Excess saliva and sore tongue

[Om-Zayd-Waleed]

Hey y’all, I am so excited to have stumbled upon this forum. I was diagnosed with celiac disease about two years ago. I unfortunately have a horrible time sticking to the diet. When I was first diagnosed I felt sick all the time, had bowel movements at least 6 times a day and just overall felt tired. Now even being off the diet, I still feel normal. The biggest thing has always been the fatigue but I’m also a mother with two young children, so that doesn’t help. The newest symptom is a sore and what feels like a swollen tongue and lots of saliva. I’m not drooling but I feel like it’s making it harder to talk. No one notices it but I do. Could this be a celiac symptom? Anyone else have this issue? Thank y’all so much!

[knitty kitty]

On 2/29/2020 at 7:21 PM, Om_Zayd&Waleed said:

Hey y’all, I am so excited to have stumbled upon this forum. I was diagnosed with celiac disease about two years ago. I unfortunately have a horrible time sticking to the diet. When I was first diagnosed I felt sick all the time, had bowel movements at least 6 times a day and just overall felt tired. Now even being off the diet, I still feel normal. The biggest thing has always been the fatigue but I’m also a mother with two young children, so that doesn’t help. The newest symptom is a sore and what feels like a swollen tongue and lots of saliva. I’m not drooling but I feel like it’s making it harder to talk. No one notices it but I do. Could this be a celiac symptom? Anyone else have this issue? Thank y’all so much!

Excessive saliva production is caused by a deficiency in Niacin (vitamin B3).  

I experienced this for years before my Celiac diagnosis.  My dentist always commented on it whenever I visited, but my dentist could not explain why this happened. 

Celiac causes malabsorption which results in malnutrition.  Yes, vitamin deficiencies occur in Celiac Disease.  There may be subclinical deficiencies that progress slowly and the deficiency symptoms are often overlooked until you're really seriously ill. 

I suffered for years with serious nutritional deficiencies before my diagnosis.  My doctors did not recognize the nutritional deficiency symptoms. 

The human body needs eight essential B vitamins and Vitamin C. These are water soluble and must be replenished every day.  The human body cannot store these vitamins for much more than two weeks.  They can be lost quickly with diarrhea.  Since Celiac causes damage to the intestinal villi, absorption of more vitamins can be impaired.  

You may be deficient in more than one B vitamin.  The eight essential B vitamins all work together and depend on each other.  If you are low in one, you're more than likely low in others!!! 

The excessive salivation is caused by Niacin deficiency.  The swollen, red tongue can be caused by deficiencies in Niacin,  Cobalamine (aka Vitamin B12), Riboflavin (B2) and Thiamine (B1).  

The fatigue can be caused by B12, pyridoxine, folate, and iron deficiencies.    Celiac causes malabsorption of minerals like iron, calcium and magnesium and trace minerals.  And the fat soluble vitamins, like Vitamin A and D, are often low, too.

Checking for vitamin and mineral deficiencies is part of follow up care for Celiacs.  

Even though you don't feel very bad eating gluten occasionally, you are still doing damage to yourself.  If you want to be around, functional and competent, for your little children, you need to step up and set a good example for them.  Celiac Disease is genetic.  Your children need to be tested for Celiac as well.  

Please get checked for nutritional deficiencies.  Consider supplementing the B Complex vitamins. 

Please take Celiac Disease seriously.  Please don't take the importance of nutrition lightly.  Read, research, learn about nutrition.  Arm yourself with knowledge.  Knowledge is power.

You are doing damage every time you cheat.  Even though you can't feel it, yet, the damage is happening and there will be long term consequences.  I speak from experience.  

Hope this helps.

 

 

[Om-Zayd-Waleed]

14 hours ago, knitty kitty said:

Excessive saliva production is caused by a deficiency in Niacin (vitamin B3).  

I experienced this for years before my Celiac diagnosis.  My dentist always commented on it whenever I visited, but my dentist could not explain why this happened. 

Celiac causes malabsorption which results in malnutrition.  Yes, vitamin deficiencies occur in Celiac Disease.  There may be subclinical deficiencies that progress slowly and the deficiency symptoms are often overlooked until you're really seriously ill. 

I suffered for years with serious nutritional deficiencies before my diagnosis.  My doctors did not recognize the nutritional deficiency symptoms. 

The human body needs eight essential B vitamins and Vitamin C. These are water soluble and must be replenished every day.  The human body cannot store these vitamins for much more than two weeks.  They can be lost quickly with diarrhea.  Since Celiac causes damage to the intestinal villi, absorption of more vitamins can be impaired.  

You may be deficient in more than one B vitamin.  The eight essential B vitamins all work together and depend on each other.  If you are low in one, you're more than likely low in others!!! 

The excessive salivation is caused by Niacin deficiency.  The swollen, red tongue can be caused by deficiencies in Niacin,  Cobalamine (aka Vitamin B12), Riboflavin (B2) and Thiamine (B1).  

The fatigue can be caused by B12, pyridoxine, folate, and iron deficiencies.    Celiac causes malabsorption of minerals like iron, calcium and magnesium and trace minerals.  And the fat soluble vitamins, like Vitamin A and D, are often low, too.

Checking for vitamin and mineral deficiencies is part of follow up care for Celiacs.  

Even though you don't feel very bad eating gluten occasionally, you are still doing damage to yourself.  If you want to be around, functional and competent, for your little children, you need to step up and set a good example for them.  Celiac Disease is genetic.  Your children need to be tested for Celiac as well.  

Please get checked for nutritional deficiencies.  Consider supplementing the B Complex vitamins. 

Please take Celiac Disease seriously.  Please don't take the importance of nutrition lightly.  Read, research, learn about nutrition.  Arm yourself with knowledge.  Knowledge is power.

You are doing damage every time you cheat.  Even though you can't feel it, yet, the damage is happening and there will be long term consequences.  I speak from experience.  

Hope this helps.

 

 

Thank you so much for taking the time to respond. You are absolutely right and I need to hold myself more accountable and stop with the excuses. I keep telling myself maybe I’m not celiac because I went over a year without eating gluten and the only vitamin that was low was iron. My vitamin b was either 290 or 390 but they consider that normal.  I had blood test and a biopsy. Even when the doctor was doing the endoscopy and colonoscopy he didn’t think I had it but the biopsy came back and said that I did. Thanks again for giving me all that information and I will be looking into it more. 

[MisterSeth]

B complex doesn't show up on the tests and subclinical deficiencies are common with electrolytes. potassium is what your body uses to diffuse most of its fluid, so if something is dry that should be wet or vice versa you're probably not eating enough fruits and veggies

[Om-Zayd-Waleed]

Thank you. I’ll try getting more veggies and fruits in my diet.