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    • trents
      Let me "ditto" Cristiana's welcome to the forum, @DayaInTheSun! Many in this online family can identify with your struggle. With all of your food sensitivity/intolerance issues you probably should research MCAS (Mast Cell Activation Syndrome) and consider a low histamine diet.
    • trents
      Most recent guidelines recommend at least 10g of gluten daily for at least 2 weeks daily leading up to the day of the test. 10g of gluten is roughly the amount found in 4-6 slices of wheat bread. Personally, to be sure you will produce valid test results I would extend the "gluten trial" period from two weeks to four weeks.
    • Celiacmanbill
      the magic ones are often not grown on a gluten free grain but as for others I've only ever seen Maitake and one other type grown on a gluten grain
    • cristiana
      Hi @DayaInTheSun Welcome to the forum! I've been a Mod on this forum for some years now and your feelings are shared by many of us.    I am not sure how long you have been diagnosed, but in my own case I do find that time has helped.  It was pretty exhausting at first trying to explain to friends but they now have a pretty good grasp of coeliac disease and what it entails, either because they've hung around me long enough or have got to know other coeliacs who have educated them.  Also, two of my close friends are coeliacs and another has become allergic to yeast and with that has developed a shed load of other intolerances, so we either cook for each other or tend to socialise over coffee or just a visit to the pub, or meet for a picnic. I now have found a few trusted restaurants and pubs where I can relax and enjoy a meal.  But I would never risk this without a bit of research first, looking at online reviews and preferably asking friends for their personal recommendations. If I am not sure, I don't take any chances and eat before I go out, just saying to the staff, "I'm not eating, but I'll order a drink" without any explanation.  I actually find that much easier than saying, "I'm a coeliac" because they then try to persuade you to try their gluten free menu which can be a bit hit and miss.  I hope others will chime in but I just wanted to reply to say you are certainly not alone in this.  I do hope that over Christmas you will find a few treats you can eat at home. Cristiana    
    • DayaInTheSun
      Anyone else feel this way? Not only do I have celiac disease but a few food intolerances too. I can’t do dairy, soy, nuts (nuts is an actual allergy lip swelling need an EpiPen) , or eggs. I get stomach pain when I eat seeds, dairy gives me crippling pain, I only recently put together the hives when I eat  soy.  Family wants to go out and eat tells me the restaurant is gluten free but the gluten free bread has eggs or soy or they use the same prepping area as food with gluten in it. I’ve been slowly eliminating food trying to figure what my triggers were. It’s been 6 months since I’ve last had hives and joint pain after cutting out all the foods I listed above. But I can’t help but feel like a burden to everyone. They always heavily sigh when I refuse to eat from restaurants.  They encourage me to eat out but I’m only now starting to physically feel better. I want to give in so I won’t be such a burden. And ruin other people’s fun.  Going out on dates is a nightmare trying to explain to them what I can and cannot have they pretend to understand but I feel like it’s a turn off. 
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