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Mental Fatigue


mandigirl1

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mandigirl1 Enthusiast

hello, just wanted to find out if any one else suffers from mental fatigue, where you just cant think straight? Im a 4th grade teacher and deal with a lot of things. Sometimes, I just feel like I cant concentrate, even when being spoken to. I am also making lots of mistakes that even my students comment. I need them to remind me of everything related to school.

I have also been taking prozac/wellbutrin for over 5 years, and was diagnosed w/celiac 8 years ago.

Can anyone offer some advice?

thank you

e ;)


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ianm Apprentice

Ahh good ol' brain fog. A little bit of gluten and I am totally useless. Can't think my way out of a wet paper bag. I suffered with brain fog for 36 years and it nearly destroyed everything in my life. Are you 100% gluten free? I am very vigilant about the diet and have not had any major brain fog for a good 10 months. sounds to me like your still getting gluten.

jams Explorer

I totally agree about a little bit of gluten causing problems!! We just got back from a cruise where I endulged in some gluten (on accident!!). I can't remember what I walked into the room for half the time!! This morning I opened the cabinet for the coffee and forgot what I was doing. I shut the door and went to look for my cup of coffee that I hadn't yet brewed!!! How does all of that happen?? I almost feel hungover!

Chap Newbie
Ahh good ol' brain fog. A little bit of gluten and I am totally useless. Can't think my way out of a wet paper bag. I suffered with brain fog for 36 years and it nearly destroyed everything in my life. Are you 100% gluten free? I am very vigilant about the diet and have not had any major brain fog for a good 10 months. sounds to me like your still getting gluten.

Ianm;

I was reading your reply (above), and you said that you've had brain fog for 36 years? I would like to know more about your condition, i.e., how long before you got diagnosed, missed-diagnosises, how long did it take for you to notice ANY improvement after diagnosis, etc. My doc suspects that I've had Celiac for about 32 years; I'm 56 and retired now from two jobs. My primary symptom is debilitating fatigue. I find it hard to believe that I've been making myself sick all of those years by eating gluten foods. My health has been a big puzzle to me since I was 24 years old. Somehow, I just can't believe that the doc finally has the answer, and it has to do with food! And, does any of your family members have this disease also? I have a lot of relatives who suffer from low level depression, general anxiety, etc., I know that the stats say that 10 - 20 percent of first degree relatives will have the disease, but in your research, have you found this to be much higher in some families? This would unlock a family health puzzle that's been destroying my family for years and years. It all sounds so impossible. Thanks for any reply.

Chap

DonnaD Apprentice

I also have brain fog. I had to stop working. It started 2 years ago along with the Fibromyalgia, inability to stay asleep at night. Although I have had odd health problems Ibs, chronic pain, since I was a baby.

On the ellimination diet the brain fog dissapeared in about 5 days and I suddenly had LOADS of energy,but came back as I accidentally gluted myself the other day thankfully it is wearing off again now. several members of my family have it too, all the ones with gluten issues! I am also milk intolerant.

It is not impossible at all, there are lots of studies on the toxic effect of gluten in the brain it can even show up on an mri scan of the brain. Others here are more knowledgable than me on the subject and I am sure will post more in depth.

D

Clark Bent as Stupor-Man Contributor

I've had brain fog for at least a couple years now. When the brain fog is at its worst, I'll reread simple sentences 10, 20 times. It takes me a lot longer to process things mentally, and my coordination and ability to formulate my thoughts in conversations is often affected.

I'm still not sure about this whole gluten/food allergy thing and am in my first couple weeks, but I'm becoming more inclined to think it's at least a part of my medical problems because I think my brain fog is lessening, fairly significantly I'd say. It seems like my brain fog is getting better a lot faster than my headaches, which will probably last longer due to chronic back and neck pain/tension. My energy level has also increased, which may be in part due to my current vitamin intake.

It is not impossible at all, there are lots of studies on the toxic effect of gluten in the brain it can even show up on an mri scan of the brain.

