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Test And Doctor

FairySprinkle

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FairySprinkle Rookie
FairySprinkle
Posted

Hi, how do I find a doctor who can test for gluten levels? Can a family doctor do this or does it have to be a specific specialist like an allergist doctor?

Also, how is this test done? Do they do a blood work and inside your butt?

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Guest Kalynn
Guest Kalynn
Posted
Hi, how do I find a doctor who can test for gluten levels? Can a family doctor do this or does it have to be a specific specialist like an allergist doctor?

Also, how is this test done? Do they do a blood work and inside your butt?

I don't know about all PCPs, but mine sent me to a GI doc and he ordered the blood test. I never had the colonoscopy done. I haven't found many (and believe me, I've seen many over the past year) docs that will readily admit that what you have is celiac disease or gluten intolerance.

I believe Enterolabs will allow you order your own tests. They have a website.

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Oddly, because I have neurological damage from gluten, I was referred to a GI doc by my vitreoretinal surgeon! The GI doc was fantastic -- he said, let's do the bloodwork today. Do you want to know for sure if it's celiac? I said "yes" -- he said, then let's do the biopsy on Monday. (This was Thursday). It was all a piece of cake. Good luck to you. . . . Lynne

slpinsd Contributor
slpinsd
Posted

FairySprinkle: Where do you live?

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Louisville, KY -- if you live anywhere close, I would highly recommend this practice. My MD's name was Martin Mark. They have on staff a celiac specialist, Dr. Adler, who read and re-read my biopsies and bloodwork. They are awesome. BTW: Biopsies for celiac are down down your throat. They give you liquid to numb the back of your throat, give you some meds to make you sleepy, and a bite guard in your mouth. They thread the tub down your throat, through your stomach, and into your small intestine. My MD took 4 biopsy samples from the small intestine. I did, though, have a colonoscopy the same day, because I had some DEFINITE changes from the usual. I had IBS for the majority of my life, then simply stopped going. Really. Like once every 6-8 days was good. So they did the colonoscopy. I told someone on another thread -- if you have to have both, be advised: They do NOT think it's funny if you ask them that, if they're going to use the same tube, will the put it down your throat first. . . . Lynne

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      By trents · Posted

      If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
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      Negative biopsy and seeking doctor recs in Los Angeles

      By englishbunny · Posted

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    • trents
      Negative biopsy and seeking doctor recs in Los Angeles

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      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      Negative biopsy and seeking doctor recs in Los Angeles

      By englishbunny · Posted

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    • trents
      Oats gluten free?

      By trents · Posted

      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
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