and another round of invasive testing, again bad genes-and maybe a physcologist could help me feel better about eating. Now five years later, my wonderful husband sees an article about celiac, he thinks that I sound just like whats he's researched. I am doubtful, due to years of increasing pain and thinking I'm constantly crazy, but I go see my doc. She refers me to another specialist. This time he says he will definitively find out what is wrong with me. I under go colonoscopy, yet another upper endoscope, and a ton of blood tests. He recently sent me a letter telling me that nothing is wrong with me....but keep taking the meds anyway. I have requested the test results to see exactly what he tested for, but as of yet I still haven't recieved them. I decided to try the no gluten diet, just to see. My goodness, it's like night and day. I couldn't sleep laying down for 10 years, now I can. I actually have some energy. I'm not in constant pain. I actually go to the bathroom like what I presume "normal" people do. I can actually eat and enjoy it instead of being afraid of the pain it will produce. I've decided that I will not go to anymore docs for this, I will not under go more invasive testing, and I will not allow anyone to treat me like I'm crazy anymore.

Thank God for this site. It helps so much to know I'm not alone. But I am sorry that so many have had the same horrible experiences at the hands of "specialists". What I can't belive is that we pay them for this treatment? How is that fair?

Lollie

[Guest BERNESES]

What I can't belive is that we pay them for this treatment? How is that fair?

Lollie

Maybe the next time we get bills we could return them with a note that says, "i don't owe you money. It's all in your head!"

[jerseyangel]

Maybe the next time we get bills we could return them with a note that says, "i don't owe you money. It's all in your head!"

B--Thats beautiful!

[Guest nini]

Maybe the next time we get bills we could return them with a note that says, "i don't owe you money. It's all in your head!"

LOVE IT!!!!!

[Guest BERNESES]

Tee hee! It would be REALLY fun to do!

[Lollie]

I wish that the doctors could experience, just for a day or two, the pain and that feeling of craziness-then maybe they would be a little more human in the way they treat people!

Has anyone seen a movie called The Doctor? It's about a surgeon who gets cancer, he is really flippant about people and what they are going through, but afterwards he veiws everyone differently and has more compassion. Wouldn't it be nice if they would just act like they cared?

-Lollie

[Rachel--24]

Maybe the next time we get bills we could return them with a note that says, "i don't owe you money. It's all in your head!"

LMAO!!

I would soooo LOVE to do that!!

I'm expecting a $900 bill any day now from my HMO that I dont belong to anymore. Since they wasted so much time telling me to see a shrink my benefits ran out due to being off work for 2 years. Now I have to pay for the last 3 months I was still in the HMO and had no coverage. Its gonna be REAL hard for me to write that check out to a place that did nothing but make me sicker. I think that is why I'm soooo angry right now. I still have to PAY them for treating me like dirt.

[Guest mvaught]

I have very little faith in doctors as well. Let's see - I have endometriosis which was in my head for well, 6 years until they found it in my belly. then the kicker is that after being diagnosed with endo, all of my other problems have been blamed on that! bladder problems - no of course not, it is the endo (actually i finally did find doctor to diagnose me with interstitial cystitis - luckily it was like his pet hobby and an even greater hobby of his was to insert electrical implants - luckily for me it helped) stomach problems - no, of course not, it is the endo. hey, if i get a nosebleed will that be the endo too?

and while we are on this topic - who hates insurance companies? i do - i have endless problems with paper pushing and being given the run around. those people are actually evil in my opinion.

i hate my ex too, but that is for a different website - lol.

[Rachel--24]

i hate my ex too, but that is for a different website - lol.

[tiredofdoctors]

Hey, me, too -- maybe we should start a new thread!

[debmidge]

Bernses: Love the idea for the bills!

To all who seem to think that we are ranting and raving, and weeping and gnashing teeth for nothing and being unfair to doctors, I only have this comment: DON'T SPIT IN THE WIND!! You are going to live a lot longer and may have the same experience we've had and someday be chomping mad. Let's hope whereever you post your disappointment that those people on that "support" board don't chastise you for having negative feelings about doctors.

Doctors that I respect: my GP now, my ob/gyn & my chiropractor, my husband's podiatrist, my husband's gastro who correctly diagnosed his celiac in 2003. These are the doctors we will stay with. So it isn't true to say that we who criticize doctors don't like ANY of our doctors or hate all doctors (CeliacMe is just using that term to describe this thread for dramatic effect and few figured that out).

P.S. I hate my brother's EX, does that count?

