Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anti-gliadin Numbers...


Guest Leidenschaft

Recommended Posts

Guest Leidenschaft

Hi all... part of my yearly routine is blood work monitoring my anti-gliadin numbers... the doctor just phoned me and told me that my number this year is 10 points higher than last! :o

Normal is (apparently) 25, last year I was 26 :) but this year I am 36! :blink: I do NOT intentionally ingest gluten and know when I've done it by accident. She suggests that I'm not managing my diet as well as before, but I don't feel like I take any more chances or that I'm exposed to gluten more frequently than the previous year! :unsure:

Anyway, is it possible that the numbers fluctuate and are influenced by gluten ingested in the few days before the bloodwork? Or does this number really represent my overall state of being gluten-free?

Last question, would it be beneficial for me to have the bloodwork done more often than once per year?

Thanks in advance for any input! :D

Tammy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Leidenschaft

Nobody has any input on this??? :o

Bumping it up before it's lost all togehter! :huh:

Guest Viola

I think that's an interesting question. Perhaps being contaminated on the day of the test does push it up. Are you going to try and run the test again ... say in a month or so?

I think I'll ask for a full panel when I go in next month and see what mine are.

Has anyone else found there results higher after going gluten free? It would be really interesting to know if a contamination can push the numbers up so high.

tiredofdoctors Enthusiast

I know that mine have fluctuated. I started at either 34 or 36, then went down to 24, then went up to 60. I'm going to be tested in March because it will be 6 months that I have been gluten-free. If it's still at 60, I'm going to be really frustrated, because I have been more compliant with this diet than I have been compliant with ANY medical treatment throughout my life. I did read, in some article somewhere (I have become addicted to Medline) that your body can actually increase your antigliadin levels despite adherence to a gluten-free diet. (Again, don't know where I read that, so I can't tell you for sure that it's a valid study). Funny, though, I never looked to see what "normal" was. No wonder my neuro said that my first test was "high", but my last one was "EXTREMELY high" :huh: If I find that article, or talk to anyone who knows, I'll let you know . . . Lynne

Guest Viola

Lynne ...Maybe the last couple of days before you get tested, go right back to 'fresh only' foods and see what happens.

I suspect that maybe if on the day, or the day before testing, you are contaminated somehow, it might push the numbers up. So ... If you eat only what cannot be cross-contaminated, and be super careful about what a 'gluten' person touches "for instance the telephone while eating a sandwich" etc. My theary is that they should be lower numbers.

At least that would explain why they would be high if you are pretty careful of your diet.

tiredofdoctors Enthusiast

Thanks Shirley -- I didn't even think of that! My husband is pretty much gluten-free, too -- we don't have very much gluten-containing food in the house anymore -- BUT -- he gets subs, etc. at work, and grazes on them during the day. I'll bet that's EXACTLY what happened! You are so smart :D . . . .Lynne

Guest Viola

:lol: I'm not too sure about being so Smart, I just know that Tammy is very strict with her diet and that's the only thing that I could think of that would push the numbers that high. She can't remember if she was contaminated that day, or the day before though.

Tam, I think you should go and run another test as well, this time stick really close to the absolute basics and see if it makes a difference. It would certainly prove that even tiny amounts of contamination does big damage, if that's the case.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,390
    • Most Online (within 30 mins)
      7,748

    Ozz lock
    Newest Member
    Ozz lock
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
    • englishbunny
      it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free.  I didn't have any clue about the celiac thing then.  Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting my blood test redone right away to see if it has changed so I'm not waiting another month...
    • trents
      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
    • trents
      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
×
×
  • Create New...