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    1. - Rhenriksen replied to Rhenriksen's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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      Just diagnosed with Celiac! Scared and feel alone.

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      Just diagnosed with Celiac! Scared and feel alone.

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      Just diagnosed with Celiac! Scared and feel alone.

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    5. - Katya773 replied to Katya773's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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      Previous Biopsy Results


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    • Rhenriksen
      Thank you Trents! For the most part I have cut out Dairy as I drink Silk almond milk daily as an alternative!  I did have some corn Chex this morning with almond milk as that cereal is supposed to be fortified with vitamins and also gluten free so I hope that's ok! The only dairy I really have is a daily plain Yogurt which is lactose free and I only do that for the natural pre-pro biotics. Tried a slice of gluten free bread this morning......it was so so. I'll probably have another piece after my workout with some egg whites and avocado on top! Boy this stuff is hard, and I really want to try to do everything right because I have a little 2 year old girl to live for!  I also started taking Align Probiotics the day after...
    • trents
      Welcome to the forum, @Rhenriksen! A few thoughts. First, learning to eat truly gluten free is a real learning curve for most people because of all the ways gluten is hidden in the food supply that you would never expect and because of cross contamination. If you are still eating out you are almost guaranteed to be getting glutened through cross contamination. You may order gluten free food items but by the time they grill them and cook them and handle them with the same equipment that was used for wheated foods, they will pickup some gluten. Gluten can also be unexpectedly found in medications and oral hygiene products. Second, most celiacs develop secondary...
    • Rhenriksen
      In 2023 I had a colonoscopy for blood in stool. Turns out that it was internal hemorrhoids but at the same time they found something near the terminal Ileum and took a biopsy of it. Pathology report came back as lymphocytic colitis. I was not having chronic diarrhea or other types of common symptoms so no treatment was necessary. Shortly after I started having excessive gas all the time, and diet didn't change anything, I've had floating stools forever and rarely does a stool sink. My stools alternate from cow patty like to constipation but have been more on the constipation side even though I go every day or 2. Last week I found out that my B12 was at 275 (3 years ago it was at 695). My...
    • fritz2
      I just felt more poorly all of the time.  I did notice that on Sundays when we usually had pancakes for breakfast I felt worse but my mom blamed the eggs and milk so we switched to soy and quit using eggs.  (this was over 60 years ago).  The symptoms changed some, but I still didn't feel very good and the constipation diarrhea cycle didn't change much either.  No doctor ever suggested wheat issues and I had never heard of it.  After the head/neck cancer chemo and radiation 30 years ago, the RA like trouble with painful joints and entire area of my body inflamed to the touch, a doctor decided I had fibromyalgia and prescribed vicodin.  That was the only pain-killer that ever worked and...
    • Katya773
      Hi thank you so much for your input. It’s been very difficult to navigate this whole Celiac thing with everything that’s happened. What you said makes sense. I  have a better understanding of how my doctors NP was able to give me a diagnosis.  Yes I agree that staying gluten-free is best, I’ve been doing some research and it seems like DQ 2.5 homozygous does make folks extra sensitive to gluten even without a celiac diagnosis. My new gastroenterologist put me in touch with a nutritionist but I’ll have to inquire if they specialize in Celiac. Appreciate the advice 🙏🏼 
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