Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Did It Rtake You To Recover After Diagnosis?

sillyyak

Recommended Posts

sillyyak Enthusiast
sillyyak
Posted

I called my doctor today bevause I have nt been feeling well and he seemed to think it was not a good sign that I still have symptoms. It is been about 3 months How long did it take you?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nikki-uk Enthusiast
nikki-uk
Posted

My husband has been gluten-free now for 16 months and he's still recovering,-admittedly he was very ill by the time of diagnosis though.

It can take some adults up to 2 years for their gut to heal and the villi to fully grow back.

After 6 months gluten-free my husband had seen no improvement in his health at all,and unfortunately a biopsy revealed that there was only very slight recovery of his villi.

As my hubbie was also seriously underweight the doc decided to put him on steroids to help his gut recover,and also help him with his appetite.

Once on the steroids for a while he started to get his energy back,appetite returned and he generally started to feel better.

Another biopsy at 1yr gluten-free revealed that he is healing,but for some reason alot slower than they'd hope.

He's got a way to go,but it's a slow process!

I guess for some,they are lucky in that they feel almost immediatley better on a gluten-free diet.

But unfortunately for some it just takes longer before they feel the benefit.

I believe my hubbie has had this disease since childhood,but was not diagnosed until he was 40 yrs old-so there's alot of damage to undo!

Good luck :) !

loraleena Contributor
loraleena
Posted

It can take a lot longer than that. I am at 6 months and am doing much better, but still have days where I just feel like sh*t!. Also, you may want to think about possibilities of other food intolerances especially dairy. Often this goes along with celiac. Good luck.

AmandaD Community Regular
AmandaD
Posted

I was diagnosed by biospy Sept. 5 and while things seem to be better, I still have setbacks on some days. And I know for a fact that at three months post-dx I was just STARTING to feel like things were change. Think - really it's only been a matter of weeks.

AmandaD

Sillyak - Did you have the ttg test and endoscopy to determine it was celiac?

I called my doctor today bevause I have nt been feeling well and he seemed to think it was not a good sign that I still have symptoms. It is been about 3 months How long did it take you?
jerseyangel Proficient
jerseyangel
Posted

I have been gluten-free for 8 months now--I felt better after 4 months, but I still get tired easily. I have a lot of reflux and upper GI gas that has actually gotten worse over the last 2 months. I am reacting to all grains now, as well. I don't know if all of this is my body's way of straighening itself around after years of gluten exposure or what. I have read that it can take 6 months to 2 years, and in some cases, longer. In my case, I was sick for about 20 years. That may explain the up and down nature of my recovery. On a positive note, the D is gone and in that respect, I'm normal for the first time since I can remember.

julie5914 Contributor
julie5914
Posted

It's been six months, and though I feel better than I did six months ago, I still have a long way to go. My labs were redone, and they were still a long way off from normal. I will try again in another 6 months. I had to cut out dairy as well to start really feeling better with digestive stuff. I still get muscle aches, tired easily, etc.

mouse Enthusiast
mouse
Posted

It has been two years for me (today is my diagnosis anniversary). In the beginning I started to improve right away and I thought that I would keep improving at that same rapid pace. It did not happen that way. But, I was sick for about 30 years before the fast downward slide. I still am having a hard time with the energy. Today is such a day and I have to go get groceries and do the wash. I took all my vitamins this morning (as usual) and nothing. So, I then just took a gluten-free energy tea pill that I hope kicks in soon. I think the younger you are the quicker the recovery time.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sillyyak Enthusiast
sillyyak
Posted
  • Author

Yes I had the blood tests and endoscoy confirming Celiac. In fact, this was the last test they ran on me after repeatedly telling me "all tests are normal. we cannot find anything". Unbeleiveable.

I go back for more blood work next week and then an endocopsy followup again soon.

Jen H Contributor
Jen H
Posted

Are we supposed to have an endoscopy repeated after a certain period of time to see if we are healing or do we base our healing on our success with the diet? Nikki-uk, you mentioned that your husband had repeat endoscopies. Is that true in the U.S. too?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,883
    • Most Online (within 30 mins)
      7,748
    Doug1229
    Newest Member
    Doug1229
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Doug1229
      Absolutel liquor

      By Doug1229 · Posted

      All liquor that has been distilled are gluten-free because the liquor is captured from evaporation. Gluten is a heavy protein that will not evaporate make it safe for all celiac’s. cheers!
    • Doug1229
      Ground meat absolutely full of gluten?

      By Doug1229 · Posted

      Ground meats can contain flavorings and fillers. You must look for the gluten-free symbol on the packaging. I use Jennie-O brands which are marked gluten-free.
    • Wheatwacked
      Gluten Free ADHD medications

      By Wheatwacked · Posted

      I take Clonidine for blood pressure control.  It is the only one that did not debiltate me.  It also helps with my ADD.  Doctors always turned me down when I requested Ritalin (I am an adult) so it turned out for the best that I reacted badly to all the different BP meds they tried. Originally Clonidine was developed for ADHD adolescents that could not tolerate Ritalin.  
    • Wheatwacked
      9 year old- questionable results

      By Wheatwacked · Posted

      You should also have her checked for vitamin deficiencies.   "Iodine's presence in the diet can contribute positively to hair strength and elasticity by maintaining hair follicle cycling and supporting the synthesis of hair shaft components like keratin. Keratin is strong and won't dissolve in diluted acids, alkalines, solvents, or water" "Keratosis pilaris is a benign skin condition characterized by small bumps around hair follicles. It is caused by excess keratin, a protein that forms hair, nails, and skin. Iodine is not directly related to keratosis pilaris, but certain foods can help improve it" It could be deficiency in iodine may be causing the keratosis Polaris.  Insufficient iodine intake affects healing, intellegence skin and nails. The average intake of iodine fell 50% from 1970 to now.  A Medium Urinary Iodine Concentration test will indicate intake.  TSH and T4 will not show iodine intake deficiency until damage is being done. Most newly diagnosed Celiac Disease and other autoimmune diseases are deficient in vitamin D when diagnosed.  Other than bone growth, vitamin D is essential for mental health and the immune system.
    • gregoryC
      Celebrity Cruise for Gluten Free

      By gregoryC · Posted

      Just finished my second celebrity cruise. My first was on one of their oldest ships, it was awesome! Now we have sailed on the edge class. Wow! Not only do they have so many gluten-free options but the selection is mind blowing! Any given day you will have between 5 to 7 different gluten-free cakes to try. Yes that is right, one day at the coffee shop I had to choose between 5 gluten-free cakes not including the several puddings on display. So they gave me a small piece of each. 2 were great, 2 were just good, and 1 I did not enjoy. But never have I had the tough decision of which cake to eat?  These selections are from their normal options available for all guest. In the main dining room they always surprised me with some awesome desserts.  In my opinion the best pizza was on the Millennium class and best buffet on the Edge class. Although these two ship vary in size they are both consistent and serving high quality food from the main dinning room. The edge class gives you 4 “main” dining rooms (all included). I was unsure how this would work with my gluten-free diet? It worked great! I was able to order or see the next night’s menu for each of the four dinning venues finding that very little to no modifications needed to be made due to their extensive gluten free options.  The Millennium and Edge class ships provide the best gluten-free options from any of the cruise lines I have sailed with. You will find a larger selection and options on the edge class ships, however you will not be disappointed with the smaller Millennium class. Which is still my favorite cruise ship to date.   
×
×
  • Create New...