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What Is The Difference Between Celiac & Gluten Intolerance?


skurtz

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skurtz Explorer

What is the difference between celiac & gluten intolerance? And do many people also have a problem with

candida (yeast). Also does lactose intolerance really improve when being on gluten free diet?


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lonewolf Collaborator
What is the difference between celiac & gluten intolerance? And do many people also have a problem with

candida (yeast). Also does lactose intolerance really improve when being on gluten free diet?

I'm probably not going to be much help, since I'm still trying to figure out the difference. I tested negative for the 2 main Celiac genes, so my doctor said that I definitely DON'T have Celiac. But I have symptoms very similar to people here who have been officially diagnosed and have experienced great health improvements with a gluten-free diet. So my doctor said that I am gluten intolerant and stick with the gluten-free diet. Either way, you need to be gluten-free. There has been some discussion on this board in the past that people with true Celiac Disease have damage to the villi and people with gluten intolerance have all the same symptoms without the damage. I don't think anyone knows for sure. I have had problems with candida too and have seen lots of posts from people stating the same. As for the lactose intolerance, I can't tell you because I can't do dairy at all.

Good luck!

zip2play Apprentice
There has been some discussion on this board in the past that people with true Celiac Disease have damage to the villi and people with gluten intolerance have all the same symptoms without the damage.

This is how it was described to me by Dana Korn. I don't have villi damage, but I am certain I am gluten intolerant!

Monica

tiredofdoctors Enthusiast

I have gluten intolerance, but I have "autoimmune cerebellar disease" or they also call it "gluten ataxia". Instead of having celiac symptoms, the antigliadin antibodies cross-react with anti-perkinje cell antibodies which I also produce -- working to destroy the perkinje cells. Unfortunately, they don't regenerate, and they're in the cerebellum of my brain, my retinas and my peripheral nerves.

Guest nini

There is no difference between Celiac and Gluten Intolerance. They are the same thing. Celiac just means that the villi are damaged and can't absorb nutrients. Gluten Intolerance is simply a precursor to Celiac. Some people with Gluten Intolerance will never develop full blown Celiac, but All Celiacs have Gluten Intolerance. I believe I remember the Celiac Expert that spoke at our support group meeting said that she believes that Gluten Intolerance could be early Celiac.

Do you want to wait until your villi are completely gone and your health in shatters before you go gluten free? no, Then technically, does it matter if it's Celiac or Gluten Intolerance? The treatment is the same.

CMCM Rising Star

I swiped this from the Enterolab information section:

WHAT IS THE DIFFERENCE BETWEEN CELIAC SPRUE & GLUTEN SENSITIVITY?

Gluten sensitivity implies that a person's immune system is intolerant of gluten in the diet and is forming antibodies or displaying some other evidence of an inflammatory reaction. When these reactions cause small intestinal damage visible on a biopsy, the syndrome has been called celiac sprue, celiac disease, or gluten sensitive enteropathy. (Nontropical sprue and idiopathic steatorrhea are other terms that have been used for this disorder in the past.) The clinical definition of celiac sprue also usually requires that there is clinical and/or pathologic improvement following a gluten-free diet.

In the past, celiac sprue could only be diagnosed after somebody developed certain symptoms like diarrhea, weight loss, or growth failure in children. A biopsy would be performed and if abnormal and typical of celiac sprue, and if a gluten free diet brought resolution of diarrhea, weight gain, or growth, only then would a diagnosis of celiac sprue be made. However, recent advances in diagnostic screening tests and application of these tests to people at heightened risk or to general populations have allowed detection of celiac sprue, sometimes even before damage to villi has occurred. This latter scenario is often called gluten sensitivity.

CAN I HAVE GLUTEN SENSITIVITY IF SMALL INTESTINAL BIOPSIES ARE NORMAL OR ONLY MINIMALLY ABNORMAL?

Although by definition a normal small bowel biopsy rules out celiac sprue, it does not rule out gluten sensitivity. Although asymptomatic people with gluten sensitivity may have normal or near-normal biopsies, so too may people with symptomatic gluten sensitivity. This has been reported in the medical literature (called "Gluten Sensitivity with minimal Enteropathy" or "Gluten-Sensitive Diarrhea without Celiac Disease". Furthermore, even though such people's intestines appear normal under the microscope, up to one half already have nutrient malabsorption, a major contributor to osteoporosis and malnutrition, attesting to the fact that microscopic analysis of intestinal biopsies is an insensitive way of assessing function and immunologic food sensitivity. However, because there is still a virtually universal reliance on small bowel biopsies to diagnose gluten intolerance, most asymptomatic or symptomatic gluten sensitive people (based on screening tests) will not be diagnosed correctly or be instructed to follow a gluten-free diet even though symptoms may resolve completely.

WHO SHOULD BE SCREENED FOR GLUTEN SENSITIVITY?

Because research has shown that as many as 30% of all Americans may be gluten sensitive, and that 1 in 225 have a severe form of this sensitivity causing the intestinal disease called celiac sprue, a case can be made that everyone in America should be screened for gluten sensitivity. However, there are people with various risk factors or diseases that are at greater risk of developing gluten sensitivity who should undoubtedly be tested.

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    • trents
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    • catnapt
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    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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