Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten And Paper Towels/plates


Guest Zmom

Recommended Posts

mommida Enthusiast

A very interesting post.

The glue on the roll would explain why your son (and any other Celiac child that age) would have a higher cross contamination from the rolls. Kids play with them constantly. We will only use wrapping paper rolls for all the cardboard fun from now on. Did you break down and buy the lightsaber yet?

Laura


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Zmom

I don't know if all glove powders have gluten. As for the "powder-free" it is not in the vinyl itself but the cross contamination within the manufacturing process. The supermarket gloves are of a much poorer quality than dentists/M.D.s. I think that medical grade gloves are manufactured with more attention to cross contamination as they are used in internally/in mouths . I will investigate this week and tell every one what I find out. most dentists now are aware of at least allergenic issues so I think their gloves are probably o.k. I am going to the dentist next week to have 6 metal fillings removed so I am more worried about the mercury. and I can't have the novacaine so I hope the ear acupuncture works again...

Merika Contributor

Whoa....now this I never thought about. Never thought about maxi pads either.....And what about toilet paper rolls? I ask, because I also have a 4 year old who thinks discarded paper rolls are the best thing since sliced rice bread (haha). :o

Merika

elfkin Contributor

Confirmed by phone that Charmin, Bounty, and Puffs paper products are gluten-free and there is no gluten in the adhesive they use on the rolls.

Having said that, I will add that this was after they sent me an absurd e-mail about having to have a Doc. mail them (on letterhead) the request for this info.

I called a number I looked up and really gave it to them on this. The lady on the phone was able to access the ingredients of the adhesive and even that it said it contained no gluten. Why could this not have been answered by my e-mail remains a mystery. The product is safe, if you want to use proctor and gamble after their insulting response to my (and others, apparantly) request.

lovegrov Collaborator

Paper products are just simply safe. If you're looing for gluten, look elsewhere.

richard

Guest Zmom
A very interesting post.

The glue on the roll would explain why your son (and any other Celiac child that age) would have a higher cross contamination from the rolls. Kids play with them constantly. We will only use wrapping paper rolls for all the cardboard fun from now on. Did you break down and buy the lightsaber yet?

Laura

Actually he has had 2 soft "real" lightsabers for over a year, got a "big kid" lightsaber for halloween and a make your own lightsabers kit for Christmas. He is just very creative.

Electra375 Newbie

Very interesting. I don't doubt the glue and gluten issue. I have never liked the feel of the last 2 towels on a roll they make my hands sticky!!! We use Bounty b/c we can get them at Costco and they are better than the Costco PT.

I've been using more PT to clean off counters b/c I didn't want to cross contaminate with a dish rag, you know wipe up a sandwich crummy mess and then just generally wipe down the table before we eat -- knowing that I can't get all the crumbs out of the little weaves of the dish rag. Plus all the wash if I were to use a clean 1 w/ each wipe like a PT -- well, I already do Cloth Diapers...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Zmom
Very interesting. I don't doubt the glue and gluten issue. I have never liked the feel of the last 2 towels on a roll they make my hands sticky!!! We use Bounty b/c we can get them at Costco and they are better than the Costco PT.

I've been using more PT to clean off counters b/c I didn't want to cross contaminate with a dish rag, you know wipe up a sandwich crummy mess and then just generally wipe down the table before we eat -- knowing that I can't get all the crumbs out of the little weaves of the dish rag. Plus all the wash if I were to use a clean 1 w/ each wipe like a PT -- well, I already do Cloth Diapers...

