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Been a&e today, please help me

Claireboo

By Claireboo
in Dermatitis Herpetiformis

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Claireboo Newbie
Claireboo
Posted

Hello, 

this is my first post and to be honest I’m shocked I’m here. 

I have no stomach problems and felt generally healthy up until a few weeks ago. I am now broken. 

Ive had an itchy scalp for ages but recently it got infected. The doc treated the infection but since I have broken out in the most horrendous rash which I think is D.H which just stared on my scalp

It started as small red spots, watery blisters that pop under the lightest touch. Now huge raised crusty lumps. All itching to my bones and sometimes burning. 

I have been docs 5 times in two weeks and today a&e as I feel completely desperate. I’m scared, anxious and a shell of the person I was last month. 

I keep mentioning the gluten rash to people and they’re brushing it off, saying it’s viral, a reaction etc. I feel crazy as I 100% tick every box for this. I’m also light headed and my eyes hurt.

So my question would be,how do I get help. What do I say? 

Ive had a gluten blood test so waiting on the result. I’ve been referred to dermatologist but that could take 12 weeks. This is consuming me and I’m so scared it could take forever to get sorted. 

thanks in advance 

xx

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Scott Adams Grand Master
Scott Adams
Posted

Hopefully you were eating gluten regularly before you got the celiac disease blood test. Wait and see what the results are, and then you can consider your next steps. In the meantime, perhaps you can get on a list for an open appointment should someone cancel, or try to push them to move it up, as 3 months is a long time to suffer if you have DH.

Claireboo Newbie
Claireboo
Posted
  • Author

I definitely was eating gluten so fingers crossed! 

Also thank you so much for your common sense advice. I’ve rung and chased this morning and they’re seeing me as an urgent tomorrow. 

My head is so fried I needed someone to tell me to do that! 

squirmingitch Veteran
squirmingitch
Posted

What country are you in? You need to see a derm NOW & get a biopsy for dermatitis herpetiformis. 60% of us with dh test negative on the celiac blood panel. You MUST keep eating gluten every day until the dh biopsy.

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