I've had 2 MRI's in the past 5 years, and neither indicated anything. I'm curious as to what an MRI could reveal.

DingoGirl Enthusiast

I am new here, new to this whole, surrreal situation......but I can tell you that I think I've had brain fog for most of my life, and I'm 44. Have lost many jobs due to almost complete inability, at times, to process information. I have been clinically depressed and exhausted for over half my life.

I am on my 6th day gluten free, and yesterday, I awoke wtih a clear head. I feel fabulous all of a sudden, so fabulous that it's freaking me out!! Will it last? :o I feel like I've awakened from a bad dream and life can begin....symptoms - both mental and physical - had gotten REALLY severe in the last couple of years and I could hardly figure anything out at all. I quit reading (used to be an avid reader), all of my hobbies, and could hardly clean the house as I used to. But, it makes sense, if you're malnourished and not gaining full nutrients, and in addition, actually poisoning yourself.....it is just unbelievable to me to be this clearheaded and to have ENERGY again! :)


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DonnaD Apprentice

Gluten sensitivity as a neurological illness

'Figure 1 Brain MRI of a patient with gluten ataxia showing rapid onset of cerebellar atrophy over a period of 15 months before the diagnosis of gluten ataxia.'

Open Original Shared Link

and Visual disturbances representing occipital lobe epilepsy in patients with cerebral calcifications and coeliac disease: a case series

Open Original Shared Link

Are a couple of studies I came accros while looking into gluten and neurological symptoms, brain fog and memory problems.

The first one is from M Hadjivassiliou in Sheffield who has quite a few studies on line in this field.

Donna

ianm Apprentice
Ianm;

I was reading your reply (above), and you said that you've had brain fog for 36 years? I would like to know more about your condition, i.e., how long before you got diagnosed, missed-diagnosises, how long did it take for you to notice ANY improvement after diagnosis, etc. My doc suspects that I've had Celiac for about 32 years; I'm 56 and retired now from two jobs. My primary symptom is debilitating fatigue. I find it hard to believe that I've been making myself sick all of those years by eating gluten foods. My health has been a big puzzle to me since I was 24 years old. Somehow, I just can't believe that the doc finally has the answer, and it has to do with food! And, does any of your family members have this disease also? I have a lot of relatives who suffer from low level depression, general anxiety, etc., I know that the stats say that 10 - 20 percent of first degree relatives will have the disease, but in your research, have you found this to be much higher in some families? This would unlock a family health puzzle that's been destroying my family for years and years. It all sounds so impossible. Thanks for any reply.

Chap

Chap,

I found out about celiac when I tried the Atkins diet two years ago. On a low carb diet you don't eat grains. The brain fog cleared within a few days and the fatigue started to lift within a week. It has been two years and I now consider myself healthy. Everyone used to complain that I was a useless space case and that I could never keep up. Now they complain that I run circles around them and they can't keep up with me. Two years ago I almost lost my job and next week I start a new one making over $100,000 a year. Celiac destroyed my marriage but that lead to meeting my girlfriend who is simply amazing. I am convinced that my dad and brother have it because they are overweight and complain of chronic fatigue but don't seem too interested in the gluten-free lifestyle. I was one of the super heavy weight celiacs but not anymore. I am also self diagnosed. I went to dozens of doctors and they were useless. It takes time and discipline but it is so worth it.

Shweta Newbie

I have become quite forgetful in the past year. I thought since I was severely sick 2 years back (before my diagnosis), my brain has lost nutrients to a great deal. Had no idea that gluten may be causing this. Right after diagnosis I ate mostly salads and homemade food. But gradually, after reading labels and asking many questions in retaurants, I started eating other foods as well. It looks like I am getting gluten from somewhere even after being so careful. I used to be a straight As student in school and college. It is sad things are not the same anymore. Hopefully when I eliminate gluten from my diet, I will be back to normal. Thanks everyone for this eye-opener!!

