Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi Everyone, I Got Better, 20 Pages Of New Posts To Read


Matilda

Recommended Posts

Matilda Enthusiast

..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Hi Matilda,

I'm glad to see you're still doing well. I remember you posting that all of a sudden after 9 months you were feeling pretty good. I figured since you stopped posting you must be past the "everything makes me sick" stage and enjoying life. :)

I totally agree with everything you've said about avoiding processed foods and preparing your own meals in the beginning. I learned the hard way by tying to eat all the processed gluten-free foods and then thinking I was constantly "glutened" by c.c. Maybe none of my reactions were gluten related but just my body telling me this stuff isnt doing me any good right now. Some people do fine switching to all the gluten-free foods but those still having problems should probably stick to naturally gluten-free whole foods for a good while.

I started to figure out that since most people do not get glutened from every gluten-free processed product and I doubt that I'm *that* ultra-sensitive....my body is clearly not ready for the processed stuff.

Thanks for the update. :)

GC1 Rookie

I agree, many of our health issues are caused by 'value added' "food", that the food industry conditions us to except as "healthy 'n' nutritious". And of course, doctors and the like also push this on us......... We cook most all our food, eat local eggs, buy [seasonal] veggies from local growers, even had our own garden 'til I got to sickly to make one. Everyone would benefit from eating as much 'real food' as possible... the food/drug/medical system depends on us doing the contrary.

GC

ravenwoodglass Mentor
Just wanted to say hello. The last time I checked in here I was left feeling very badly sexually educated, something about cough drops and oral sex, never did work that one out! Everyone seemed to have gone a bit loopy, but a quick look through the first few pages here suggests we're all back to normal.

Well, I'm much better, and not so obsessed with gluten-free issues, just go by reading the ingredients now, and stick to eating simple things that I know are OK, and maybe try something new not more than once every couple of weeks. I can judge how much better by how many pages there are since I last looked at Celiac.com. There was a time when there was never more than 1 or 2 pages of new posts to read.

It took a long time to really start feeling well, about 9 months gluten-free but still feeling like I was not getting on with something I was eating, thinking I'd been cross-contaminated or something. Then suddenly I started feeling better, and now I feel pretty much normal.

What strikes me reading here again is how much complicated, processed stuff people eat and then complain about being glutened by. You can't tell what you're reacting to if you eat anything with an ingredients list a mile long. Even if you eat processed food that claims to be gluten-free, you're probably eating stuff you aren't used to that may upset you. My advice is to eat simple food that you prepare yourself for a good long spell before trying anything processed or with new ingredients in it.

Ok, I know no one asked for my advice, but there it is. I don't believe that every "gluten reaction" posted here is really a gluten reaction, I think it takes a long time to get better for many people, and while you're eating anything complicated you have little chance of working out what you dont get on with.

Best wishes,

Matilda

I agree with you totally. I eat what I guess is called a paleo diet, meat and veggies and fruits. It took me a couple years to realize just what you are saying. I find the simpler the better and actually find it cheaper to eat just unprocessed stuff.

WGibs Apprentice

Hi Matilda,

It's good to hear that you're feeling so good.

I think you're right about eating real food, although I don't completely put it into practice yet. I think it's one of those things that takes alot of discipline, so, for me, I'm not going to be able to stick to it until my body forces me. I'm not saying that's ideal, but it is what it is.

For me, giving up gluten was all I could handle at first...the processed food was a crutch so that I didn't feel that I was missing anything. Now that no gluten isn't such a big deal, I feel ready to tackle other things in my diet, like giving up processed foods and taking a break from dairy. Also, while my body reacted very well to going gluten-free at first, the problems are starting to creep back. And you're right...it may or may not be from actual gluten.

When I look around, I see that I eat alot less junk that most people around me, but still more than alot of people on these boards. I appreciate the influence of the people on the boards (like you) who are pulling me in the right direction.

Thanks for sharing your advice!

tarnalberry Community Regular

Absolutely! I'm ... not a fan ... of much processed stuff. :-)

jerseyangel Proficient

Hi Matilda--nice to hear from you again! I have to agree that the more simple, whole diet is what works for me, too. If I veer off every now and again, sometimes it's fine--other times, my system complains. I hit the 9 month mark next month--wish me luck :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Hey, did you see the McD's thread? Dining/eating out section. Just wanted to make sure you didn't miss it.

