Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Incontinence Issue

BamBam

Recommended Posts

BamBam Community Regular
BamBam
Posted

Some of my family members, I have just found out, have some bowel incontinence issues. Is there anybody out there that has some accidents, and if so, what products do you use?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Some of my family members, I have just found out, have some bowel incontinence issues. Is there anybody out there that has some accidents, and if so, what products do you use?

I am going to suggest that they talk to their doctor about a referral to a Physical Therapist that specializes in this problem. I had to deal with this issue and was surprised at how successful the therapy was. Between that and being gluten-free I have been able to regain control for the most part.

Felidae Enthusiast
Felidae
Posted

On another forum many people have discussed their bowel incontinence. They use adult diapers and a medication called "nullo" which removes the smell of feces. Depending on the severity, maybe Immodium.

tiredofdoctors Enthusiast
tiredofdoctors
Posted

ravenwoodglass: It is so nice to hear someone talk nicely about physical therapy treatment! I'm a physical therapist -- I had my own clinic, but because this stupid disease affects my brain et. al, I had to close it. I specialized in Women's health -- urinary and fecal incontinence, pregnancy, post-partum. The treatment really is fairly effective, isn't it? I have a cousin whose doctor, during the delivery of her first child, made a mistake (not admittedly) during the episiotomy and cut her completely through her rectum. He then realized what he had done, and scrunched the entire area together as best he could. She ended up having to have surgery -- they took a long strip of muscle from her leg, and fashioned a new muscle -- a rectum, I guess, really. She wouldn't go for the physical therapy because she was too embarrassed, so the muscle never really learned what it was supposed to do -- she still has trouble.

It was really nice to see someone promote physical therapy for fecal incontinence. Thanks -- We need all the promotion we can get!!!! :P Lynne

ravenwoodglass Mentor
ravenwoodglass
Posted
ravenwoodglass: It is so nice to hear someone talk nicely about physical therapy treatment! I'm a physical therapist -- I had my own clinic, but because this stupid disease affects my brain et. al, I had to close it. I specialized in Women's health -- urinary and fecal incontinence, pregnancy, post-partum. The treatment really is fairly effective, isn't it? I have a cousin whose doctor, during the delivery of her first child, made a mistake (not admittedly) during the episiotomy and cut her completely through her rectum. He then realized what he had done, and scrunched the entire area together as best he could. She ended up having to have surgery -- they took a long strip of muscle from her leg, and fashioned a new muscle -- a rectum, I guess, really. She wouldn't go for the physical therapy because she was too embarrassed, so the muscle never really learned what it was supposed to do -- she still has trouble.

It was really nice to see someone promote physical therapy for fecal incontinence. Thanks -- We need all the promotion we can get!!!! :P Lynne

I wish also more people could get past the embarrassment, my PT was very professional and did her best to make me comfortable. It wasn't as bad as I feared it would be. It's kind of like the gluten-free diet, intimidating at first but not so bad once you really experience it. She was the one who really pushed me not to give up and got me finally diagnosed too, she gets at least one card a year from me in thanks.

tiredofdoctors Enthusiast
tiredofdoctors
Posted

You are a physical therapist's dream patient! . . . Lynne

  • 12 years later...
kate101 Newbie
kate101
Posted

im 27, ever since I could remember I've had "accidents".  both bowl and urine,  still do. its HIGHLY embarrassing and has kept me from doing alot. even moving in with my son's father.  I went to my family dr a few weeks ago and she mentioned my blood work came back that I might have a gluten intolerance and that I need to see a gi.... Idk though to me it doesn't make sense... is she right or do I have some other medical problem.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
25 minutes ago, kate101 said:

im 27, ever since I could remember I've had "accidents".  both bowl and urine,  still do. its HIGHLY embarrassing and has kept me from doing alot. even moving in with my son's father.  I went to my family dr a few weeks ago and she mentioned my blood work came back that I might have a gluten intolerance and that I need to see a gi.... Idk though to me it doesn't make sense... is she right or do I have some other medical problem.  

 

25 minutes ago, kate101 said:

im 27, ever since I could remember I've had "accidents".  both bowl and urine,  still do. its HIGHLY embarrassing and has kept me from doing alot. even moving in with my son's father.  I went to my family dr a few weeks ago and she mentioned my blood work came back that I might have a gluten intolerance and that I need to see a gi.... Idk though to me it doesn't make sense... is she right or do I have some other medical problem.  