pokerprincess Newbie
Chap,

I found out about celiac when I tried the Atkins diet two years ago. On a low carb diet you don't eat grains. The brain fog cleared within a few days and the fatigue started to lift within a week. It has been two years and I now consider myself healthy. Everyone used to complain that I was a useless space case and that I could sums in my head never keep up. Now they complain that I run circles around them and they can't keep up with me. Two years ago I almost lost my job and next week I start a new one making over $100,000 a year. Celiac destroyed my marriage but that lead to meeting my girlfriend who is simply amazing. I am convinced that my dad and brother have it because they are overweight and complain of chronic fatigue but don't seem too interested in the gluten-free lifestyle. I was one of the super heavy weight celiacs but not anymore. I am also self diagnosed. I went to dozens of doctors and they were useless. It takes time and discipline but it is so worth it.

yea. i am so happy to hear stories like this. i have lost alot,but now that i am back onmy feet, itwould take a 20 story building to knock me down. i used to be lost on math, now i do large sums in my head,i am the director of a high end spa in denver co. andi am fast, making up for lost time. by the way the best iron i have found is carried at the cvs drug stores. it is called vit-ron-c. excellent. good luck everyone. more good stories please.

pokerprincess Newbie
yea. i am so happy to hear stories like this. i have lost alot,but now that i am back onmy feet, itwould take a 20 story building to knock me down. i used to be lost on math, now i do large sums in my head,i am the director of a high end spa in denver co. andi am fast, making up for lost time. by the way the best iron i have found is carried at the cvs drug stores. it is called vit-ron-c. excellent. good luck everyone. more good stories please.

i am back. sometimes i think that telling people i was a crack addict , in order to explain my roller life, would make more since to them.

CMCM Rising Star
Ianm;

I was reading your reply (above), and you said that you've had brain fog for 36 years? I would like to know more about your condition, i.e., how long before you got diagnosed, missed-diagnosises, how long did it take for you to notice ANY improvement after diagnosis, etc. My doc suspects that I've had Celiac for about 32 years; I'm 56 and retired now from two jobs. My primary symptom is debilitating fatigue. I find it hard to believe that I've been making myself sick all of those years by eating gluten foods. My health has been a big puzzle to me since I was 24 years old. Somehow, I just can't believe that the doc finally has the answer, and it has to do with food! And, does any of your family members have this disease also? I have a lot of relatives who suffer from low level depression, general anxiety, etc., I know that the stats say that 10 - 20 percent of first degree relatives will have the disease, but in your research, have you found this to be much higher in some families? This would unlock a family health puzzle that's been destroying my family for years and years. It all sounds so impossible. Thanks for any reply.

Chap

I'm also 56, and just got officially diagnosed a couple of weeks ago! My mom was diagnosed with celiac 40+ years ago, but I never thought I fit the profile so didn't suspect it for myself. However, like you I have had weird health issues since at least age 20, and When I finally got gene tested, the HUGE family surprise was that I not only had the celiac gene (undoubtedly from my mom), but I had a SECOND gluten sensitivity gene...most likely from my Dad, which shocked everyone. He died 16 years ago, but as we all look back, we can see possible connections....overweight, type 2 diabetes at about age 65, lots of sinus stuff going on, high blood pressure/high cholesterol, a few minor digestive issues. Never enough to be suspicious for celiac (who knew about all those connections??). But he died from bladder cancer, so perhaps there's a connection there too. I have 3 siblings who also are suspect, but they are completely in denial about the possibility even in the light of what I have discovered about myself! My 84 year old mom is getting gene tested just to find out if she has 2 genes or just the one for celiac. If she has two, then all her 4 children will have one or the other of the genes. We'll never be able to find out what my dad's 2nd gene was, but we know he had at least one gluten related gene.

