Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Horrible Pressure Headaches After Eating


lemonade

Recommended Posts

lemonade Enthusiast

Does anyone here get pressure headaches after eating? About 20 minutes after I eat anything I get really bad pressure headaches by my temples and on my forehaead between my eyes.

Lemonade


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

I've had this exact symptom for 3 years now. I have intense pressure in my head and its always worse after eating. The veins in my temples and forehead also buldge sometimes. Its also triggered by chemicals of any kind. Its most intense between my eyes, at the temples and also in my jaw. There is swelling as well although its not noticeable to others. Its not gluten-related as far as I know cuz it happens regardless. I just got dx'd with C-Diff infection and am starting treatment tomorrow. Doctor thinks this might be causing alot if not all of my problems...but will have to see what happens following treatment.

sspitzer5 Apprentice
Does anyone here get pressure headaches after eating? About 20 minutes after I eat anything I get really bad pressure headaches by my temples and on my forehaead between my eyes.

Lemonade

Yes! I get these too. These headaches were one of my worst symptoms. They are better since going gluten-free last year but they still seem to happen at times. I figure it's a reaction to something I am eating, however, I have no idea what.

S

jenvan Collaborator

perhaps they are related to blood sugar or due to food allergies/intolerances?

lemonade Enthusiast

Thanks for the replies!

Lemonade

Rachel--24 Collaborator
perhaps they are related to blood sugar or due to food allergies/intolerances?

For me, I'm pretty sure its from intolerances from my immune system being all whacked out right now and from leaky gut.

swatson Rookie
Does anyone here get pressure headaches after eating? About 20 minutes after I eat anything I get really bad pressure headaches by my temples and on my forehaead between my eyes.

Lemonade

Yes I get pressure head aches too. It is almost like sinus pressure for me. I also get feverish about 1 hour after I eat anything. My forehead and neck get burning hot. I am seeing a derm about this next week.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



slpinsd Contributor

I've had this happen to. Also, when I lay down at night after eating, I can hear my head throbbing on the pillow- like my heart is beating in my head- does that happen to anyone?

lemonade Enthusiast
I've had this exact symptom for 3 years now. I have intense pressure in my head and its always worse after eating. The veins in my temples and forehead also buldge sometimes. Its also triggered by chemicals of any kind. Its most intense between my eyes, at the temples and also in my jaw. There is swelling as well although its not noticeable to others. Its not gluten-related as far as I know cuz it happens regardless. I just got dx'd with C-Diff infection and am starting treatment tomorrow. Doctor thinks this might be causing alot if not all of my problems...but will have to see what happens following treatment.

Do your pressure headaches ever go away? I get pressure headaches after meals expecially at night. They make me feel really sick and dizzy...do you feel the same way?

On a different topic...

Did you have both a positive blood test and biopsy?

Lemonade

swatson Rookie
I've had this happen to. Also, when I lay down at night after eating, I can hear my head throbbing on the pillow- like my heart is beating in my head- does that happen to anyone?

I get the heart pounding feeling when I eat dairy alot. I used to get that feeling at night in bed all the time but once I changed my diet it went away. I used to think I was losing it. I was always told that I was experiencing anxiety symptoms but it wasn't. It was gluten. I used to be able to feel it in my hands.

Rachel--24 Collaborator
Do your pressure headaches ever go away? I get pressure headaches after meals expecially at night. They make me feel really sick and dizzy...do you feel the same way?

On a different topic...

Did you have both a positive blood test and biopsy?

Lemonade

Yeah they were gone all summer when I only ate meat and veggies.

My headaches dont make me feel dizzy though. No I didnt have positive blood or biopsy. My bloodwork was 2 weeks after starting the diet. It was negative so I went back to eating gluten and forgot about it but I got very sick and a couple months later I wasnt able to get out of bed and had lost 25 lbs. I went back on the diet and had my biopsy 6 months later. It was kind of pointless and we knew it was gonna be negative but the GI wanted to take a look anyway and make sure nothing else was going on. I got tested through Enterolab 4 months into the diet and was positive for everything. I didnt want to go back on gluten for the tests and the GI didnt think it would be a good idea either so we just went ahead with the biopsy knowing it wasnt gonna show any damage after 6 months gluten-free.

