My daughter,17 was getting stomach pains off and on for months. Went to pediatrician, bloodwork came back showing TTG-IGA 5.3 weak positive. Told to follow up with gastroenterology, continue to eat gluten. Can’t get appoint until end of Jan (we are on waitlist also), called back because she was still getting pains and nurse said to let her try to go gluten free for a few weeks and see if she feels better. She does feel better. My question is should I let her stay gluten free until the end of January and see what the Gastro says? I know she will have to be eating gluten before she has any further testing, but that is likely months away at this point.  

Many years ago, there was a doctor who recommended never eating the same food within 5 days. Also recommended greens only 2X per week. Can't remember his name. Dx Celiac at age 87 by self as where I live in the northwest of Idaho, there is no medical insurance which covers Celiac disease or even will pay for tests!

Thank you for your valuable feedback; calling to make an appt. for myself today!

I am so scared of going to my doctor because she didn’t give me any information on my condition just saying remove gluten. I have a number of things that relate to coeliac disease but the doctor never picked up on it years ago when I was questioning my health.

I was diagnosed with coeliac disease about 8 months ago. I have been on a gluten free diet since then but I am still struggling with symptoms.  My bones hurt all over my body, my hips and elbows especially. My arms are tingling a lot and feeling numb.