Chap Newbie

To: Iamn, Dingo Girl, DonnaD. CMCC, and PokerPrincess;

You guys, your stories are too amazing to be true! I am awaiting my test results from my Rheumatologist, and will get them back in 5 weeks. I don't personally know any of you, but I am sooooo happy that you have found a remedy to your chronic illnesses. Chronic Illnesses (for which you have no clue of what it is, and docs can't tell you) is no fun; it ruins, marriages, breaks up families, and eventually kills people. I hope my post isn't too long, but I've got to get this off my chest. My Rheumatologist and I both have our fingers crossed that my condition has to do with Celiac/food allergy/intolerance, or whatever. My primary doc was 100% sure it was Lupus. The previous 30 or so docs I saw pronounced me physically healthy, and could find no reason for my fatigue, low level depression, and low level anxiety. Much like you Iamn, I think my health ruined a 21 year marriage; however, I too met a wonderful lady, who says she going to stick with me through all of this, even when I try to "push her away" for her own good. (women are wonderful creatures, if it weren't for them, us guys would still be living in caves). I've always had a deep down suspicion that my health problems stemmed from something in my environment that I was exposing myself to on a daily basis, since I felt crumby everyday. I worked in aircraft maintenance while in the Air Force, and wondered if it was the fuels, etc., I was being exposed to, then I thought about cigarette smoking, stopped that, and didn't get any better, and lastly, since I ate 3 square meals a day, I always had a deep down feeling that food may have something to do with my feelings of "unwellness." After the Air Force, I worked as a Children's Protective Services Social Worker. I accompanied hundreds of children to docs, which gave them a 10 minute examination, then shuffled them off to psychiatrists who proceeded to drug them up with psychotrophic medications. I always had a sneaking suspicion that a lot of those kids had physical ailments that the docs weren't finding. Also, I have great brothers, sisters, nieces and nephews, who all work for a living, but they all seems to have various problems with low level depression, generalized anxiety, and in general are surviving, but not enjoying life. I'm beginning to wonder if this Celiac/food allergy/intolerance is prevalent in my family. It would answer a whole host of questions, and save a whole family from lives of misery. However, at this point I'm only speculating, but wish this is the answer I've been seeking for years, moreso for my family member's sake. They all know something is wrong, but they don't know what. Anyway, in 5 weeks I may find that I have no Celiac/food allergies, etc., and have no answer, but I am going to start eating more healthy. Sorry for the long post, but I really enjoyed reading your success stories, and hope that I'll be able to add one to it in the future. Lastly question though; most of you said that you got better within days and weeks of going CF, I thought that it took months/years for the intestinal damage/villi to heal after going CF? Can anyone enlighten me?

Thank you;

Chap

DonnaD Apprentice
To: Iamn, Dingo Girl, DonnaD. CMCC, and PokerPrincess;

Lastly question though; most of you said that you got better within days and weeks of going CF, I thought that it took months/years for the intestinal damage/villi to heal after going CF? Can anyone enlighten me?

Thank you;

Chap

Hi Chap

I felt 50% better overall gluten-free, but still had some issues with, Ibs, heartburn, bloating,Sinus, irritable bladder, chronic pain back/neck/shoulder, brainfog, depression, Fibro, low energy level, concentration. A couple of weeks ago I also cut out, all dairy inc goat, (caesin intolerance), soy, nighshades veg, eggs, citrus, wine and felt INCREDABLE the 'brain' linked issues are so much better I was shocked at my energy and motivation returning so fast. The GI issues and chronic pain are taking longer but I notice a slight improvement each day. I think it all depends on the degree of damage/malfunction/leaking in the gut and how long it has gone on for. The villi can re-grow quite fast in some people (hence being gluten-free I didn't bother with a biopsy).

Hope this helps,

Donna

sspitzer5 Apprentice
hello, just wanted to find out if any one else suffers from mental fatigue, where you just cant think straight? Im a 4th grade teacher and deal with a lot of things. Sometimes, I just feel like I cant concentrate, even when being spoken to. I am also making lots of mistakes that even my students comment. I need them to remind me of everything related to school.

I have also been taking prozac/wellbutrin for over 5 years, and was diagnosed w/celiac 8 years ago.