[Guest nini]

I have to add, I work for a Chiropractor and sometimes in meetings we get to bashing the medical community! It's quite funny actually! We are forced to deal with medical Dr.s for referrals and such (we refer patients to medical Dr.s when their case warrants it) and we have yet to have found a medical Dr. that has not pissed of one of our patients in one way or another!

I did really like my last GP... and his Physician's Assistant... but he moved away and is no longer at the clinic... I've stayed at the clinic because all the staff is still the same (except the PA left too after being offered a substantially larger paycheck somewhere else-actually working for one of the Dr.s that I HATE ) and I do love all the nurses and front office staff there. So far the new lady Dr. that is there seems to be good... I'm giving her a chance... I'm not writing off all Dr.s, just the ones that pissed me off and insulted me and humiliated me and completely disregarded my feelings...

[key]

I really like the part about not paying them. Maybe we shouldn't have to pay when they don't give us any help. That would be great. I hate insurance companies too! You pay them and they do everything possible to not cover you! Sorry you have to pay bills still. We do too for my son's surgeries that weren't covered, because we went out of network. Luckily there is no interest on medical bills and you can pay $10.00 a month if want. Or you could get it over with I suppose, but that is what we had to do for awhile, we were just too poor.

Have a good day.

Monica

[Susan123]

I think you have it wrong.

Without a *drug* to precribe the disease goes unnoticed and no money is put into research. My doctor told me himself that Celiac is on their top 10 list of misdiagnosed diseases. Well...thats not surprising since he nor any of the other doctors never even MENTIONED celiac in the 3 years I was sick. My own GI told me that the doctors who *are* looking for Celiac and diagnosing it are doing so because they are more *familiar* with it. Meaning that they have a family member with Celiac or know someone who has the Disease. Great...next time I get Celiac I'll remember to see one of *those* doctors.

I had lost 25 lbs. and was constantly complaining about bread and other foods making me sicker and causing me to lose more weight. All they could do for me was suggest I see a shrink and tell me to eat more of the foods that were making me sick. I went to an Infectious Disease specialist and I explained to him that I was feeling much better and most of my symptoms improved after changing my diet to meat and vegetables. He laughed at me and told me that it meant nothing....it was just a placebo effect and all of my symptoms are in my head. No diet will help....just go see a shrink.

The doctors are not only incompetent but they are RUDE and DISRESPECTFUL to their patients. I would never fault a doctor who gave his all and truelly cared but was unable to come up with a diagnosis. In my situation the doctors WERE my worst enemy because they were doing everything they could do to NOT help me.

I am sorry you had such a bad time with doctors but to put them all in one boat is just horrible. Everybody person is an individual just like every doctor is an individual and should not be categorize as one entity. I know several good doctors who caught celiac right away in myself as well as other non-family members. Did they have family members with the disease? No they didn't they were familar with the disease because patients trusted them with their care and the ability to see it through until a diagnosis was made. We can't fault a doctor for not knowing about a disease if we aren't willing to trust them enough to go see them about our problems. That only makes the problem bigger.

[CeliacMe]

I loved your POST!! the #3 is the fiduciary duty that professionals (doctors, lawyers, accountants and pharmacists) owe to their clients (or patients).

The problem with the way that we, "hypochondriac" or "poor doer", people are treated by the medical community is that - it is hard to prove that we sustained damages that directly resulted from this. In most cases of people like us trying to sue, it gets thrown out because we have the burden of proof.

What happened to your dad is terrible and awful. Even things that cannot be fixed by modern medicine, can certainly be made better or worse by compassion on the doctor's part.

The reason in us hating the physicians is that other professionals that have this same duty, the fiduciary duty, are more careful than doctors. Other professionals (except for pharmacists) are usually not dealing with life or death matters.

Furthermore, having worked in pharmacies, I know that it is the policy of most pharmicists to admit that they messed up, apologize and try to make it right. They will call doctors to tell them the mistake so that the doctor can correct the reaction and document it in the patient's chart. Many pharmacists conduct themselves in this manner even though it directly opens them up for liability, because it is the RIGHT thing to do.

Doctors do not engage in this practice and it is acceptable because "they could have gotten sued". Pharmacists can get sued too, so can lawyers, and accountants. How come they don't conduct their business in as negligantly as the modern american physician does?

Furthermore, if a doctor admitted that they ran all of the standard tests and have tried their hardest to find an answer and followed up in an appropriate manner, they can not be sued for it. In fact, there is actually a term for this it's called "idiosyncratic" diagnosis or reaction. Yet, very few of us who should have been hearing this and should know what it is because of our situations, have not. THIS IS THE PROBLEM WITH DOCTORS.

