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1 year old celiac suspicion! Thought?

MommyMel
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MommyMel Newbie
MommyMel
Posted

So my daughter is 1 (in a week) and I have suspected a gluten intolerance at the least but I’m leaning towards celiac. She sleeps sooooo much (12-13 hours at night plus two naps (minimum 2 hours each), her tummy often, if not always appears bloated, she poops soooo much (4-5 times a day) and her poops are always really loose (sometimes watery and mucous like) and more often then not it looks like she ate a freaking sand castle and she freaks out when you try to change her bum... ever since she really started eating more solids with gluten in them. 
I would like to have her tested but have no idea where to even start. We don’t have a family doctor where we live (next to impossible to find one) and would need to go to a walk in clinic. Any insight on her symptoms or where I would even begin to explore having her tested? What tests do I ask the doctor for? 
Thank you for all that take the time to respond! 
 

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GFinDC Veteran
GFinDC
Posted

Hi, They usually do a test called a celiac disease panel.

It includes blood antibody tests like DGP IgA, DGP IgG  EMA and serum IgA.

There's a restaurant called Tuckers in Armstrong that serves gluten-free foods.  They might be able to suggest a doctor to go to.

Zenith Explorer
Zenith
Posted
(edited)
On ‎3‎/‎10‎/‎2020 at 9:40 PM, MommyMel said:

So my daughter is 1 (in a week) and I have suspected a gluten intolerance at the least but I’m leaning towards celiac. She sleeps sooooo much (12-13 hours at night plus two naps (minimum 2 hours each), her tummy often, if not always appears bloated, she poops soooo much (4-5 times a day) and her poops are always really loose (sometimes watery and mucous like) and more often then not it looks like she ate a freaking sand castle and she freaks out when you try to change her bum... ever since she really started eating more solids with gluten in them. 
I would like to have her tested but have no idea where to even start. We don’t have a family doctor where we live (next to impossible to find one) and would need to go to a walk in clinic. Any insight on her symptoms or where I would even begin to explore having her tested? What tests do I ask the doctor for? 
Thank you for all that take the time to respond! 
 

Will you just get her OFF all gluten FAST  and see if that helps. OMG I can't imagine being so young and being celiac.  All you got to do is have her tested with that saliva hormone panel test,  A1g or something like that. Just buy a kit on AMAZON  or   go to a  N  D  doc and tell her you want that hormone panel that also tests for  celiac gluten protein antibodies. OMG, good luck.  I don't even know what a one year old eats.  Maybe try gluten free oat meal.  OR just one ingredients foods.  Mashed bananas.  I will pray for your little girl.

Edited by Zenith
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cyclinglady Grand Master
cyclinglady
Posted

Here is information about  celiac disease testing that your local clinic can order.  Know that children that young often do not have the antibodies developed for testing.  

https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

In some countries, you can get an over-the-counter test.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2642513/#__sec16title

Getting a diagnosis can be important, especially for children as accommodations must be made for preschool and elementary school.  

I am a mother, so I understand your concern.  You know that something is wrong. Best to have her checked by a doctor or PA as it might NOT be celiac disease.  

 

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