DavidB Apprentice
I've had this happen to. Also, when I lay down at night after eating, I can hear my head throbbing on the pillow- like my heart is beating in my head- does that happen to anyone?

Yes - I was also diagnosed with an adrenal insufficiency and now wonder if it is related?

Also feel very dizzy and lightheaded after eating especially at night but this is new to me only after starting the gluten-free diet.

Clark Bent as Stupor-Man Contributor

these type of headaches were my primary focus for the past 4 or 5 years.. I've pretty much had a headache every day since at least the start of 2003... I've had 2 MRI's, seen multiple doctors, had a glucose tolerance test... all mostly negative (glucose tolerance test - borderline hypoglycemic/reactive hypoglycemia)... I also took daily preventative headache medication for 3 years as well as a variety of meds at the onset of headaches (almost daily in addition to the preventative at one point)

since going on an elimination diet for a brief period of time in early December and now being firmly gluten-free for a month, I stopped daily preventative medication and only use onset medication once or twice a week... (only once in the past 2 plus weeks, knock on wood)... but that's not to say my headaches have gone away... I still get them daily... but I think I'm tolerating them better and they fluctuate naturally in intensity throughout the day... I think for myself, I'm going to have to keep trying some different things (accupuncture, exercise, chiropractor, etc.) in addition to the diet to completely get rid of my headaches, but it seems like the nutritional aspect is helping

qwertyui Rookie

Does anyone get really hot? Like burning sweating hot? I have been getting so hot after I eat, particularily after dinner that I have to go stand outside in the snow! I am 35, so maybe this is early menopause, or something like that, but it pretty wild.

slpinsd Contributor

I have had night sweats, and I'm only 31. You are probably not menopausal, but gluten sensitivity can cause some adrenal and/or hormonal imbalances. These have very gradually ceased since I went gluten-free.

DavidB, I also was diagnosed with adrenal insufficiency. Sometimes I feel lightheaded when going from laying down to standing. Yes- it is possibly related. I really think the head-pounding thing is gluten- cuz it's really declined since I went gluten-free 1 month ago. What are your other symptoms of adrenal insufficiency, if you don't mind me asking?

  • 11 years later...
Anil Newbie

I have been getting this headache since 2011 (it is 2017 now). I am myself a medical doctor (a forensic specialist actually), and during my medical studies, I never studied this disease in my books. After I got this headache, I was sure, this disease is not in the medical books, so despite working in a tertiary care hospital, it never occurred to me to get advice from a traditional allopathic doctor. I visited homeopathic doctors instead, who are so sought after in India. After a long and unsatisfactory treatment, I started visiting allopathic doctors, and after much hit and trial, I finally went to neurology department of GB Pant hospital, New Delhi, where the HOD prescribed Allegra 120 mg for me daily in the morning at about 11 am. It is an antihistaminic. When I asked him to tell me the cause of it, he told me that eating is causing histamine to be liberated from somewhere - most probably my GIT - and this must be countered. He also told me that my "trigeminal-vascular axis" [whatever he meant by that] is getting activated by histamine" I started this medicine, without much hope, but it worked wonders. The headache disappeared within 7 days. Afters several months, I decided, it was no use taking it daily. So I stopped taking it. Nothing happened for one week, but after that it started happening again. The headache [after food but never at other times] is so bad, I started taking Allegra again, but it didn't go immediately. It took about one week. Since last 6 years, this has happened to me 4-5 times. The cycle is like this. I take allegra -> headache disappears (i.e. there is no headache after food) after about a week -> 6-8 months pass -> I get complacent -> stop taking drug ->headache starts within a week ->I start taking Allegra again -> headache disappears in a week.

In Oct 2013, I had a double bypass surgery. I was 57 at that time.