Can anyone offer some advice?

thank you

e ;)

Does reading the same posts multiple times because you can't remember if you already read it count?

mandigirl1 Enthusiast

such a great response from all of you. thanks. I would love to post more things about celiac disease and being gluten-free (which Ive known about for 8 years now), however, I suffered, doubled over in pain in my stomach today, all day. I think I was glutened, yet not sure how. Ive been careful lately. I had to teach 28 4th graders with a mini celiac attack.....can you imagine??? Couldnt wait to come home and jump (actually fall over) into bed. So, if I had more energy, Id write more. I'll have to wait til I feel up to it.

Have a great weekend everyone, oh and Happy SuperBowl Sunday!!!!

Stay away from the beer and pretzels, unless thy're gluten-free (and they do make both gluten-free!!!).......

jenvan Collaborator

Mandi--

Hi there...several questions. How long have you felt like this? Recently? Always? Since being gluten-free? After I went gluten-free, for several months I experienced some confusion, memory issues, but they eventually went away. Have you been 100% gluten-free? You wrote later on being contaminated, so I wasn't sure. Have you explored indoor/outdoor allergies, neuropathy, ADHD? Its hard to say without knowing more of your history. Also, have you ever changed your dosages of Wel/Proz in those 8 years? If you had been 100% gluten-free, healing should have occurred and your meds should have been adjusted, due to more absorption (like I said earlier, depending on what your gluten-free experience has been). Have you ever considered going off those meds for a trial period? Many Celiacs struggle with depression but in time are able to go off them sucessfully. I would say there is a chance they could be contributing to how you feel. I've mentioned several possiblities here, lastly to say, if you are not 100 gluten-free, "brain fog" can be a symptom of that as well. Any thoughts? Or more of your history?

Nancym Enthusiast

There are a few things that can cause brain fog like that. The ones I have experienced are: Low thyroid is one, any food intolerance, including dairy. You might try a diet like SCD that gets rid of a lot of the common foods people are intolerant to and see if that helps you. I do SCD but modified so I don't use dairy products because I'm intolerant to dairy too (casein, not lactose).

marciab Enthusiast

I wanted to empathize with you here. My mental fog, etc. rolled in 16 years ago. Even when I think I am understanding what I am reading or hearing, I've learned that I can't be sure. I have the worst time talking to people because I am always using the wrong words. It's so embarrassing. Proof reading this post is a complete waste of time since I will never catch my errors. I lost my job and have been on disability for CFIDS and Fibromyalgia for 14 years now.

I went on the food elimination diet 6 months and I went gluten free 5 months ago. The first few weeks of being gluten free were great. I had more energy and could actually concentrate, but I haven't felt that way in several months now. I'm working on eliminating all other food allergens and trying to figure out how I might still be getting glutened. Luckily for me, the combination of diets stopped my "D" and "C" and the horrific abdominal pains. That alone will keep me on this diet.

When I was diagnosed with CFIDS and Fibromyalgia 14 years ago, I was told that this brain fog was just a part of this illness, but I am still hoping this diet will be the answer I've been looking for. I felt great for several weeks in the beginning, so I'm still thinking the brain fog must linked to food or allergies somehow ??

Good luck with it. I know how frustrating it can be. Marcia

mandigirl1 Enthusiast

jenvan-

Thanks for your suggestions--they're very helpful. Esp. about the Wel/Proz. I once tried coming off the pills, but I felt horrible and had to take them again. I should prob switch antidep. but am nervous to do so right now. I am a 4th grade teacher and cannot miss work. Therefore, I am hesitant to do anything different....I think the pills def. contribute to the brain fog.

I also think Celiac has taken a toll on me. Ive been gluten-free for 7 years now but I know that gluten has slipped into my diet at times. Prob more times than I am even aware of. Plus, I have an eating disorder. I used to have exercise bulimia. Now I just have binge eating disorder and I obsess everyday about food/weight/dieting. So, I do not eat that well, for ex. too much chocolate, and then there are times I just go hours not eating a thing. I could eat chocolate all day!!!! I dont cook at all (no desire) so my fiance will come home after work and prepare a healthy meal. When he does, I eat well (for lunch too).

