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Twitching.... Keen to hear others experiences

rt-116
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rt-116 Explorer
rt-116
Posted

Hi everyone 

I was diagnosed with coeliac disease 2 weeks ago. I have been eating gluten free and trying my best to avoid cross contamination. 

I would be really grateful to hear from anyone who had any kind of twitches pre and post going gluten free, as mine have still not resolved. I am aware of other scary diseases that can cause twitching but would really like to hear from anyone who' has attributed theirs to coeliac / and  have stopped eventually after going gluten free, however long it took. 

So where abouts and in what way and for how long did anyone have any twitches? My twitches appear to be eyelid and also feet. 

I have been told I am anemic with low ferritin and I wil be getting tested for vitamin D and b12 deficiencies. 

 

Thank you so much to anyone who replies. I am feeling particularly low since being diagnosed and this forum is amazing for advice. 

  • 4 weeks later...
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Om-Zayd-Waleed Newbie
Om-Zayd-Waleed
Posted

I have twitches off and on also. Idk if it has to do with celiac or not. I have been worried sick to death about ALS for almost a year now because of this but twitching alone doesn’t really signify anything. I’ve talked to the doctor several times about this *lol* Celiac can strick in tons of different ways, so I wouldn’t be surprised if it was because of celiac. Good luck!

  • 2 weeks later...
francie Newbie
francie
Posted

I had twitching really bad in legs pre diagnosis which did go away after diagnosis. I believe it is from vitamin deficiencies Related to poor nutrition due to undiagnosed celiac. I still occasionally have eyelid twitching but all docs say nothing to worry re. So it should go away w gluten-free diet but probably won’t hurt to take a gluten-free multivitamin w minerals like Centrum ( beware lots of vitamins have gluten so watch your brands).

MIchael530btr Newbie
MIchael530btr
Posted

Yes I have had tremors in Hands arms and Legs ! Started with cramping I was diagnosed in Aug 2019 with Essential Tremors and Doctor said it has nothing to do with my Celiac Disease. Have not been tested for Parkinson's disease yet.

Follow a strict Gluten Free Diet.  Neurologist has me on Propranolol daily.

 

rt-116 Explorer
rt-116
Posted
  • Author
6 hours ago, francie said:

I had twitching really bad in legs pre diagnosis which did go away after diagnosis. I believe it is from vitamin deficiencies Related to poor nutrition due to undiagnosed celiac. I still occasionally have eyelid twitching but all docs say nothing to worry re. So it should go away w gluten-free diet but probably won’t hurt to take a gluten-free multivitamin w minerals like Centrum ( beware lots of vitamins have gluten so watch your brands).

Thank you so much for sharing! 

  • 2 weeks later...
Palvyre Apprentice
Palvyre
Posted

I have frequent twitches especially when I don't eat enough. I think it's anxiety/stress related.  The scary disease that can cause it, ALS, causes twitching in single areas that progress to muscle weakness. If you are having twitches in random muscle groups all over, that's most likely stress.

knitty kitty Grand Master
knitty kitty
Posted

Celiac Disease causes malabsorption which results in malnutrition.  Malnutrition is vitamin and mineral deficiencies.  Newly diagnosed Celiacs may have nutritional deficiencies.Some can have subclinical deficiencies for years. 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3820055/

 

Thiamine deficiency in ALS

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5337452/

And

https://www.ncbi.nlm.nih.gov/pubmed/21130821

And more thiamine deficiency...

https://academic.oup.com/nutritionreviews/article-abstract/1/8/252/1874700?redirectedFrom=PDF

And thiamine deficiency symptoms....

https://www.healthline.com/nutrition/thiamine-deficiency-symptoms

 

Magnesium deficiency (Thiamine and magnesium work together)...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5786912/

 

Vitamin D deficiency....

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3690793/

 

Hope this helps.  

 

 

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