Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hidden Gluten


Laura P63

Recommended Posts

Laura P63 Rookie

I'm going nuts trying to figure out how I'm getting glutened! Or perhaps my body mistakes something for gluten... Has anyone ever felt glutened by eating certified gluten-free chocolate candy? From sharing a Keurig? Besides flare of severe pain, I'm having a return of hypothyroidism. Thanks for any ideas?!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

If you recently have experienced a gluten exposure, know that this means that your immune system is ramping up and attacking your small intestine.  Anything you consume, gluten free or not, can cause your pain or irritation.  

Coffee might be irritating you now as it is acidic.    Make sure your coffee is gluten free (flavored coffees can be suspect).  Celiacs do develop additional food intolerances.   That chocolate is processed and it might contains soy or milk which you might be reacting to.  Try to stick to a bland non-processed diet until you feel relief which could take a week(s).  

Hang in there!  

Ranchers Wife Apprentice

If you've gone through your food sources very carefully looking for gluten, or cross contamination, and come up with nothing...

Look at environmental exposures. 

Do you have cats or dogs? Wheat or barley are pretty common ingredients in dog and cat food. I use a grain free formula for my dogs, and don't have to obsess about touching the kibble, dog bowls or affectionate doggie licks after they just ate. 

The commercial feeds for rabbits, hamsters, and other little critters usually has wheat as it's first ingredient. I think there was a child cleaning the hamster cage at school, having trouble, possibly from the fine dust remaining from the feed, being cleaned from the cage.

Wheat proteins are easily dispersed in the air when you have flour, or wheat straw. My husband and I have been exposed on the ranch, by putting out wheat straw bedding. You inhale some dust, the cilia in your respiratory tract catches it and sends it down your esophagus.

Chickens? Horses? Also sources of wheat in the feed or bedding that you could inhale.

You can also potentially inhale wheat dust in a pizzeria or bakery that is actively creating wheat dust.

If you live in farm country, wheat harvest could cause a problem for you, or living near a grain elevator that stores and handles gluten grains.

If you can't otherwise find a source of gluten, you could go on the very strict Fasano diet for a few months.

Otherwise, you might have new sensitivity to a particular food item or items. An allergy elimination diet, or a food diary, could help identify that.

You could have a new and different autoimmune condition in addition to Celiac.

Anyway, I hope you get to feeling better, and that you can identify your issue. Sometimes it takes a while, or a different perspective. But if you're persistent, I think you'll eventually figure it out.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,077
    • Most Online (within 30 mins)
      7,748

    bwinpi
    Newest Member
    bwinpi
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Could be the Ozampic is masking your expected symptoms.  Like an analgesic masks pain.  Qzampic slows digestion to lower the rate glucose enters the intestine to slow its effect on glucose level.  It seems it might also slow down the gluten entry into the intestine, reducing its trigger level for the antibodies.  Ultimately the damage from gluten is the same, just not as fast so the pain is less.  Sourdough bread has less gluten.  Ozampic siows its entry.
    • Wheatwacked
      You can sell it better if the whole family does gluten free.  If he does have Celiac Diease, it is genetic so either you, your spouse, or both have a 40% chance of also having Celiac.  There are over 200 non classic symptoms also caused by celiac disease not often considered by doctors. Joint pain, muscle pain, muscle cramps, osteoporosis, and allergies for starters.  
    • Wheatwacked
      Hello @MHavoc, thank you for your question and welcome to the clinic. First, has the contstipation abated with the GFD? If your are pursuing further diagnostics you must continue to eat gluten. Each lab has their own reference range for their test, but they indicate an H for high.  Typically anything above 11 is considered positive. Mild chronic inflammation (gastritis) can interfere with intrinsic factor for B12 leading to low B12 causing low MCHC (anemia). So what is causing your gastritis?  A high tTG IgA level generally indicates potential gastrointestinal problems most commonly associated with celiac disease.  Although the biopsy is the Gold Standard for diagnosis, not finding damage in the biopsy does not rule out Celiac Disease. It means they did not find damage where they looked.  The small intestine is over 20 feet long. Many here have been blood positive and biopsy negative, it just delays the diagnosis until you have enough damage to find and fit their diagnostic profile. The Ttg-iga is not only sensitive (90%) but highly specific (98%) and won’t show positive until the damage is severe.  It is estimated that 40% of first degree relatives of diagnosed Celiacs have undiagnosed Celiac Disease, so your sister is a big risk factor in whether you have it. Are You Confused About Your Celiac Disease Lab Results?  This article explains it better and is quite readable. Celiac Disease can cause deficient vitamin D.  Low vitamin D compromises the immune system.  Any other symptoms? liver enzymes?  Recent cold or flue? Celiac Disease and the malabsorption it causes through vitamin and mineral deficiencies can elicit symptoms not usually associated with Celiac Disease. Case in point maybe your gastritis and anemia.  
    • MHavoc
      As with most of the people that come here, I have questions and need perspective/info from this wonderful community.  Some background, started having severe constipation that would not abate even with softners (not really fun to talk about), so I was able to finally get in to see my primary and she scheduled some blood work.  One of things she wanted to test for is Celiac Disease due to my sister having celiac disease since a young child. Here are my test results: MCHC = 31.4 so considered slightly low TISSUE TRANSGLUTAMINASE AB, IGA = 78.8 H So with that result, I was scheduled for an endoscope for confirmation of celiac disease, but I am very confused with the results: Diagnosis 1. Duodenum, biopsy: -No pathologic alteration. 2. Stomach, biopsy: -Mild chronic inflammation with reactive epithelial change -H. pylori not identified on immunostained section. -No intestinal metaplasia or dysplasia I am now scheduled to meet with a GI Specialist from the Celiac team, but that won't be until after the New Year.  I would appreciate thoughts about the biopsy report to understand whether it confirms the celiac disease as was indicated by the blood test results. I have been gluten free for two weeks and it is a very difficult adjustment for me as an older 50+ person.
    • Vozzyv
      Anyone else have intermittent left ear ringing and outer right ear pain? Both seem to happen in the evenings. 
×
×
  • Create New...