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Cant seem to stop eating gluten and I dont know what to do.

Kirstyn Craig
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Kirstyn Craig Newbie
Kirstyn Craig
Posted

I'm kind of at wits end here. 

I was diagnosed with celiac disease 4 years ago, I was 16, having stomach issues, etc. 

At first I didnt take the diet seriously AT ALL. like I just didnt care. I'm now rearing 20, and over the past 2 years or so I've been on and off and then on and off again the celiac diet. Sometimes I do great! I always fail though. I always just get a craving and i give in. i dont know what to do! I know I want to stop eating it. I have gained weight and I'm just MISERABLE. but I always seem to go back to it. 

Does anyone have any advice? I'm desperate. 

I live in a house full of gluten eaters, btw. 

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Ennis-TX Grand Master
Ennis-TX
Posted
(edited)

Getting off gluten is like getting off drugs, it literally even has withdrawal symtoms. Like someone trying to get off drugs the same approach of having to live in a place absent of said temptations is best if your having issues.

Judging by the phasing are you wanting to hear worse case issues and get a scared straight approach? We have had members die of cancer, I think it was in their intestines, we have had one who had their intestines rupture (Someone might find that post and share it), many develop other Auto Immune diseases like UC, Crohns, etc. Most actually end up getting food intolerance issues and food sensitivities which can limit your diet more, by example you can see my list in my profile signature of foods I can not have. Common foods like oats, corn, dairy, soy, peanuts, garlic, onions, and even nightshades like tomatoes and potatoes.
I also ended up with ataxia where my immune system attacked my nervous system in response to gluten.....this developed after years of undiagnosed celiac. End result was brain damage that made most of my college education useless, nerve damage that left me for years without heat sensitivity and very little pain response in my hands and feet, and damage in my spinal cord connections to my pancreas so I can not eat carbs anymore like a diabetic and have to take pig pancreas enzymes with every meal.

 

Edited by Ennis_TX
Kirstyn Craig Newbie
Kirstyn Craig
Posted
  • Author
17 minutes ago, Ennis_TX said:

Getting off gluten is like getting off drugs, it literally even has withdrawal symtoms. Like someone trying to get off drugs the same approach of having to live in a place absent of said temptations is best if your having issues.

Judging by the phasing are you wanting to hear worse case issues and get a scared straight approach? We have had members die of cancer, I think it was in their intestines, we have had one who had their intestines rupture (Someone might find that post and share it), many develop other Auto Immune diseases like UC, Crohns, etc. Most actually end up getting food intolerance issues and food sensitivities which can limit your diet more, by example you can see my list in my profile signature of foods I can not have. Common foods like oats, corn, dairy, soy, peanuts, garlic, onions, and even nightshades like tomatoes and potatoes.
I also ended up with ataxia where my immune system attacked my nervous system in response to gluten.....this developed after years of diagnosed celiac. End result was brain damage that made most of my college education useless, nerve damage that left me for years without heat sensitivity and very little pain response in my hands and feet, and damage in my spinal cord connections to my pancreas so I can not eat carbs anymore like a diabetic and have to take pig pancreas enzymes with every meal.

 

I am so, so sorry to hear all of that. I didnt know that continued exposure to gluten could cause cancer. Cancer already runs in my family, so that is actually terrifying. Nor did I know about any neurological complication possibilities. You've given me a lot to reconsider and I thank you for that. I'm lucky enough that my boyfriend (whom I'm moving in with in the next couple months and have every intention to marry) is more than willing to help me with my gluten issues and intake, but I'm planning on once again hoping on the wagon tomorrow with a fresh grocery shopping visit. I appreciate you sharing your story with me. 

  • 2 weeks later...
Zenith Explorer
Zenith
Posted
On ‎3‎/‎7‎/‎2020 at 12:21 PM, Ennis_TX said:

Getting off gluten is like getting off drugs, it literally even has withdrawal symtoms. Like someone trying to get off drugs the same approach of having to live in a place absent of said temptations is best if your having issues.

Judging by the phasing are you wanting to hear worse case issues and get a scared straight approach? We have had members die of cancer, I think it was in their intestines, we have had one who had their intestines rupture (Someone might find that post and share it), many develop other Auto Immune diseases like UC, Crohns, etc. Most actually end up getting food intolerance issues and food sensitivities which can limit your diet more, by example you can see my list in my profile signature of foods I can not have. Common foods like oats, corn, dairy, soy, peanuts, garlic, onions, and even nightshades like tomatoes and potatoes.
I also ended up with ataxia where my immune system attacked my nervous system in response to gluten.....this developed after years of undiagnosed celiac. End result was brain damage that made most of my college education useless, nerve damage that left me for years without heat sensitivity and very little pain response in my hands and feet, and damage in my spinal cord connections to my pancreas so I can not eat carbs anymore like a diabetic and have to take pig pancreas enzymes with every meal.

 

Thanks for that info. Well I guess like YOU, I get ataxia too where I shake so bad that it is like METH withdrawals or something. It lasts for like 30 minutes. I am glad you are well now. The  O P apparently is NOT having horrid stomach pains yet upon eating gluten. Maybe she will get that then she will stop. Wow you know of people on here who actually died? I totally believe these disease can cause death.

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