Nancym Enthusiast

I'm a simple food eater too. I'm 4 months gluten-free, 1 month CF and its taking a lot to get this all under control. I try to make everything myself and avoid any grains or dairy. It is working! Every time I try to eat out I usually end up sick no matter how careful I am.

Simple is my solution!

Guest BERNESES

Hi Matilda- Welcome back! Glad you are feeling better too. I agree with the processed stuff. I'm leaning, with a few exceptions, towards, if I didn't make it from scratch, I ain't eatin' it! I've been feeling better too and when I do eat something processed (even if it's organic- like organic refried beans) my body rebels these days!

ianm Apprentice

Keeping food simple and real is the only way to go. Anymore if I eat something processed I just don't feel good afterwards.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,073
    • Most Online (within 30 mins)
      7,748

    Steph4213
    Newest Member
    Steph4213
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      You can sell it better if the whole family does gluten free.  If he does have Celiac Diease, it is genetic so either you, your spouse, or both have a 40% chance of also having Celiac.  There are over 200 non classic symptoms also caused by celiac disease not often considered by doctors. Joint pain, muscle pain, muscle cramps, osteoporosis, and allergies for starters.  
    • Wheatwacked
      Hello @MHavoc, thank you for your question and welcome to the clinic. First, has the contstipation abated with the GFD? If your are pursuing further diagnostics you must continue to eat gluten. Each lab has their own reference range for their test, but they indicate an H for high.  Typically anything above 11 is considered positive. Mild chronic inflammation (gastritis) can interfere with intrinsic factor for B12 leading to low B12 causing low MCHC (anemia). So what is causing your gastritis?  A high tTG IgA level generally indicates potential gastrointestinal problems most commonly associated with celiac disease.  Although the biopsy is the Gold Standard for diagnosis, not finding damage in the biopsy does not rule out Celiac Disease. It means they did not find damage where they looked.  The small intestine is over 20 feet long. Many here have been blood positive and biopsy negative, it just delays the diagnosis until you have enough damage to find and fit their diagnostic profile. The Ttg-iga is not only sensitive (90%) but highly specific (98%) and won’t show positive until the damage is severe.  It is estimated that 40% of first degree relatives of diagnosed Celiacs have undiagnosed Celiac Disease, so your sister is a big risk factor in whether you have it. Are You Confused About Your Celiac Disease Lab Results?  This article explains it better and is quite readable. Celiac Disease can cause deficient vitamin D.  Low vitamin D compromises the immune system.  Any other symptoms? liver enzymes?  Recent cold or flue? Celiac Disease and the malabsorption it causes through vitamin and mineral deficiencies can elicit symptoms not usually associated with Celiac Disease. Case in point maybe your gastritis and anemia.  
    • MHavoc
      As with most of the people that come here, I have questions and need perspective/info from this wonderful community.  Some background, started having severe constipation that would not abate even with softners (not really fun to talk about), so I was able to finally get in to see my primary and she scheduled some blood work.  One of things she wanted to test for is Celiac Disease due to my sister having celiac disease since a young child. Here are my test results: MCHC = 31.4 so considered slightly low TISSUE TRANSGLUTAMINASE AB, IGA = 78.8 H So with that result, I was scheduled for an endoscope for confirmation of celiac disease, but I am very confused with the results: Diagnosis 1. Duodenum, biopsy: -No pathologic alteration. 2. Stomach, biopsy: -Mild chronic inflammation with reactive epithelial change -H. pylori not identified on immunostained section. -No intestinal metaplasia or dysplasia I am now scheduled to meet with a GI Specialist from the Celiac team, but that won't be until after the New Year.  I would appreciate thoughts about the biopsy report to understand whether it confirms the celiac disease as was indicated by the blood test results. I have been gluten free for two weeks and it is a very difficult adjustment for me as an older 50+ person.
    • Vozzyv
      Anyone else have intermittent left ear ringing and outer right ear pain? Both seem to happen in the evenings. 
    • cristiana
      If your son eventually becomes very symptomatic, that in itself will help keep him on the diet.  I had a friend who was diagnosed roughly the same time as me and she used to tell me a lot that she could get away with eating certain gluten containing foods.  (Not a good thing to do, but she did all the same).  In time she was unable to tolerate them anymore,  and is now very strict with her diet.   The football situation with the candy:   here in the UK at least, a lot of mainstream chocolate bars and sweets don't actually contain gluten (Bounty Bar, Snickers, Cadbury's Whirl, Crunchie etc) and you may find that that is the case where you live.      
×
×
  • Create New...