Are they too good to engage in proper continuing education? Do they already know everything? Are they too good to actually listen to their patients for more than 7 seconds? Are they GOD?

Everytime we have a gripe with something medical, whether it be doctors, insurances, drug companies or the medical system in general, everyone says "well that's how they make money, they book you every 15 minutes" or "that's how they make money, by selling drugs, we're not worth investing in research'. That's the BIGGEST CROCK OF BULL that those answers are acceptable.

Secondly, drug companies could make a TON of money with Celiac research if only they had the brains to invest in manufacturing gluten free foods. HAVE YOU SEEN THE PRICES OF OUR FOOD? If there isn't a huge premium that comes with that "gluten free" (or any other special) label, than my business school owes me back my tuition money.

I know this sounds a little conspiracy theory, but I'm gonna say it anyway. Maybe nobody really wants to 'fix" the problems with modern gluten toxin infested America. We're the fattest country in the world, we are probably the most unhealthy. Allergies are on the rise. Autoimmune illness is on the rise. Wouldn't it be reasonable and logical to think that there's something wrong with our diet? (Let's see we have lowered immunity and obesity. What do the two have in common? Poor diet? Toxins?) Maybe we're eating a POOR DIET THAT CONSISTS OF TOXINS!

Yet very little money has been invested in doing this type of research. Instead we are reseraching things like old men's flacid penises, baldness and many, or many other drugs that act as "band aids" to the American (and world) health crisis at large. Not that being bald or having a flacid penis is fun, but I'd prefer it to having debilitating diarrhea, malnutrition, vomiting and all of the other fun that comes along with Celiac and other autoimmune illness. I believe that they have no genuine concern for "curing" all or most of our problems, but rather for selling more pills.

General Warning Content of this Post Could be Offensive to those who think that this board is a support group for doctors:

#1, if you are going to participate, you must read the final pages of the posts. In order to speak with some credibility, you should read the entire thing; you might give a "pass" to doctors who don't know everything, but I don't give "passes" to those who skip a section of data just to be able to post a comment that may not have to be posted if the person read the entire section.....

Why are you still insisting on beating up on victims?

Unless you're not done picking an argument?

You deliberately came back and read the first pages and instead of just putting it to rest you continued with the inflamatory rhetoric.

Who is worse, the people who justifably dislike their doctors or the people who dislike the people who justifably dislike their doctors?

If you had read all those posts and you still don't understand the patient's side of it nor have compassion for them --that is very telling about you.

So I can only assume that your purpose here is to make us feel worse?

You point out the obvious, that there's a lot to know in life about anything. Sorry, but it's a weak argument when you compare modern medicine to the making and selling of doors. But an argument it is and that's your only purpose on this thread. Doctors are continuously going for continuing education and they do have medical software and resources to check into when they are stumped. With all due respect, your argument is too simplified.

You've been blessed that you've only had one doctor that was bad in your whole short years of living.

And your other experiences with them were successful as well. You have no right to further beat up people who haven't been so blessed.

You talk about your mom having a sucessful result of breast cancer and you're thankful. Well my father had pancreatic cancer and wasn't so blessed. He passed away at age 55. His doctor jerked around with him for almost a year before he decided that he had cancer. Even Sloan Kettering (where he finally ended up too late) said that if my father was diagnosed sooner he would have had a better chance of 5 year survival. And this first doctor wasn't just out of medical school - he had been in practice for over 30 years and never once ran a sonogram or liver scan, which he should know about. I urge everyone to look up the word "negligence"* and apply it to these medical situations.

Do you feel it is reasonable to expect to be diagnosed at 26 years of agony (my husband's celiac) or is that too immediate for you to expect a diagnosis? Or perhaps I should have just shut my mouth during the 1994 specialists visit where I pretty much told the specialist what to look for, and same specialist did not order endoscopy nor colonoscopy, which would be considered standard level of care at that time?

For those who want to maintain this feeble argument here's the definition:* 1) the quality or condition of being negligent a) habitual failure to do the required thing carelessness in manner or appearance; indifference 2. an instance of such failure, carelessness or indifference 3. Law: to use a reasonable amount of care when such failure results in injury or damage to another.

Definition #3 is what is used in malpractice cases. It's the law that says the doctors have a duty to provide reasonable performance in their duties, not the people who dislike or mistrust doctors.

Hugs to all!

Have a Wonderful Day!

[Rachel--24]

I know several good doctors who caught celiac right away in myself as well as other non-family members.

Ok....let me ask you this. Did you have "typical" symptoms of Celiac and were your tests positive for it right from the get go?