Quick question for you (and anyone else reading this):

When I think Ive been glutened, besides having stomach cramps (of which I cannot even go the bathroom), I get sooooooooooo exhausted!!! So tired that I can fall over and sleep for hours. Plus, I notice that I yawn alot. Isnt this weird, or have you heard of such a thing? Thats how I can tell sometimes its celiac disease, because I yawn alot. Plus, I feel such pain in my stomach that I get hunched over/doubled over, with no relief. Usually Ill take a Zantax and it helps a little, not much. Does anyone else get burning, knife cutting spasms, yet cannot go to the bathroom (for a BM). Or, yawn alot?????

Look foward to getting feedback/support........you guys are great!!!!!!

thanks

casnco Enthusiast
Gluten sensitivity as a neurological illness

'Figure 1 Brain MRI of a patient with gluten ataxia showing rapid onset of cerebellar atrophy over a period of 15 months before the diagnosis of gluten ataxia.'

Open Original Shared Link

and Visual disturbances representing occipital lobe epilepsy in patients with cerebral calcifications and coeliac disease: a case series

Open Original Shared Link

Are a couple of studies I came accros while looking into gluten and neurological symptoms, brain fog and memory problems.

The first one is from M Hadjivassiliou in Sheffield who has quite a few studies on line in this field.

Donna

OMG!!! Donna:

Thanks for posting these studies. My initial symptoms of celiac disease were the blurry vision. My doc told me the blurry vision was the precurser to a Migrane. The symptoms passed. I refused the Migrane meds and continued to seek help. Blah, Blah, Blah...Long story short, we ignored the blurry vision, I went gluten-free. Blurry vision left until just yesterday!!!! Accidental glutening from salad bar at work. (guess I just need to take my own food EVERYDAY! I did use my own dressing) Anyway, I posted a question yesterday morning concerning this blurry vision and foggy headedness. I can't wait to show my eye doc.

God Bless you for posting!

Deb

CMCM Rising Star
jenvan-

Thanks for your suggestions--they're very helpful. Esp. about the Wel/Proz. I once tried coming off the pills, but I felt horrible and had to take them again. I should prob switch antidep. but am nervous to do so right now. I am a 4th grade teacher and cannot miss work. Therefore, I am hesitant to do anything different....I think the pills def. contribute to the brain fog.

I also think Celiac has taken a toll on me. Ive been gluten-free for 7 years now but I know that gluten has slipped into my diet at times. Prob more times than I am even aware of. Plus, I have an eating disorder. I used to have exercise bulimia. Now I just have binge eating disorder and I obsess everyday about food/weight/dieting. So, I do not eat that well, for ex. too much chocolate, and then there are times I just go hours not eating a thing. I could eat chocolate all day!!!! I dont cook at all (no desire) so my fiance will come home after work and prepare a healthy meal. When he does, I eat well (for lunch too).

Quick question for you (and anyone else reading this):

When I think Ive been glutened, besides having stomach cramps (of which I cannot even go the bathroom), I get sooooooooooo exhausted!!! So tired that I can fall over and sleep for hours. Plus, I notice that I yawn alot. Isnt this weird, or have you heard of such a thing? Thats how I can tell sometimes its celiac disease, because I yawn alot. Plus, I feel such pain in my stomach that I get hunched over/doubled over, with no relief. Usually Ill take a Zantax and it helps a little, not much. Does anyone else get burning, knife cutting spasms, yet cannot go to the bathroom (for a BM). Or, yawn alot?????

