Headaches with confusion

[Jennzo]

Hi there, I am seeking your wisdom please with regards to headaches I’ve been getting for the last few years. They start with a visual migraine sometimes/sometimes not and are often followed by confusion I don’t know who I am or where I am and - very frightening, my neck looks and sometimes my vision is slightly affected too. My thoughts are so dark throughout the headache and my husband says I am white as a sheet and seem very disorientated. I can then be in bed for the next few days sometimes throwing up, sometimes not. My digestion is not painful (it was in past) just weird And definitely connected in some way. Looking back I really think they have started after I’ve eaten wheat and sometimes sugar too. I have suffered all my life with headaches but these are slightly different. The doctor says many people with migraines get the same symptoms and not to worry.  I wondered if anybody else had experienced confusion or neck problems or anything similar to these? Thank you

[cyclinglady]

Welcome!

There are over 200 symptoms attributed to celiac disease. Migraines are one of them as celiac disease is systemic (not just gut issues).  

The only way to find out is to get tested.  Ask your PCP for a simple blood test:

https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

[Jennzo]

18 minutes ago, cyclinglady said:

Welcome!

There are over 200 symptoms attributed to celiac disease. Migraines are one of them as celiac disease is systemic (not just gut issues).  

The only way to find out is to get tested.  Ask your PCP for a simple blood test:

https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

Thank you very much for that info, yes I am awaiting a test but was just looking for some reassurance in the meantime really and to you know if anybody else has similar symptoms. Thank you x

[cyclinglady]

See the little search box with the magnifying glass?  Just query “migraines” and you will find lots of members with comparable migraine symptoms.  ?

[Jennzo]

Thank you ❤️

[NNowak]

Migraines are definitely associated with celiac. Many many factors contribute to migraines, which also occur with a celiac. Definitely seek help as your migraines diminish the quality of life. “Don’t worry,” is not an acceptable plan of care. Vitamin deficiencies with celiac can cause or contribute to migraines. Dairy sensitivity can contribute to migraines. Sleep disturbances can contribute. The stress of healing can tax the body and contribute. You need a doctor that partners with you in your care so you can get some relief and function. 
 

Good luck. 

[Jennzo]

10 hours ago, NNowak said:

Migraines are definitely associated with celiac. Many many factors contribute to migraines, which also occur with a celiac. Definitely seek help as your migraines diminish the quality of life. “Don’t worry,” is not an acceptable plan of care. Vitamin deficiencies with celiac can cause or contribute to migraines. Dairy sensitivity can contribute to migraines. Sleep disturbances can contribute. The stress of healing can tax the body and contribute. You need a doctor that partners with you in your care so you can get some relief and function. 
 

Good luck. 

Thank you very much. I will be getting the help from a natural doctor as I’m in the UK and Don’t find mainstream medicine very clued up about this kind of thing here. Thank you for your help XX

[Fenrir]

I had horrible migraines when before I was diagnosed. It was so bad it would make me really confused, nauseous, and basically out of it. 

Not saying you have celiac disease but what you describe is pretty common for in untreated celiacs. 

[Jennzo]

20 minutes ago, Fenrir said:

I had horrible migraines when before I was diagnosed. It was so bad it would make me really confused, nauseous, and basically out of it. 

Not saying you have celiac disease but what you describe is pretty common for in treated celiacs. 

 

 

That's  really helpful thank  you. I'm going to do do a home test kit shortly as I don't want to go through the biopsy test they do here, so will know soon. Thank you

 

On 1/19/2020 at 3:21 AM, NNowak said:

 

Thank you so much for your kindly answer ? I live in the UK and find it very hard getting the help needed here so I tend to use natural medicine for most things.  I will find a naturopath who can help ? thank you so much, take care xxx