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Support Group In Nc?

Ashley462

By Ashley462
in Meet Up Room

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Ashley462 Rookie
Ashley462
Posted

Hey,

My mom and I are new to this whole gluten/celiac thing and we are in desperate need of a support group. I live in Winston-Salem,NC. Are there any support groups near this area? Thanks alot!! :)

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Guest jhmom
Guest jhmom
Posted

Hi Ashley, I found this list right here on the site :D , I hope it helps

North Carolina

Winston-Salem - Resource:

Contact: Pam Brown

6295 Lochinvar Drive

Rural Hall, NC 27045

Tel: (910) 377-2687

Asheville - - Resource:

Contact: Leah R. Karpen

518 Ox Creek Road

Weaverville, NC 28787

Tel: (704) 645-9067

Boone - Resource:

Contact: Ernest Lane

827 Blairmont Dr.

Boone, NC 28607

Tel: (704) 264-4618 or (704) 262-2380

E-mail: epl@math.appstate.edu

Chapel Hill - Resource:

Contact: Connie Margolin

908 Kings Mill Road

Chapel Hill, NC 27514

Tel: (919) 967-9954

E-mail: ThirdEar0@aol.com

Charlotte - Support Group

Contact 1: Caroline Herdle

Charlotte - Mecklenburg Celiac Support Group

14314 Harbor Estates Rd.

Charlotte, NC 28278

Tel: (704) 588-6842

E-mail: Katahdin1@pipeline.com

Contact 2: Daphne Ledford

3947 Abingdon Rd.

Charlotte, NC 28211

Tel: (704) 366-3493

Contact 3: Marsha Beers

9038 Gray Birch Court

Charlotte, NC 28215

Tel: (704) 597-0826

E-mail: EWOKSMOM@aol.com

Durham - Fayetteville Support Group

Contact 1: Ruth Thomas

North Carolina Celiacs (CSA)

Tel: (919) 542-4030

Contact 2: Susan Black

Tel: (910) 875-3186

Forest City - Resource:

Contact: Lisa Sievers

141 Greenbriar Dr.

Forest City, NC 28043

E-mail: sie@blueridge.net

Greensboro - Resource:

Contact: Phebe W. Erdman

3205 Oak Ridge Rd.

Summerfield, NC 27358

Tel: (910) 643-1365

Raleigh - Support Group

Contact: Sally Davis Comer

129 W. Park Drive

Raleigh, NC 27605

Tel: (919) 932-7285

E-mail: SComer3470@AOL.COM

Raleigh-Durham - Support Group

Contact 1: Sally Davis Comer

Triangle Celiac Support Group

129 W. Park Drive

Raleigh, NC 27605

Tel: (919) 932-7285

E-mail: SComer3470@AOL.COM

Contact 2: Diana Clarke

E-mail: DeBucket@aol.com

Contact 3: Connie Margolin

E-mail: ThirdEar0@aol.com

Summerfield - Resource:

Contact: Phebe W. Erdman

3205 Oak Ridge Rd.

Summerfield, NC 27358

Tel: (910) 643-1365

lisa922 Apprentice
lisa922
Posted

Ashley -

Hey! You responded to my other e-mail about looking for a doctor to treat my Celiac. I wanted to let you know I contacted Ernest about the support group in Boone and he said none was ever set up. I haven't called the lady for Winston yet, I'm going to do that today. Do you mind if I ask your age? I was told that Dr. Ivor Hill at Bowman Gray in Winston is a pediatric gastroenterologist who is knowledgable in Celiac. You can call 336-716-3009 for him. If you are too old for a pediatric GI (I don't know what age he treats up to), you could maybe ask for a referral. I am seeing Dr. John Sweeney with Wake Forest Baptist Digestive Health Services. He does not seem to specialize in Celiac, but he is a GI. I, myself, am looking for a regular PCP who is knowledgeable with Celiac. Good luck and let me know what you find out. Perhaps we can both get in with the Winston support group! Talk to you later

LISA

Ashley462 Rookie
Ashley462
Posted
  • Author

Thanks so much stacie and lisa! I am 14 yrs. old,lisa. I will show my mom all these support groups and doctors. THanks again!!

gfmelissa Apprentice
gfmelissa
Posted

Hey-

I live in Durham and have celiac. I am 22. I had a really hard time getting in touch with support groups in NC. I heard great things abou thte triangle support group, but i could never contact them. let me know if you have any luck! - Melissa

meinnc Newbie
meinnc
Posted

We have an active support group here in Winston-Salem, NC. We are affiliated with the Gluten Intolerance Group.

Our next function is this Sat. We are participating at a Health Fair from 9-3pm at Doug Brendles Natural Health Superstore. We will have members of our group there to help people find the many gluten-free products the store carries.

Here are 2 contact names and numbers:

Grace Johnston 336-924-5572

Martha Russell 336-924-5572

If you want more information, please contact us.

  • 7 months later...
phakephur Apprentice
phakephur
Posted

Hi Melissa - I'm in Durham also. As far as I know, the Triangle group is fairly inactive and has only met once or twice in the past year. I can give you the email address I used to get on the mailing list, although you probably already have that.

Sarah

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  • 1 month later...
saljess Newbie
saljess
Posted

I'm Beaufort county, about 50 miles east of greenville, nc -- anyone know of a support group anywhere nearby? or is there any interest in forming one? -- Sarah

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    • Jy11
      Conflicting results

      By Jy11 · Posted

      Would you also agree that being so close to the IgA deficient cut off is significant? We just have been told he’s not as just over into the not deficient category…   thank you so much for all the help so far, it’s been so helpful!
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      By Scott Adams · Posted

      One study showed that up to 44% of first degree relatives also have celiac disease, so his odds of having it are quite high. Also, if he were not IgA deficient his celiac disease test scores would likely have been much higher because they were based on the IgA antibodies.
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