Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Testing


Sandy777

Recommended Posts

Sandy777 Newbie

How do they test for celiac now for a diagnosis?  Can it be done by simple blood test?

when I was a baby they didn’t have a test. That was 75 years ago. So they ruled everything else out and said I had it. The dr put me on diet of bananas and skimmed milk for 7 years. When I started kindergarten I only weighed 25 lbs. nowadays they would say “failure to thrive”. My daughter was also diagnosed as a baby as celiac syndrom (they said it was a milder form). As we grew up we incorporated other foods. But over the years I have noticed symptoms like nausea and bloating that makes me wonder if I still have it. Time for blood test?

Thanks for your help. 
Sandy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Currently they are recommending only blood tests to diagnose children:

but a blood test followed by a biopsy to diagnose adults. I suspect this will eventually evolve to blood tests only as well, and I’m not sure why there is a different protocol.

cyclinglady Grand Master
(edited)

Once a celiac, always a celiac.  Celiac disease is like a chameleon, symptoms can wax and wane.

i have a girl friend who was recently diagnosed in her late 40’s.  Her sister in Ireland was diagnosed with celiac disease as a baby.  Her mother was told that she would outgrow it.  That was not true.  The woman was re-diagnosed with celiac disease in her 40’s.    Her diagnosing doctor recommended that her family members be screened.  Hence, my girlfriend  was diagnosed (blood and biopsies)  so late in life.  She was relatively symptom free. Always, thin.  Never could gain weight.  

My case?  I have had GI problems on and off all my life.  My diagnosis was caught during a routine colonoscopy to screen for cancer.  My GI noticed that my chart indicated life-long anemia.  I was shocked.  

If you are consuming gluten daily (for about 8 to 12 weeks),  consider a complete a celiac blood panel or because of these pandemic times, just go back to being  gluten free.  A firm diagnosis might be beneficial, if you require long-term care.  

https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

Edited by cyclinglady

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Richardo replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains

    2. - Matt13 replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Can food allergies like milk and soy flatten villi?

    3. - Rogol72 replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains

    4. - trents replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains

    5. - Richardo replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,337
    • Most Online (within 30 mins)
      7,748

    Marleyj23
    Newest Member
    Marleyj23
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Richardo
      I've never had problems with quinoa but I always rinse it well before cooking in case it's processed with other grains. I think quinoa is classified as a seed. I can't eat grains at all but I can eat all seeds. Ain't the human body a pandora's box of surprises??? 
    • Matt13
      Hi knitty kitty, Scott and all, Thanks for kind words and asking!I will def. talk about histamine intolerance  on my next visit to gastro doc. My doc.gastro says that lactose or casein is very unlikely to create marsh 3b histology like gluten in adults in intestines. (that was previous question for Scott) Regarding my last EGD the villy was OK so refractory is out of the question based on my talk with dr. If Scott is right and there are so many intolerance in food for celiac what is left to eat?? And now histamine? I mean what should i eat? Maybe gastritis is doing all this trouble? Thanks Kind regard    
    • Rogol72
      @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains. 
    • trents
      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
×
×
  • Create New...