Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused


Warren Hall

Recommended Posts

Warren Hall Newbie
(edited)

I was diagnosed in April 2018 from both a biopsy and blood test that I have celiac's disease.  About 6 months after the diagnosis I had what I thought was gluten free bread and I had a violent reaction maybe 16 hours later.  Since that, I have been pretty religious about what I eat.  I get contaminated every once in a while with a similar reaction.

Which brings me to last night.  I confused the gluten free lasagna with the regular lasagna that my wife had made a couple of days before that was in the fridge.  I ate a huge serving of her non-gluten free lasagna about 18 hrs ago and so far, no reaction.  As soon as my wife told me of my mistake, I took two of those "gluten cutter" pills I keep in my briefcase.   I am surprised and confused.  Does this make sense to anyone?  If yes, what is going on and why?

Edited by Warren Hall

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

You have been gluten free for a while.  Your gut has probably healed and your immune response may be slow to activate.  It can take days to activate.  I do know that celiac disease is like a chameleon and symptoms can change.  

Maybe the gluten cutter supplement helped too.  Did you take them before your stomach emptied?   

Please report back and let us know how you are doing. 

Warren Hall Newbie
10 hours ago, cyclinglady said:

You have been gluten free for a while.  - I still get cross contaminated every once in a while

Your gut has probably healed and your immune response may be slow to activate.  It can take days to activate.  - Usually I react between 12 and 24 hours

Maybe the gluten cutter supplement helped too.  Did you take them before your stomach emptied? - When my wife walked into the kitchen she noticed that I had consumed the "wrong" lasagna.  I looked at the two platters at that time, realized my mistake and went and took the "gluten cutters".  So, less than a 1/2 hour after I had consumed the pasta.   I have always thought those "gluten cutter" pills didn't really do anything but I still keep them around.  Maybe they do something?  

Please report back and let us know how you are doing. - Coming up on 36 hrs and nothing.  

Perhaps barilla lasagna noodles have very little gluten in them?

 

Fenrir Community Regular

I don't think Gluten Cutter did much to save you. None of the ingredients in that product have been proven to do anything. ANP-PEP is the only thing that actually works and right now the only product with that in it that has the correct dose is GliadinX. 

People react differently to exposures, some have severe reaction right away and others don't feel it for several days or may not even notice it at all. Just because you don't feel it doesn't mean you're not reacting though. 

Personally, it takes about 3hrs for me to start having a strong reaction if I get exposed to a large amount of gluten. The other possibility here is perhaps you both confused which lasagna was in the fridge and you in fact ate the gluten-free one. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,064
    • Most Online (within 30 mins)
      7,748

    Zoe Tipper
    Newest Member
    Zoe Tipper
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kwinkle
      Hi Christina, i’m interested in this gaviscon Dimension but when I look it up on Amazon, I don’t see that it says it’s gluten-free?   Thank you Sorry, not dimension - it was supposed to say ‘that you mentioned’. Duh 🙄 
    • Matt13
      Hi Deanne! Thanks for support but mu other EGD show normal VA (but some of the samples were not readable) but overall normal egd so after 1 year there is normal villi. I am glad that You solved our problem. Kind regards, matt
    • Matt13
    • Deanne jones
      Hi Matt, like you I lost almost 3stone over 2yrs, my symptoms were exactly as you describe .    I was eventually referred  to a consultant who has been treating me for reflective coeliac.  I’ve been taking(  Budenofalk 3mg )steroids for the past 9 mths  and the course is coming to an end shortly. I’ve gained 2 stone and feel so much better in myself. Im due an endoscopy at the end of the course of steroids so unable to say if my villi’s have returned or my digestive system has repaired. But like you I was besides myself with worry.  Apparently the condition is quite unknown and the consultant at the hospital I attend has been in contact  with  Sheffield hospital who specialises in this condition. I hope this helps,    Deanne          
    • knitty kitty
      How are you doing, @sadiec123?  Did you get through the holidays alright?    Have you been checked for nutritional deficiencies?  Many newly diagnosed Celiacs  are low in Vitamin D and many of the B vitamins like thiamine.  Thiamin insufficiency can cause weight loss and loss of appetite (anorexia) as well as affect mood.   Benfotiamine has been shown to promote intestinal healing and improve mood.
×
×
  • Create New...