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Mucus


Charisma-1630

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Charisma-1630 Newbie

Hi,

I'm looking for advice as my anxiety is going through the roof..

I was diagnosed as "early stage coeliac" in septemberish last year.. It was picked up during a routine diabetic blood test.. At this point I had absolutely no symptoms so wouldn't have known otherwise. I had a endoscopy and they came back saying there was only slight damage "so we will treat it as coeliacs".... I was sent away and had my next appointment booked from April. My appointment has been cancelled due to corona and I have no idea who I can ask, but I have started getting a lot of clear stool mucus and tummy pain over the past couple of weeks. I haven't eaten any gluten in that time. (I have eaten gluten before and not had this reaction). Does anyone know what this could be? I cant stop thinking to myself that it might be the big C and convincing myself of the worst :(

Help!! I have been very stressed but I have never had this reaction to stress before so I don't think its from that.


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Ennis-TX Grand Master

Well good news, Covid is a respiratory virus....it will not cause stool changes like that. Your immune system will be stronger once off gluten when celiac, your immune system has probably been actively fighting and destroying your intestines for months or years. Many celiacs start seeing changes in their immune system and reactions to gluten and other foods once they start the gluten free diet. The mucus could be a sign of healing, or reintroduction of slight Cross Contamination (CC) as your immune system can now hit back harder.

I would suggest checking the Newbie 101 section and read up about CC and how to clean out your kitchen and find and fix safe meals.
CC can come from crumbs in condiment jars, scratched pots/pans, cutting boards, colanders, wooden cooking utensils previously used with gluten foods, any flour used in the house will go air borne and get on stuff and can be inhaled where it can get stuck in your nose and drain into your stomach. It can also take awhile to learn to read labels and learn which foods are safe. We normally suggest a whole foods only diet and avoid processed foods regardless for awhile, also some celiacs react to all oats regardless so you have to avoid them and try certified ones say 6 months or so later and see how you react.

Many of us find that we get other issues from other foods referred to as a food sensitivity or a intolerance, dairy is a major one as the villi that the disease destroys produce the enzymes to break them down and this can go away after healing 6-12 months later. But other common ones are soy, oats, corn, legumes, nightshades (tomatoes, peppers, potatoes and eggplant), garlic, and onions. So you might start keeping a food diary and recording what you eat, and any issues such has BMs, Gas, Gerd, bloating, etc.

Scott Adams Grand Master

Here is the Newbie link just in case:

Also, it is important for you to know, should you decide that you require a formal celiac disease diagnosis, which not everyone does, that you must keep eating gluten daily until all testing has been completed, otherwise you may end up with false negative results.

Not to freak you out, but a small percentage of covid-19 patients do have gastrointestinal symptoms, however, it still would end up with a fever, cough, and other more classic symptoms. It's doubtful you have covid-19, and even if you did it would not be time to panic, as most people do recover without major issues.

ravenwoodglass Mentor

By 'the big C' are you worried this is a sign of colon cancer? While they have cancelled your follow-up appointment you might still want to try calling and asking to speak to either a nurse or the doctor. In myself mucus is a sign that I have eaten something I don't tolerate. It can be your bodies reaction to consuming something to which you are intolerant. The mucus can form to try and protect your intestine. The food and symptom diary mentioned is good idea.

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    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Scott Adams
      Have you been able to see a doctor or rheumatologist about this? Inflammation like that could point to something like celiac complications, an autoimmune response, or even reactive arthritis, and you deserve relief and answers. In the meantime, gentle heat/cold therapy or anti-inflammatory foods and over the counter meds might help a little, but I hope you can get proper medical support soon. 
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    • Nikki03
      This is what the exact results say…  Immunoglobulin A Qn -high 419 off chart  Deamidated Gliadin ABS, iga -2 (normal range)  T-transglutaminase (ttg) igg- 5 (normal range) T- transglutaminase (ttg) iga -2 (normal range) I was still consuming gluten when this test was done with tons of symptoms such as sick to stomach and throwing up daily no matter what I eat, random rashes and itching, painful joints, no energy and fatigue, gas, constapation, bloating, just overall unwell.  
    • Nikki03
      This is what the exact results say…  Immunoglobulin A Qn -high 419 off chart  Deamidated Gliadin ABS, iga -2 T-transglutaminase (ttg) igg- 5  T- transglutaminase (ttg) iga -2  I was still consuming gluten when this test was done with tons of symptoms such as sick to stomach and throwing up daily no matter what I eat, random rashes and itching, painful joints, no energy and fatigue, gas, constapation, bloating, just overall unwell.  
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