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Positive blood but can’t get endoscopy

Hsinos
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Hsinos Newbie
Hsinos
Posted

While trying to figure out why my white blood count, b12 and vit d are consistently low, my dr looked into past celiac test and noticed that one was just barely positive (borderline?) that was done a couple years ago. I have a strong family history of celiac and many symptoms. Because of Covid-19 I will not be able to have an endoscope for many months. My dr said she’s pretty positive I am celiac and to remove gluten from diet now and then reintroduce before I get biopsy.

My concern with that is, what if I can’t get the endoscopy for 6 months or so and my gut heals some and it is missed?

 

Any advice?

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Scott Adams Grand Master
Scott Adams
Posted

You would need to eat gluten daily for at least a couple of months before getting tests for celiac disease, especially a biopsy.  Some experts believe it could take longer for the gut damage to be detectable. 

If it runs in your family, and you've had a "borderline" positive test, do you need a biopsy for you to stay on the diet? Would just going gluten-free and having your symptoms go away not be enough for you to stay on the diet? Do you want higher private health and life insurance rates for the rest of your life (and it may be harder to get either, at least here in the USA)? 

These are just some of the questions you may want to consider before getting an official diagnosis.

Can you share your test results with us? Perhaps they are not so borderline?

ravenwoodglass Mentor
ravenwoodglass
Posted

I agree completely with Scott. The only thing I would add is to have your doctor rerun the panels after 6 months or so. If your antibodies are down and you feeling better you have your diagnosis.

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    • disneyfamilyfive
      Test result insight

      By disneyfamilyfive · Posted

      Thank you for the article Scott. It was very informative.  I didn’t realize I should have been eating a certain amount of gluten prior to the test.  I only eat bread maybe 1x a week, don’t eat cereal.  Pasta occasionally.  I’m sure there is gluten in nearly everything, so I’ve had gluten but no idea how much, but definitely not slices of bread. Not sure how much or how little that could affect my results.  My doctor didn’t mention anything about eating more gluten or eating bread. 
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      Test result insight

      By Scott Adams · Posted

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      Test result insight

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    • Sicilygirl
      fed up italian

      By Sicilygirl · Posted

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    • trents
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      By trents · Posted

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