This isnt the case for everyone. I heard about Celiac on my own and started the diet then asked my doctor to test me. He didnt order the full panel *and* he told me not eating gluten wouldn't affect the test results (2 mistakes right there).My results were negative. It would be great if every person with Celiac or gluten intolerance came back positive on the tests but if you've read the posts on this board you'll find that MANY have negative test results but recover from the diet. Those who had it easy by getting positive results from testing never *had* to become their own doctor or be told it was all in their head. Afterall, Doctors will only believe a patient if the tests *show* something wrong. If the tests don't spell it out for them you get the "all in your head" diagnosis. To this day I dont know if I'm IgA deficient because they never ran the full panel.

All that aside I don't hate ALL doctors. I'm seeing a very knowledgeable doctor right now. He's not in an HMO and he's not mainstream. Its a huge difference all the way around. A difference in how I'm treated and a difference in the care I'm receiving. If you had read my earlier posts you would realize that I dont care that they messed up and failed to diagnose me.....I am angry at the way I was treated. Plain and simple. Just hope that in your lifetime the day never comes that the doctors run some tests on you and dont find an answer to your problems right away. Believe me, you'll see things from a different perspective when they start calling you a a hypocondriach because THEY cant find out whats wrong with you. Doctors ARE arrogant in that way. They'd rather insult you than to think for one second that they are failing at their job. My Endocrinologist (who was good in his field) told me while this was all going on, that whatever is wrong no doctor has been smart enough to figure it out yet. It was not for him to figure out since it was out of his field of course. Anyways when I repeated what he said to my regular doc...he was steamed....to say the least. They do NOT wanna be told that they cant figure something out....after all they're doctors and they know it all!

[CeliacMe]

We are not faulting doctors for not knowing or not diagnosing a disease. We are faulting them for not listening or being compassionate toward their patients. To say that all or most doctors are compassionate or at minimum fulfill their LEGAL FIDUCIARY DUTY to their patients, is hard thing for many of us and in most cases NOT THE TRUTH. There have been studies to prove this, on top of our own personal, real experiences.

The people who are posting that they "hate doctors", including myself, have been through this terrible process of being shuffled around by doctors. This status of being shuffled around, often to psychiatrists or psycologists, is because the doctors essentally do not believe us and classify us as being a hypochondriac. This "shuffling' process is the result of them not wanting to see us at all, let alone make an incorrect diagnosis.

Even if the doctors cannot diagnose us, we expect them to listen to us explain symptoms before deciding which tests to run, rather than trying to diagnose us after 7 seconds to just get us out.

In all of these posts we are not complaining that they didn't diagnose immediately or didn't know about Celiac, we are complaining because in many of our cases we were told that it was "all in our heads', "you are fine" and "nothing is wrong with you". This fact is the direct cause as to why our diagnosises took so very long (an average of 11 years).

How can a doctor diagnose a patient if they refuse to believe that their syptoms are real?

1 in 10 emergency room cases are discharged as being undiagnosed, thus their diagnosis is just a description of their symptoms. To the medical field, rather than saying 'what is wrong with these people that we can't find anything wrong with them?" or trying to differentiate a variable for which are sick and which aren't, they automatically classify us as hypochondriacs because nothing is wrong because they couldn't find it.

Every single emergency visit that I have had, approx 5 in the last 10 years, I have been that 1 in 10. Rather that try to track these people and make sense of this problem, it is easier for them to just classify us as hypochonriac and "nothing wrong".

To generalize undiagnosed people is what is WRONG, to generalize us as hypochondriacs is WRONG and a DIRECT VIOLTION OF THE PHYSICIAN'S FIDUCIARY DUTY TO THEIR PATIENTS. I'm sure the doctor and their staff in their office have had a good laugh or two over our hypochondria. (which happens and is not only unprofessional, but a direct violation of the HIPAA law).

Furthermore, in order to fulfill their DUTY doctors should first believe us, research the matter, then run appropriate tests, and if they can't find it they should give is an "idiosyncratic" diagnosis and refer us to someone else, like a specialist, that might be able to handle our case better and find a diagnosis.

No matter how many people come here to tell us it is wrong, your efforts are futile. There is nothing that anyone can say that will change our opinion and belief that all doctors, in general, are scum- their mistakes, greediness and refusal to treat us confirm that belief to no end.