Last year when my husband was still eating gluten I got 2 sets of dish/bar towels one with stripes and 1 plain white. No matter what there is ALWAYS more laundry. :)

Nic Collaborator
this is in response to the Enterolab quote: I spoke to the lab after I got the new test results and since his numbers TRIPLED it is NOT the healing process "spike " that occurs.nor does my son have intestinal damage/severe malnutrition according to either test. There is no gluten (food) in my home,I work closely wih his pre-school and bring all his food. According to the person I talked to there would have to be a consistent exposure to gluten-not nessesarily in food for this to happen. My son has had Zero diarrhea for months. My son ,however, does have a lightsaber collection made from paper towel rolls. Since the Brawney rep. verified that there was definatly gluten on the rolls I am going to assume this is part of the problem. he is 4 and sometimes puts his hands in his mouth/nose. also when I called stop & shop market about Care One vinyl non-powdered gloves. They initially said no gluten but then the rep. called ME back and said they were not gluten free;which is what she was told by what ever dept. they get their info from.

I bring up the gloves because often customer service people often read from company statements Fortunatly she did a little research on her own.which is why I politely but firmly ask reps. if they could confirm that there is no gluten. Most are really nice and call me back.

Not trying to freak people out,not saying that this applies to all paper products. Seventh generation research the roll/ plates and said definately no gluten. Brawney happens to be the product I have always used.I eat the same diet as my son with the exception of coffee and gluten-free pasta sauce and my numbers went down almost to normal.So I really think the paper towels and gloves are PART of the problem. I am going thru the house room by room for possible gluten risks.

When you open a new roll of paper towels the first one or two stick because they don't want them to unravel. If you microwave with that paper towel or the last one on the roll that could get into the food if there is glu(e)ten present.

My son has been gluten free for since last May. In August his blood was tested again by a second opinion doctor. His blood levels were so high that it showed him as being actively sick with no improvement at all, even though he was strictly gluten free and getting better. While it was too soon for his levels to be completely normal, there should have been some improvement. The doctor then sent his blood to a special lab in Boston. The lab we originally used is the one my PPO says I have to use. The doctor told me that most labs, especially the one that I have to use, are not always well trained in this test due to the fact that it is not one of those test that are run often. He said that there are specific labs that specialize in these tests and when the results came back from Boston, they were much better. His levels were still high, as he was only Gluten free for a few months, but they were not as high as before. Thought this might be helpful.

Guest Zmom
My son has been gluten free for since last May. In August his blood was tested again by a second opinion doctor. His blood levels were so high that it showed him as being actively sick with no improvement at all, even though he was strictly gluten free and getting better. While it was too soon for his levels to be completely normal, there should have been some improvement. The doctor then sent his blood to a special lab in Boston. The lab we originally used is the one my PPO says I have to use. The doctor told me that most labs, especially the one that I have to use, are not always well trained in this test due to the fact that it is not one of those test that are run often. He said that there are specific labs that specialize in these tests and when the results came back from Boston, they were much better. His levels were still high, as he was only Gluten free for a few months, but they were not as high as before. Thought this might be helpful.

Thanks for writing. I use EnteroLab. They specialize in stool testing for Celiac disease. I have to pay for the tests out of pocket as the ones covered by our insurance were false negitive. Actually 2 of 5 were positive but I was told 3 of 5 were nessesary for a positive diagnosis. Quite silly. If I had not done further research on my own and found EnteroLab my son would still have chronic diarrhea,vomiting...

Electra375 Newbie
Actually 2 of 5 were positive but I was told 3 of 5 were nessesary for a positive diagnosis. Quite silly. If I had not done further research on my own and found EnteroLab my son would still have chronic diarrhea,vomiting...

My ds2 was 2 of the 5 positive plus IGA deficient which is why the other test were false negative. As I stated elsewhere the only positive dx as far as the Pedi GI is concerned is a postivie biopsy which at this point we are not doing b/c we went gluten-free immediately after the blood was drawn and we like what we see. The pediatrician totally over looked the IGA deficient issue as did the first Pedi GI. It was Dr. Fasano in MD that pointed out the IGA deficiency on the Prometheus lab reports! And he totally agrees that a gluten-free diet is the right choice for our son, while he would like a biospy he was not pushy at all.

