Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Microsensitivity Ever Get Better?


Guest BERNESES

Recommended Posts

Guest BERNESES

I have been thinking about this for a long time. I am extremely sensitive and I remember when I was first diagnosed my friend whose daughter has it said that after awhile your body adjusts and you don't react as sensitively to minute amounts of gluten. It's been a year for me and it has not. I'm starting to doubt it ever will. For the most part, I can't eat anything processed in a plant that processes wheat and I would say on average, I get "glutened" to some extent once a week even though I am eating a dedicated gluten-free diet. I can always trace the source back and it's always the same thing- the item doesn't actually contain gluten, but the plant did.

I've reacted to Amy's gluten free meals, Eden Organic refried beans, Blue Diamond Pecan thins, and many other things that only have one common link- gluten in the facility.

Has anyone ever had this initial sensitivity get better over time? Thanks, Beverly

PS Gone through all my body products, have hardly any gluten in the house.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



codetalker Contributor

I've been gluten-free for 10+ years now. Sensitivity has remained the same, which in my case means hypersensitivity. The slightest bit of gluten causes a reaction within 2-3 minutes.

As mentioned in other posts, I've given up on products made in shared facilities. Just too tired of getting sick.

In regard to the body adjusting, that may pertain to people who are not gluten-free at all. My own experience was that I seemed to have more pronounced reactions after going gluten-free, than before. Maybe that was what your friend was referring to.

Apologies for a less than encouraging post. Maybe you'll prove to be the exception.

hez Enthusiast

Since you keep getting glutened I would say that your body may not have had enough time. Does this make sense? :huh: I have heard from my doctor that over time I may not be as "sensistive" to gluten as I am now. But if I kept having cc issues than I might wonder if I have had enough time to heal. I hope I am making sense. I guess I am looking at the glass half full not half empty. Maybe you just need more time.

Hez

codetalker Contributor

I'm wondering if there might be an issue here with choice of words. Perhaps, "sensitivity" is not the applicable word.

To me, "sensitivity" refers to the likelihood that my body reacts to any amount of gluten. My experience is that it always reacts to even the smallest amounts of gluten. There are certain symptoms I have that always signal a gluten reaction. When this happens, I know my insides are being damaged.

On the other hand, I recognize that immediately after going gluten-free (10+ yrs ago), the slightest amount of gluten sent me into a tail spin: gas, bloating, cramps, D, depression, irritability. Today for the most part, those outward, visible symptoms are not as severe, especially if I take immediate action. They are more in the moderate to slightly severe range. They are still there and are still a problem. It's just that some of the edge has been taken off. For example, I can leave the house without always having to have Immodium in my pocket.

Perhaps that is what the doctor was referring to. Your body still reacts and damage is still done but the symptoms are not quite as severe.

Guest BERNESES

Codetalker- I didn't find your answer pessimistic at all. I just want to know what I'm dealing with. It's true- the micro amounts of gluten I do get from CC cause a reaction but it is not nearly as pronounced as if I were to ever eat a product that actually had gluten in it. The CC episodes are usually over in a day whereas a major episode would be much longer to recover.

But, can the small amount from CC (like 30 ppm) still cause damage? I have NO problem giving up processed foods from non-dedicated facilities if that is the case (not to mention I'm tired of feeling ill from cc). Thanks all, Beverly

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,342
    • Most Online (within 30 mins)
      7,748

    san62
    Newest Member
    san62
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • James47
      Hiya..I was 48 when diagnosed two years ago and I was in right bad way but strict gluten-free diet you will recover I promise x
    • James47
      Hi everyone I'm James, I hope you are all feeling well??. Accidentally had gluten at weekend and I've had severe diarrhea since sat night. My question is ,the longer someone like myself has been following a strict gluten-free diet will the exposure to gluten be lot more extreme as body now has been free of it well over a year ? Any information be much appreciated and any tips on how to stop the constant diarrhoea I have currently also be appreciated guys x
    • Cathijean90
    • Wheatwacked
      I use Listerine.  Rinse first to soften the tarter, then brush with Oral B electric toothbrush super sonic.  The $15 ones at the supermarket.  At 73 I still have all my teeth.  While a blood test can measure iodine levels, it's not the most accurate method for assessing iodine status, and urinary iodine excretion is considered a better indicator.  Have any of your dermatologists ever done a biopsy for dermatitis herpetiformis?  I may have missed it.  Note the similarity of Casal's necklace to one of your symptoms. Pellagra rash is a characteristic skin manifestation of niacin (vitamin B3) deficiency. It typically presents as:  Erythema: Red, sunburned-like areas of skin, often on the face, neck, arms, and legs.  Scaliness: Dry, flaky skin that may become thickened and crusty.  Hyperpigmentation: Darkened patches of skin, particularly in sun-exposed areas.  Casal's necklace: A dark, pigmented band around the neck.  I am currently taking these} Vitamin D 10,000 IU (250 mcg) DHEA 100 mg 500 mcg Iodine  10 drops of Liquid Iodine B1 Thiamin 250 mg  B2 Riboflavin 100 mg B3 Nicotinic Acid 500 mg 4 times a day for hyperlipidemia. B5 Pantothenice Acid 500 mg Vitamin C 500 mg     Selenium 200 mcg  Several times a week
    • Itsabit
      I will. Thanks. I did just have mg B12 drawn. I should also state that I am already taking a Vit D supplement, as I live in the US in New England sand just about everyone who lives here is deficient, esp during our winters with less exposure to natural sunlight. I was also taking a chewable bariatric vitamin as well because of my food issues related to my cancer treatment (which was many years ago, but there are long term effects.) I just stopped it because I was unable to get any gluten information about it. And it did contain iodine. Is there even a vitamin that doesn’t? I don’t know, but I will check. I also take Calcium and Magnesium in the form of “Rolaids” for leg cramps/spasms, with good effects. Thanks. 
×
×
  • Create New...