Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird symptoms, possibly caused by dairy?


Ariadne100

Recommended Posts

Ariadne100 Rookie

I used to be vegan and gluten free but had problems with pains in my arms, exhaustion and low blood pressure so I re-introduced dairy back into my diet, just eggs and yoghurt so far. (I can't eat gluten because it gives me hives, diarrhoea, migraines and a swollen stomach).

I've noticed that since re-introducing dairy I've had a return of a few symptoms I remember getting when I used to eat dairy before, but I assumed they were gluten symptoms because I went vegan and gluten free around the same time.

The symptoms are:

- A full slightly pressurised feeling in my head

- Foggy head

- Feeling drowsy, lethargic, sluggish and unmotivated

- a fairly low level headache for three days with some migraine symptoms like everything seeming too bright

- Slightly swollen eyes

- A clicking noise behind my nose

- Stiff clicky jaw

These were some of the symptoms that lead to me originally discovering I was gluten intolerant because I was sent for various tests. 

I tried not to connect it to eating dairy again because if I can't eat dairy and gluten it really limits what I can eat and makes it harder to get the right nutrients. But now I'm thinking it probably is the cause of the above since I'm currently fully gluten free.

Does anyone else get these symptoms when eating dairy? I'll try cutting them out again with a food diary to see if they are the cause.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Many celiacs are also dairy intolerant and soy intolerant. Very common. 

Wheatwacked Veteran

My dairy intolerance resolved after I started eating homemade fermented pickles. Our bodies can make lactase, but not in sufficient quantity. The lactobacillus that you reintroduce to your gut biome picks up the slack. Note: look for salt fermented pickles, olives and sauerkrauts. Soy sauce is mostly wheat.   

knitty kitty Grand Master

Hi all!  

It's the casein in the dairy!  Parts of the casein molecules resemble parts of the gluten molecules and the body reacts the same as when exposed to gluten.  

Read this neat-O experiment done on volunteer Celiacs.....

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/#!po=26.3889

Those symptoms listed sound like a histamine intolerance.  Look into Mast Cell Activation Syndrome.  Basically you release LOTS of histamine when you're exposed to your triggers.  So, you need to calm your system down and get rid of the histamine.  

Antihistamines help, you know that.  But, Vitamin B12 breaks down histamine with B6 (pyridoxine), folate, copper, and Vitamin C.  Get checked for deficiencies.  Up your vitamin dense foods. Eat more liver!  

And eating a low histamine diet for a while helps immensely.  (Eggs are a high histamine food.)

Here's an article about Histamine Intolerance....

https://igennus.com/blogs/practitioner-blog/managing-histamine-intolerance

Small Intestinal Bacterial Overgrowth (SIBO) can worsen inflammation and bloating.  Wheatwacked is correct about the pickles helping repopulate with good bacteria.  

Hope this helps!

 

 

 

Wheatwacked Veteran
Quote

The possibility remains that patients with celiac disease are sensitized to a broad range of dietary proteins. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/#!po=26.3889

Once the primary cause is removed (gluten) it will take time for the digestive system to return to normal.

Ariadne100 Rookie

Thanks everyone. I've cut down on the diary with a view to cutting it out again probably. The full feeling in my head, swollen eyes, clicky jaw as well as blocked nose and sneezing (which I forgot to mention initially) have all calmed down since reducing it. I guess I'll just have to be a pescatarian who doesn't eat dairy by the looks of it.

It's me Newbie
On 3/3/2020 at 11:08 PM, Ariadne100 said:

I used to be vegan and gluten free but had problems with pains in my arms, exhaustion and low blood pressure so I re-introduced dairy back into my diet, just eggs and yoghurt so far. (I can't eat gluten because it gives me hives, diarrhoea, migraines and a swollen stomach).

I've noticed that since re-introducing dairy I've had a return of a few symptoms I remember getting when I used to eat dairy before, but I assumed they were gluten symptoms because I went vegan and gluten free around the same time.

The symptoms are:

- A full slightly pressurised feeling in my head

- Foggy head

- Feeling drowsy, lethargic, sluggish and unmotivated

- a fairly low level headache for three days with some migraine symptoms like everything seeming too bright

- Slightly swollen eyes

- A clicking noise behind my nose

- Stiff clicky jaw

These were some of the symptoms that lead to me originally discovering I was gluten intolerant because I was sent for various tests. 