So, if you are not happy w your doctor, find another one, keep looking until you have answers. I don't know what Lab is in Boston, but I've been told by 2 Pedi GIs that Prometheus and Mayo are the only 2 in the country worth sending Celiac Panel test to.

Rusla Enthusiast

The thing on dentists and gloves is that many dentists get their gloves from different places. My dentist has his vinyl gloves in a box and no powder, very similar to the ones I buy by the box.

The toilet paper issue would explain some weird glutenings for me. Now I don't use it to the end.

Guest Zmom
My ds2 was 2 of the 5 positive plus IGA deficient which is why the other test were false negative. As I stated elsewhere the only positive dx as far as the Pedi GI is concerned is a postivie biopsy which at this point we are not doing b/c we went gluten-free immediately after the blood was drawn and we like what we see. The pediatrician totally over looked the IGA deficient issue as did the first Pedi GI. It was Dr. Fasano in MD that pointed out the IGA deficiency on the Prometheus lab reports! And he totally agrees that a gluten-free diet is the right choice for our son, while he would like a biospy he was not pushy at all.

So, if you are not happy w your doctor, find another one, keep looking until you have answers. I don't know what Lab is in Boston, but I've been told by 2 Pedi GIs that Prometheus and Mayo are the only 2 in the country worth sending Celiac Panel test to.

He has a new pediatrcian who is at least open minded. My son has a new patient visit in a couple of weeks. We saw her once already (sore throat) so we did not get into C.D issues in detail. Since our insurance changed we have to change our allergy Dr. too. Have not found a competent GI. Will see what happens with the other two. My son's health/energy/moods have improved so much over the past year that we were really shocked by those results after a year on a gluten-free diet.(same as me) which is how this thread started. finding hidden sources of gluten.

Guest Zmom

Back to paper products and gloves. Really like the seventh generation paper products. The pt are not glued to the roll and they do not use bleach to whiteten their products As for gloves I spent 3 1/2 hours in the dentist chair getting all my metal fillings removed ( (A few were cracked and all over 20 years old). Anyway I had no adverse reations to those gloves and the dentist gave me a photocopy of the box. They were not latex or vinyl. Will get the info on them but I am sure they are fine. Its just a matter of calling (or e-mail) companies if you have a doubt. I am going to ask the dentist if I can buy a couple of boxes after I call. I wish I could find a M.D. as open minded and competant. -I also wish this site had a spell checker...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,929
    • Most Online (within 30 mins)
      7,748