Take your doctors advice. If she did blood work that suggested you have a gluten issue you likely had positive celiac blood tests. Celiac can effect the nervous system, as well as many others, not just the GI tract. Your issues may resolve on a strictly followed gluten-free diet but you need to keep eating gluten until after you have seen the GI doctor and been tested. Welcome to the board and do read the Newbie 101 thread at the top of the Coping section. With positive blood work you will need the diet no matter what the results of the endoscopy.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Tyoung
      - Tyoung replied to birdboyden's topic in Related Issues & Disorders
      4

      Bile reflux with celiac

      Hey! How is your daughter doing now? I am dealing with very similar issues! All started after going gluten free after being diagnosed with celiacs
    2. larc
      - larc replied to Jhona's topic in Meet Up Room
      13

      Does anyone here also have Afib

      Thanks for your thoughts on this. My reactions to gluten are complex and involve more than just my heart and arteries. The problems with what It does to my cardiovascular system do present me with a bit of a conundrum at times. For instance, I had cardio bypass surgery in 2002 (at age 53) and then again had angina and artery issues in 2006. At the same time...
    3. trents
      - trents replied to Jessica H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Help Interpreting My Lab Results? (updated)

      Migraines are a recognized symptom of celiac disease. The incidence of it is higher in the celiac community than in the general population. It is one of mine. Well, keep us posted. Do you have a follow up appointment scheduled yet? Again, let me stress that it is important to not begin the gluten free diet or even a reduced gluten diet until all testing...
    4. Jessica H
      - Jessica H replied to Jessica H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Help Interpreting My Lab Results? (updated)

      No other testing has been done at this point, though I wonder if my diagnosis will prompt that. My main symptoms have been bowel related and I’ve had severe migraines for several years now but I’ve been seeing a neurologist for that and have it under control, though I now wonder if the migraines have been a symptom of Celiac all along.
    5. trents
      - trents replied to Jessica H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Help Interpreting My Lab Results? (updated)

      They do use stages but only when evaluated the damage done to the villi of the small bowel after looking at the biopsy samples. I'm referring to the "Marsh" scale. As far as I know, "stages" has never been applied to blood antibody test scores. It would not be appropriate to assign stages based on antibody scores as the damage done would depend not only...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,084
    • Most Online (within 30 mins)
      7,748
    Kandy3Kane3
    Newest Member
    Kandy3Kane3
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Tyoung
      Bile reflux with celiac

      By Tyoung · Posted

      Hey! How is your daughter doing now? I am dealing with very similar issues! All started after going gluten free after being diagnosed with celiacs 
    • larc
      Does anyone here also have Afib

      By larc · Posted

      Thanks for your thoughts on this. My reactions to gluten are complex and involve more than just my heart and arteries. The problems with what It does to my cardiovascular system do present me with a bit of a conundrum at times. For instance, I had cardio bypass surgery in 2002 (at age 53) and then again had angina and artery issues in 2006. At the same time, I was also suffering symptoms of early onset dementia while also experiencing symptoms of psychosis. That was when I discovered I had celiac and went on a. gluten-free diet. On that diet, my psychosis disappeared, my chest pain stopped and my cognitive issues also cleared up. Subsequently I began running and exercising again with no cardio problems. And my stress tests and cardio exams since then showed no evidence of artery problems. Plus, my lipid panels showed significant changes. My arteriosclerosis had started in 1992. At that time, my HDL cholesterol had always been measured in the 20s even though I exercised religiously, ate what was supposed to be a heart-healthy diet and was never overweight. After going on a gluten-free diet in 2006, my HDLs have been in the 60s and 70s. Since then, my usual symptoms of ingesting gluten are a temporary increase in blood pressure and certain intense types of hypnogogic hallucinations. The Afib stuff is a recent development. I will be discussing all of this again with my cardiologist in May. I discuss some of this in my substack (no paywall) at https://diaryofapreviouslydementedpoet.substack.com/   
    • trents
      Help Interpreting My Lab Results? (updated)

      By trents · Posted

      Migraines are a recognized symptom of celiac disease. The incidence of it is higher in the celiac community than in the general population. It is one of mine. Well, keep us posted. Do you have a follow up appointment scheduled yet? Again, let me stress that it is important to not begin the gluten free diet or even a reduced gluten diet until all testing related to celiac diagnosis is complete.
    • Jessica H
      Help Interpreting My Lab Results? (updated)

      By Jessica H · Posted

      No other testing has been done at this point, though I wonder if my diagnosis will prompt that. My main symptoms have been bowel related and I’ve had severe migraines for several years now but I’ve been seeing a neurologist for that and have it under control, though I now wonder if the migraines have been a symptom of Celiac all along. 
    • trents
      Help Interpreting My Lab Results? (updated)

      By trents · Posted

      They do use stages but only when evaluated the damage done to the villi of the small bowel after looking at the biopsy samples. I'm referring to the "Marsh" scale. As far as I know, "stages" has never been applied to blood antibody test scores. It would not be appropriate to assign stages based on antibody scores as the damage done would depend not only the antibody levels in the blood at the time of testing but the duration of it and the intensity of it over time since the onset. And those are all very subjective things. I understand your concern about irreparable damage done to body systems but you are fairly young and your body still has very good rejuvenation powers. Is there laboratory or medical evidence that anything other than the lining of your small bowel has been compromised yet? Do you have bone demineralization for instance or unexplained dental decay or neurological deficits? Stuff like that? It took 13 years to arrive at a diagnosis of celiac disease in my case from the first laboratory evidence (elevated liver enzymes) of onset and by that time I had developed osteopenia. I was 50 or 51 at the age of diagnosis.
×
×
  • Create New...