This time (i.e. in Mar-Apr 2017), when I stopped taking medicine, the intensity of headache was unbearable. It had increased! Sometimes I felt like committing suicide. Once I told my postgraduate student to take me to Operation theater to get me general anesthesia. He thought I was joking although I meant it. Then I asked him to give a fortwin injection. He refused that too. I thought it was the worst kind of torture, and if histamine indeed was causing it, the best way to torture someone was to inject histamine in his system. Finally I took about 8 pain killing medications, one after one during next hour. That gave me partial relief. My neurologist advised me MRI this time, while earlier he had vehemently opposed it. When I asked him why MRI this time, he told me that it was because the "character of my pain had changed" Thankfully, it came normal. One night, when I started having headache after dinner, and my wife did not allow me any more pain killing medicines (she thought those medicines were causing harm to my heart),  I cried like a child and prayed to God to help me and make me get rid of this terrible headache.

This time headache took about 10 days to disappear. So one thing is clear. As my age is advancing (I am 61 now), the headache is increasing in intensity, and it takes longer to go away, after I start Allegra.

I now intend never to stop taking Allegra, because this has come as a boon for me. Like many commentators here, my headache is concentrated on both temples, and nowhere else. During the bouts of headache, I press my both thumbs against my both temples with all my might, and that gives partial relief.

I am making this post, mainly to help my colleagues who are suffering like me. Try this and God willing, this would help you too. I have searched medical journals (especially one called "Cephalalgia", which means headache in plain English), but found very little relevant information. Virtually nothing that recommended antihistamines for this. So I thank my neurologist to recommend this off-the-book medicine for me

 

cyclinglady Grand Master
2 hours ago, Anil said:

I have been getting this headache since 2011 (it is 2017 now). I am myself a medical doctor (a forensic specialist actually), and during my medical studies, I never studied this disease in my books. After I got this headache, I was sure, this disease is not in the medical books, so despite working in a tertiary care hospital, it never occurred to me to get advice from a traditional allopathic doctor. I visited homeopathic doctors instead, who are so sought after in India. After a long and unsatisfactory treatment, I started visiting allopathic doctors, and after much hit and trial, I finally went to neurology department of GB Pant hospital, New Delhi, where the HOD prescribed Allegra 120 mg for me daily in the morning at about 11 am. It is an antihistaminic. When I asked him to tell me the cause of it, he told me that eating is causing histamine to be liberated from somewhere - most probably my GIT - and this must be countered. He also told me that my "trigeminal-vascular axis" [whatever he meant by that] is getting activated by histamine" I started this medicine, without much hope, but it worked wonders. The headache disappeared within 7 days. Afters several months, I decided, it was no use taking it daily. So I stopped taking it. Nothing happened for one week, but after that it started happening again. The headache [after food but never at other times] is so bad, I started taking Allegra again, but it didn't go immediately. It took about one week. Since last 6 years, this has happened to me 4-5 times. The cycle is like this. I take allegra -> headache disappears (i.e. there is no headache after food) after about a week -> 6-8 months pass -> I get complacent -> stop taking drug ->headache starts within a week ->I start taking Allegra again -> headache disappears in a week.

In Oct 2013, I had a double bypass surgery. I was 57 at that time.

This time (i.e. in Mar-Apr 2017), when I stopped taking medicine, the intensity of headache was unbearable. It had increased! Sometimes I felt like committing suicide. Once I told my postgraduate student to take me to Operation theater to get me general anesthesia. He thought I was joking although I meant it. Then I asked him to give a fortwin injection. He refused that too. I thought it was the worst kind of torture, and if histamine indeed was causing it, the best way to torture someone was to inject histamine in his system. Finally I took about 8 pain killing medications, one after one during next hour. That gave me partial relief. My neurologist advised me MRI this time, while earlier he had vehemently opposed it. When I asked him why MRI this time, he told me that it was because the "character of my pain had changed" Thankfully, it came normal. One night, when I started having headache after dinner, and my wife did not allow me any more pain killing medicines (she thought those medicines were causing harm to my heart),  I cried like a child and prayed to God to help me and make me get rid of this terrible headache.