I am sorry you had such a bad time with doctors but to put them all in one boat is just horrible. Everybody person is an individual just like every doctor is an individual and should not be categorize as one entity. I know several good doctors who caught celiac right away in myself as well as other non-family members. Did they have family members with the disease? No they didn't they were familar with the disease because patients trusted them with their care and the ability to see it through until a diagnosis was made. We can't fault a doctor for not knowing about a disease if we aren't willing to trust them enough to go see them about our problems. That only makes the problem bigger.

[CeliacMe]

Loving it! You defintely beat me out. I was lucky, I was all glutened out when I took my blood test. My antigliadins were a 20, that's high right? If not it should be cause I felt really sick when I took the test!

They did test me for diabetes, pregnancy, anurizms, coltitis and a few others that came up negative.

Your doctor (endo) must have been good if he was willing to admit to that (the doctor isn't smart enough to figure it out). I've heard of one doctor like that (see story below) and been to one other. So, so far there's like 3 halfway decent doctors.

Funny story (my cousin told me this yesterday):

sad, but true

My cousin is a director of a large labratory and her boss is a doctor. He used to work in a hospital before working at the lab. He had Celiac and went through the same hooplah we did. The a-hole, dummy doctors treated him like a hypochondriac, AS A PHYSICAIN! In fact, one accused him of trying to "get drugs" by "repeatedly visiting". I am sure that he also looked(FYI no pharmacist in his right mind will fill an RX written by a doctor to himself and sometimes to his own pet if a vetrinarian). As a result he no longer works in patient care because he can't stand doctors!

SO the moral of the story , for those of you who can't figure it out, is that unless you've been through it, you can't understand it and are not in a position to criticize it!

Ok....let me ask you this. Did you have "typical" symptoms of Celiac and were your tests positive for it right from the get go?

This isnt the case for everyone. I heard about Celiac on my own and started the diet then asked my doctor to test me. He didnt order the full panel *and* he told me not eating gluten wouldn't affect the test results (2 mistakes right there).My results were negative. It would be great if every person with Celiac or gluten intolerance came back positive on the tests but if you've read the posts on this board you'll find that MANY have negative test results but recover from the diet. Those who had it easy by getting positive results from testing never *had* to become their own doctor or be told it was all in their head. Afterall, Doctors will only believe a patient if the tests *show* something wrong. If the tests don't spell it out for them you get the "all in your head" diagnosis. To this day I dont know if I'm IgA deficient because they never ran the full panel.

All that aside I don't hate ALL doctors. I'm seeing a very knowledgeable doctor right now. He's not in an HMO and he's not mainstream. Its a huge difference all the way around. A difference in how I'm treated and a difference in the care I'm receiving. If you had read my earlier posts you would realize that I dont care that they messed up and failed to diagnose me.....I am angry at the way I was treated. Plain and simple. Just hope that in your lifetime the day never comes that the doctors run some tests on you and dont find an answer to your problems right away. Believe me, you'll see things from a different perspective when they start calling you a a hypocondriach because THEY cant find out whats wrong with you. Doctors ARE arrogant in that way. They'd rather insult you than to think for one second that they are failing at their job. My Endocrinologist (who was good in his field) told me while this was all going on, that whatever is wrong no doctor has been smart enough to figure it out yet. It was not for him to figure out since it was out of his field of course. Anyways when I repeated what he said to my regular doc...he was steamed....to say the least. They do NOT wanna be told that they cant figure something out....after all they're doctors and they know it all!

[Jnkmnky]

The only problem with this debate/argument (as I see it) is this.

You're being very passionate, well-spoken, supporting your comments, and even have necessary proof of your claims. But all of that is locked up on an internet chat board. Who in the world, who needs to see this, is reading? How will you affect change by being so eloquent on a chat room board on the internet? The internet is really a vast universe where the best ideas have a tendency to get lost. You really need to stop spending your best energies here, and take your discussion to the broader media where you can promote real change. Sure, you can do some things through the net, but you've got to take it to the real world, give your wrongs a voice and face and make the bigger population hear your issue. I've had problems with drs too. But I'm not as passionate and capable of affecting change because my focus is on other issues... like getting gluten-free foods into more stores.... which I've been so successful with this year that it gives me a reason to smile... But I didn't accomplish that by use of an internet chat room. I hoofed it into stores, I spoke to managers/owners/other parents who went and made requests too... phone calls, emails, included...

I would like to hear what you propose to do to change the status quo. Not being a bully here... just trying to encourage you to take your passion outside of an enclosed chat room. I think you could do a lot of good with your enthusiasm for the subject!

This is an edit for clarity..... The word "you" refers to all who hate the drs and want change. *(I want change too, but as I said, I'm more passionate about a different issue facing celiacs)