I tried not to connect it to eating dairy again because if I can't eat dairy and gluten it really limits what I can eat and makes it harder to get the right nutrients. But now I'm thinking it probably is the cause of the above since I'm currently fully gluten free.

Does anyone else get these symptoms when eating dairy? I'll try cutting them out again with a food diary to see if they are the cause.

It would be wise to stay away from all foods that can even 'crossreact' with gluten. My problems persisted after quetting gluten (because I replaced it with a lot of rice, potatoes, milkproducts, etc, which also caused the same problems).

You can use the graph for the foods you can start to eliminate beside gluten. 

Hope it helps!

Gluten-Cross-Reactivity-How-your-body-can-still-think-you’re-eating-gluten-even-after-giving-it-up-2-800x600.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

It's me, where does that graph come from? Does it represent a personal profile of reactions/sensitivities or is it a generic tool you found somewhere?

I note that instant coffee is a mild offender. Is that in comparison to non instant coffee? If so, that strikes me as interesting.

cyclinglady Grand Master
(edited)
5 hours ago, It's me said:

It would be wise to stay away from all foods that can even 'crossreact' with gluten. My problems persisted after quetting gluten (because I replaced it with a lot of rice, potatoes, milkproducts, etc, which also caused the same problems).

You can use the graph for the foods you can start to eliminate beside gluten. 

Hope it helps!

Gluten-Cross-Reactivity-How-your-body-can-still-think-you’re-eating-gluten-even-after-giving-it-up-2-800x600.webp

False.  Cross reactions with gluten is untrue.  Look what the celiac Disease research Center at the University of Chicago has to say:

https://www.cureceliacdisease.org/faq/whats-with-all-the-talk-about-certain-types-of-food-causing-cross-reactivity/

I am a healed celiac (repeated endoscopy) and I consume many of those foods on the chart.   Living proof.  

Now...it is possible to have individual intolerances to foods.  Like I can not tolerate Xanthan Gum, nuts, or garlic/onions.  Those foods cause GI discomfort  and can trigger my Rosacea, but do not cause small intestinal damage.  

This gluten cross-reactivity internet myth has been around a long time.  Watch out for blogs and scams from unreliable sources.  Cross-reactivity can occur with foods, but it is an allergic reaction (IgE) vs. autoimmune.  For example, if you have a banana allergy, you can be allergic to latex.  

I used to be lactose intolerant, but that resolved once I went gluten free and my villi healed.  Luckily, genetically, I am not lactose intolerant unlike a huge chunk of the world’s population.  

 

Edited by cyclinglady
Wheatwacked Veteran
Quote

Interestingly, intolerance is often seen in individuals with pre-existing gastrointestinal disorders such as IBD, IBS, coeliac or SIBO, conditions associated either with poor barrier function, dysregulated gut microbiota diversity (as a consequence of antibiotic use, for example) or gut-associated inflammation, all of which can negatively impact on DAO activity.  https://igennus.com/blogs/practitioner-blog/managing-histamine-intolerance

 

47 minutes ago, cyclinglady said:

I am a healed celiac (repeated endoscopy) and I consume many of those foods on the chart.   Living proof.

Ariadne100 your symptoms are not weird, just side effects of the damage done by a diet that includes wheat. As you heal you'll likely be able to reintroduce those foods. In the meantime ensure you are getting a minimum 100% or more of all the essential vitamins and minerals, through food or supplement. It will speed your recovery.  Don't forget choline, calcium and potassium and iodine. Most Americans are either deficient or borderline. And avoid synthetic A, E, and folic acid as much as possible.  As long as your gut is not working right you are not absorbing as much as you think. Be patient and kind to your gut.?

