Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long After Going On A Gluten-free Diet Do Symptoms Lessen


UzairH

Recommended Posts

UzairH Newbie

Hello all!

I'm from Pakistan, age 24, and suffering from a serious problem which I have all but bashed my head against the wall to solve. That's why I have joined this site, hoping to talk to people who may have similar problems.

In brief, my problem is:

- Always suffered from diarrhea, frequency at least 2 times a week, all my life.

- Never feel hungry, even when fasting. Always feeling of fullness, can't eat too much. Abdomen slightly distended.

- Weak appearance, never able to gain weight even with heavy eating (proteins, carbs) and fanatical bodybuilding.

- History: Diagnosed with Intestinal Tuberculosis at age 1 month, had full treatment for a year with antibiotics.

- Recent Steps: Consulted doctors: first went on lactose-free diet, now 2 weeks on gluten-free diet. TB tests all negative, hence a TB relapse is ruled out.

My doctor has put me on a one month gluten-free diet to test for wheat-intolerence. Two weeks have passed: initially for 2 days I felt a little better and the diarrhea actually transformed into constipation, but for the past week I've had extreme diarrhea, with very, ahem, aqueous stools. I want to ask those of you who may be Celiacs what was the progression of their sypmtoms after going on a gluten-free diet. How long does it normally take for the symptoms to go away?

I hope I find out the nature of my disease sooner rather than later. Thanks for your help!

Uzair


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Skout Organic
Skout Organic



Celiac.com Sponsor (A8-M):
NutHouse! Granola Co.


jerseyangel Proficient

Hi UzairH--Glad you found us! It can take longer than 2 weeks to really see an improvement--especially since you've been sick for so long. Right now, for this gluten-free "trial", I would urdge you to make sure there are no hidden glutens in your food or personal care products. A tiny bit can cause a reaction that will slow any progress you make. If you need any tips for doing that, ask and we can help you out there. I would give it some more time--I went back and forth with the D the first 1-2 months. It wasn't until the 4th. month gluten-free that I really began to feel better. I was sick for 20 years before I knew gluten was my problem, so it took a while for my body to begin to heal. Good luck and I hope you begin to feel better soon :)

UzairH Newbie
Hi UzairH--Glad you found us! It can take longer than 2 weeks to really see an improvement--especially since you've been sick for so long. Right now, for this gluten-free "trial", I would urdge you to make sure there are no hidden glutens in your food or personal care products. A tiny bit can cause a reaction that will slow any progress you make. If you need any tips for doing that, ask and we can help you out there. I would give it some more time--I went back and forth with the D the first 1-2 months. It wasn't until the 4th. month gluten-free that I really began to feel better. I was sick for 20 years before I knew gluten was my problem, so it took a while for my body to begin to heal. Good luck and I hope you begin to feel better soon :)

Thanks Angel of Jersey :) ! If it takes so long to diagnose celiac disease through a trial, then are there pathological tests which can determine that? Also, since I've been Gluten-free for some time, will that affect the outcome of those tests?

Thanks again, appreciate your kind help :P !

jerseyangel Proficient

Yes, there are tests that will diagnose Celiac--a full Celiac blood panel and also a biopsy of the small intestine. If you have been gluten-free for a while, as you have, the tests have a high risk of coming back a false negative. Your doctor, it looks like, is trying a diet challenge to see if you are gluten intolerant. The best thing right now for you would be to be 100% gluten-free and give it some more time. Even if you were diagnosed by a test, the symptoms you are experiencing after going gluten-free would be the same. In other words, the only treatment for Celiac is the gluten-free diet. Try and "hang in there"--feel free to ask any questions you may have about being 100% gluten-free :)

lonewolf Collaborator

Have you tried acipdophilus or another type of pro-biotics? You might also have a problem with the balance of bacteria in your intestinal tract or a yeast overgrowth. It's one of those things that can't possibly hurt to try.

Liz

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Food for Life



  • Member Statistics

    • Total Members
      128,392
    • Most Online (within 30 mins)
      7,748

    laurenM
    Newest Member
    laurenM
    Joined

  • Celiac.com Sponsor (A20):
    Authentic Foods


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    GliadinX



  • Upcoming Events

  • Posts

    • NavyMom
      Hi CathiJean, Wipe those tears my friend.  Finding out that you have celiac just gave you the cheat code on how to start feeling better!  It may feel like a loss right now, but honestly within 6 months you will start feeling better.  Within a year you will look back and wonder how in the world did I survive feeling like that for what feels like a lifetime?  You mentioned 15 years, that's about how long I have been really ill as well.  I had told every doctor I saw that I kept getting sick, infections, hair loss, joint pain, etc. and nobody would listen to me until I turned 45.  I went in for a colonoscopy and the doc says how often do you have bowel movements and I said usually between 10-15 times a day.  Suddenly I had someone actually listen to me and the testing began.  What I can tell you is use this forum, talk to peers, read everything you can about how to gluten-free your kitchen, encourage your family to participate in your journey (trust me they love you enough to make the effort), how to order food in restaurants, and how to avoid cross contamination.  Accept that you will make mistakes and allow yourself grace as you implement your new normal and have a clear understanding that going gluten free will begin healing your body in ways that you will not even begin to understand until you actually do it.  So, have faith that the nutrient deficiencies that you are probably experiencing right now can be corrected and you are on a bright path to feeling SO much better.  Think about how incredible your mom journey is about to become as you begin to feel better!!  Your kids are going to be amazed at your energy levels, ability to play and go do stuff...you are leveling up knowing that you have Celiac.  Knowing gives you power my friend, harness it and have gratitude that it was discovered...even if the docs missed it - you know now and keep moving forward.  You got this!! 
    • trents
      If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
    • englishbunny
      it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free.  I didn't have any clue about the celiac thing then.  Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting my blood test redone right away to see if it has changed so I'm not waiting another month...
    • trents
      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
×
×
  • Create New...