Look foward to getting feedback/support........you guys are great!!!!!!

thanks

Here's what I always found to be true for myself, given my own sensitivities: Almost ALL drugs I have ever had to take gave me more problems than they were worth. Even headache pills bother me...I've only found ONE that doesn't. I've had varying reactions to different things....so for 30+ years I have avoided taking anything I absolutely didn't have to. I KNOW I would have problems with Zantax etc. These things mess with your system, and unless you absolutely, medically can't be without them, you might look into breaking your dependence and/or usage of them. They are hard enough for a person with an uncomplicated digestive system to handle, but with celiac/gluten/casein/soy etc. sensitivities, it seems your likelihood of being affected by the drugs in a secondary and unpleasant way are greater. Our medical system really likes to get us all dependent on various drugs for virtually everything. Recently I was in the doctor's waiting room (took my son for a physical), and for the 15 min. or so I was there, I saw FOUR drug company reps waltz in with their big bags of drug samples and their sales pitch for the doc. And darned if during my son's appointment, the doctor tried to prescribe this new fangled drug that I had seen one of the reps come in with as I sat there!

The history of various drugs is often scary....look at hormone replacement drugs....pushed onto women for years and years and then finally they find out how ineffective and DANGEROUS they actually are. This is true for a lot of drugs. This is not to say all drugs are useless, but a whole lot of them are. They are developed to mask symptoms as much as possible, but they don't solve the underlying problem...which OFTEN (not always) can be changed by lifestyle and diet choices....thus eliminating the need for the drug. But of course....eliminating the drug wouldn't be good for profits!

I'm on a rant here....but I just happen to believe Americans are too dependent on often-dangerous drugs to solve every little thing. And just watch...if celiac disease ever gets more press and becomes more mainstream, drugs to "cure it" or "help symptoms" or some such will start to appear. Snake oil salesmen will come out of the woodwork! :o

  • 5 years later...
MandiPCOS Newbie

Chap,

I found out about celiac when I tried the Atkins diet two years ago. On a low carb diet you don't eat grains. The brain fog cleared within a few days and the fatigue started to lift within a week. It has been two years and I now consider myself healthy. Everyone used to complain that I was a useless space case and that I could never keep up. Now they complain that I run circles around them and they can't keep up with me. Two years ago I almost lost my job and next week I start a new one making over $100,000 a year. Celiac destroyed my marriage but that lead to meeting my girlfriend who is simply amazing. I am convinced that my dad and brother have it because they are overweight and complain of chronic fatigue but don't seem too interested in the gluten-free lifestyle. I was one of the super heavy weight celiacs but not anymore. I am also self diagnosed. I went to dozens of doctors and they were useless. It takes time and discipline but it is so worth it.

Hi Ian!

This post is now a few years old. I'd be great to know how you are doing and how being gluten-free has affected your life?

/Mandi

sa1937 Community Regular

Hi Ian!

This post is now a few years old. I'd be great to know how you are doing and how being gluten-free has affected your life?

/Mandi

Yes, this thread is very old so am not sure Ian will even see your post.

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      @llisa, back then when you tried magnesium and it upset your tummy, I'm guessing you were using the most common form of magnesium found on store shelves, namely, magnesium oxide. It has a reputation for having a laxative effect. It is not very well absorbed and so draws a lot of water into the colon, just like the laxative known as milk of magnesia. I'm guessing if you would switch to the "glycinate" form of magnesium you would not have this problem. Magnesium glycinate is absorbed much better. If you can't find magnesium glycinate at your local stores, you can order gluten free brands of it off of Amazon.
    • llisa
      I've tried magnesium before. Twice in 2 years. It really upset my stomach. And that was before this celiac disease diagnosis. (Finally, after 2 years of trying to find out what was wrong with me.) I have no idea how sensitive I am. When my stomach was upset, I'd go to my comfort foods: cream of wheat, cheese and crackers, scrambled eggs and toast...so, making myself worse by trying to feel better.  Just got results of biopsy yesterday, so today is first day of trying no gluten and reading that it can be hiding in vitamins and meds. So, I welcome ALL advice and personal experiences. No advice is too basic. I know nothing. Thank you!
    • trents
      Have you considered also supplementing with magnesium and zinc? We usually recommend these two as well. D3, Calcium and Magnesium all important for bone and nerve health.
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