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,217
    • Most Online (within 30 mins)
      7,748

    Tiara
    Newest Member
    Tiara
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Milaryrnn, your post is confusing. First, your celiac disease antibody testing is negative. By any chance had you already been on a gluten free diet before the blood draw for these tests was done? That would result in negative antibody testing even if you had celiac disease. Or, had you previously been diagnosed with celiac disease and had the antibody testing done to check for compliance with the gluten free diet? Second, DNA testing cannot be used to confirm celiac disease. 40% of the general population has the genetic potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. It takes both the genetic potential and some triggering biological stress event in order to develop active celiac disease. Otherwise, the genes remain inactive. High lipase levels would indicate some problem with your pancreas. 
    • More2Learn
      Thanks, yes, I've gone back and forth.  There is a lot of autoimmune disease in my family, so primarily I was thinking a real diagnosis might be helpful for other family members -- especially as I have two young biological nephews.  I feel like I am at a crossroads, where if I'm going to test now would be the time, since I've been in a less-than-perfect eating period.  I'm either going to just going to use what I've learned in these last few months to purposely never cheat again (obviously there is the accidental glutening situations) or test first, and then do that.  I don't need an official diagnosis so much that if I'm doing well I'm going to sabotage that by then starting to eat gluten again. I'm so glad you said this.  Even from what I've read so far, it makes sense to me that this is a misconception.  But growing up with all kinds of allergies, I can see how, as for the general population it's just easier for everyone to simplify it down to a type of "allergy," people would assume this.  It's just how most people look at allergies and diets and gluten avoidance has been painted as both.  I even see it in my journey to date, when I say I want a gluten free selection at a restaurant and I am asked "is it an allergy?" and it is so much easier just to say yes (even if the answer is actually well, no, it's autoimmune).  Because the "yes" answer is the "this is serious" answer.
    • Milarynn
      Hello. I recently had an endo/colonoscopy and my GI Dr found lymphocytes in my stomach and small intestine. My TTG Ab, IgA was <2 (normal), GLIADIN (DEAMINATED) IGA at 5 (negative), and IgA at 237 (normal). However, a Lipase test revealed my levels were through the roof at 201, 3x above normal. My GI doctor ordered a dna test to confirm Celiac Disease. An A1C test was also done and I am pre-diabetic. When I got home from work today, I started to feel sever cramping in my jaw muscles. I started to have jaw muscle cramps in the the last year. Not to mention, even with good oral hygiene, I have rapidly developed periodontal disease. I did have a small amount of gluten, thinking it wouldn’t harm much but I was sadly mistaken. DNA results should be back in 2 weeks. 
    • kopiq
      I also have food particles left on toiet paper when i wipe and my stool is light yellow not absorbing fats. I urinate about 15 times a day and have very sticky snot,dry throat.
    • kopiq
      Hi all, I was diagnosed by blood work about 2 months ago and have since went on a strict gluten free diet. I have an endoscopy in January and the GI dr said nothing about staying on gluten for it; hes aware i went no gluten. starting to heal symptoms include: (this is huge) sensation coming back to genitals and when having a bowl movement. everything has been numb for a long time down there including lower belly button area. good size (not abnormal) bowel movements once a day or every two days. small dot size wart just fell off my finger that was there for years. have not broke out with a cold sore this winter (every winter prior for years i would develop a cold sore on my lip) Ongoing issues I don't sweat. not from my hands, or armpits or feet. I do not get butterflys in stomach. my hands have been so dry for years ive been using a crack cream as they crack and bleed very severely in the fall and winter.  (since going gluten free ive not used crack cream but they are still very very dry and chapped/flaky, no sweat or moisture in palms of hands at all. I dont crave food. i have no cravings at all, not for pizza, ice cream , nothing. my cravings are dead. smell of foods kinda make me hungry, but my stomach blocks it. pins needles in feet get weak legs standing up from sitting and dizzy, things almost turn black. i cannot tolerate veggies or vitamins. Iam vitamin D deficient according to my Dr and Ive tried vitamin D pills. they give me a massive migraine for 8 hours and upset my stomach. the heat from the direct sun make me extremely tired to the point of wanting to pass out. again i don't sweat. broccoli gives me a migraine headache as well. mushrooms, bell peppers burn my stomach. fruits burn my stomach, fats (peanut butter, any oil or fat from meats make me sick to my stomach for a couple hours or longer. salt and pepper burns my stomach. all these issues cause pain at my belly button area and expand to the rest of my upper stomach and sides the more i ingest through out the day. I currently eat bland basmati rice, chicken, pork chops (fat trim), boiled russet potatoes no skin for three meals a day. my snacks are gluten free ground buckwheat flour pancakes. (just water, no oil , salt, dairy.) how am i to get vitamins in my system if i cannot tolerate them in my stomach? i mentioned epidermal vitamin patchs but dr said no. why cant i stand the heat from the sun ? why cant i sweat? thanks for any info.                
×
×
  • Create New...