    quilterjoyce
    Newest Member
    quilterjoyce
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I've been using a Brita water filter for well over a decade without any issues. I seriously doubt that these water filter companies would use glues that would end up in your water, as that would be counter to what they are trying to do, which is to purify tap water. Please provide some specific evidence to back this claim up, as such speculation can cause undo fear, as well as reputational damage to these companies. Don't get me wrong here, I am not saying that this isn't possible, but is very unlikely.
    • trents
      Welcome to the forum, @aperlo34! You said you had a colonoscopy "ordered" in July? Has that procedure happened yet? A colonoscopy cannot be used to diagnose celiac disease so I assume the order for the colonoscopy is to check for something else. The procedure used to diagnose celiac disease is the endoscopy. So, I assume you have had blood antibody testing done and it was positive and then you had an endoscopy/biopsy done to confirm those results? That is the normal process for diagnosing celiac disease. Have your constipation/irregularity problems improved since going gluten free? Some of the continuing symptoms you describe would seem to fall into the category of neurological effects (muscle twitching, shakiness, weakness and headaches) and others such as dry eyes, fatigue, stiffness and joint aches sound like they could be autoimmune effects. Are you taking any high potency to vitamin and mineral supplements? Celiac disease often/typically results in vitamin and mineral deficiencies due to malabsorption from the damage to the small bowel lining it causes. I note that your vitamin D levels are barely within normal range and the only B vitamin testes is B12. The B vitamins and D3 are very important to neurological health. And the several B vitamins all work together synergistically. So, they all need to be up to snuff, not just B12. I would suggest starting on D3 supplementation in the amount of about 5000 IU daily and also a high potency B-complex. Costco's Nature Made and Kirkland brand products are good quality and priced well and usually gluten free (and will state so on the packaging). Realize also that gluten free flours and facsimile foods are not fortified as are their FDA mandated gluten equivalents. So, when you cut out gluten, you cut out a significant source of vitamins. One thing to be aware of is that Celiac disease is an autoimmune disorder and autoimmune disorders tend to cluster. That is, when you have one you there is a good chance you will develop others in time. I don't wish to alarm you because I know you have said you already struggle with heath anxiety but many of your symptoms make me think you have some other autoimmune condition going on in addition to celiac disease. Have you been checked for Sjogren's or lupus for instance?  Finally, I am including an article that is helpful to newly diagnosed celiacs in getting a head start on the learning curve of eating gluten free:   
    • Scott Adams
      This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • cristiana
      Hi @aperlo34 Welcome to the forum. I am so sorry to read that you have been going through all of this.    Firstly, I should say that your experience of anxiety is very common, and also, the worsening of symptoms is also something we see reported quite a lot on this forum.  Achy joints, twitching as you describe and other symptoms were things I had and they all seemed to worsen for a while before they got better.  I am a coeliac based in the UK and here, unless we are extremely fortunate or pay for private treatment, we are tested for very few deficiencies - my iron was low, my B12 borderline normal and vitamin D borderline normal, but I have absolutely no doubt in my mind that had I had the full spectrum of vitamins and minerals tested, it would have shown deficiencies.  Your test reveals normal levels but it could well be you are lacking in something not on that list. My nutritionist at the time put me onto a broad spectrum supplement of every vitamin and mineral under the sun for a few months, until my GP said she thought there was too much Vitamin A in the pill so told me to stop taking it!  But one thing you could do is to take something similar which will address any deficiencies you are unaware of.   I would say one Vitamin which you could should supplement is Vitamin D.   Your lab reports show you are borderline normal, I'd say there is quite a lot of room for improvement there.   Symptoms of deficiency/low levels include:  Muscle pain, Bone pain, Increased sensitivity to pain, A tingly, “pins-and-needles” sensation in the hands or feet, Muscle weakness in body parts near the trunk of the body, such as the upper arms or thighs, Muscle twitches or tremors, Muscle spasms (source: https://www.yalemedicine.org/conditions/vitamin-d-deficiency) When I first joined this forum ten years ago or so, I found myself in the company of a lot of people complaining of twitches and spasms, and others who shared that it took a few months to clear (disappointing, but realistic!) which gave me hope that what I was encountering was temporary.  And indeed it was ...  it took a while but things did get better. As I mentioned earlier, anxiety is problem for many newly diagnosed coeliacs and when adrenaline is running through you it can exacerbate or even cause twitching and spasms.  This happened to me, my eyes twitched, my calves twitched etc.  Trying to understand the anxiety and what to do about it, I bought these two publications.  They helped me no end, and they may help you. https://www.amazon.co.uk/Depression-Cure-Six-Step-Programme-Without/dp/0091929814 (Yes, it says depression, but this book helps with anxiety, too, through physical exercise,  omega-3 fatty acids,  natural sunlight exposure,  restorative sleep, social connectedness and meaningful, engaging activity) https://anxietynomore.co.uk/product/at-last-a-life/ (Note, there is a lot of help on the anxietynomore website). So aside from the anxiety, the other thing you need to do is to keep away from gluten.  This will help you. I apologise for all the reading you have to do, but hopefully something will help. Lastly, did they test you for any thyroid issues, to which some coeliacs can be prone? Do come back to us if we can help further, and remember, there is a good chance that what you are experiencing is temporary.😊 Cristiana
×
×
  • Create New...