This time headache took about 10 days to disappear. So one thing is clear. As my age is advancing (I am 61 now), the headache is increasing in intensity, and it takes longer to go away, after I start Allegra.

I now intend never to stop taking Allegra, because this has come as a boon for me. Like many commentators here, my headache is concentrated on both temples, and nowhere else. During the bouts of headache, I press my both thumbs against my both temples with all my might, and that gives partial relief.

I am making this post, mainly to help my colleagues who are suffering like me. Try this and God willing, this would help you too. I have searched medical journals (especially one called "Cephalalgia", which means headache in plain English), but found very little relevant information. Virtually nothing that recommended antihistamines for this. So I thank my neurologist to recommend this off-the-book medicine for me

 

Welcome!  This thread is pretty old, so I am going to offer help.  Learn more about celiac disease testing here: 

http://www.cureceliacdisease.org/screening/

http://www.montana.edu/mountainsandminds/2012/fall/celiac.php

You might research Mast Cell Activation Syndrome/Disorder:

https://en.m.wikipedia.org/wiki/Mast_cell_activation_syndrome

I wish you well! 

knitty kitty Grand Master

Anil, 

I understand how uncomfortable migraines can be.  I've suffered from them for many years, too.  

I found several scientific studies that suggest that Riboflavin (vitamin B 2), omega 3 fatty acids, and magnesium may help.  My migraines began to decrease in intensity and frequency after taking these supplements.  

This article explains more about these and some herbal remedies:

https://www.migrainetrust.org/living-with-migraine/treatments/supplements-and-herbs/

I sincerely hope this helps. 

Namaste

Anil Newbie
2 hours ago, knitty kitty said:

Anil, 

I understand how uncomfortable migraines can be.  I've suffered from them for many years, too.  

I found several scientific studies that suggest that Riboflavin (vitamin B 2), omega 3 fatty acids, and magnesium may help.  My migraines began to decrease in intensity and frequency after taking these supplements.  

This article explains more about these and some herbal remedies:

https://www.migrainetrust.org/living-with-migraine/treatments/supplements-and-herbs/

I sincerely hope this helps. 

Namaste

Thanks Knitty kitty. My headaches have thankfully stopped (since about a couple of days), and I cannot stop thanking God!

I wish I never need any medicines, besides Allegra. But just in case! Can you please tell me exact dosages, and exact timings of those drugs. What about relation to food (empty stomach or after food).

Furthermore, was your character of pain same as mine, i.e. after food.

You will not believe that I never got any kind of headache anytime in my life. In fact I used to ask people what headache is (honest!).

Since last 6-7 years, the story has changed.

Regards

Anil Aggrawal

9818272307

knitty kitty Grand Master

Anil, I'm so glad you are feeling better!  

The article suggests 600mg of magnesium (too much magnesium will cause diarrhea), 400mg of riboflavin (too much will cause tingling or flushing), and 500mg of omega 3.  

I took my supplements in divided doses with each meal.  I also take a B-Complex vitamin that has 50mg of all the B vitamins and 400mg of folate.  I take the B vitamins at breakfast and lunch because they give you lots of energy.

And I take vitamin D (1000 IU).  Mast cell activation syndrome (cycling lady mentioned it earlier) is linked to vitamin D deficiency.  

Yes, I would get headaches after I ate, especially if I ate high histamine containing foods like fermented foods (pickles, sauerkraut), citrus fruits, smoked fish, cashews, soy sauce, wine, and hard cheeses.  

Keeping a food and migraine journal may help you pinpoint foods that you have the most  trouble with. 

Best wishes on your journey to health.

Knitty Kitty

 

 

  • 1 month later...
flashpack Newbie

I have a question for Anil 

Can you please tell me if you had other symptoms other than this headache.

I also suffer from a tension headache plus other symptoms like bloating , depression, Irritability and Anxiety after eating

I had this tenstion headache since about 5 years  now but they getting worse since the last summer. I also lost 17 KG  recently.

I visited more than 7 Doctors in two countries, been hospitalized for one week und had blood tests, Gastroscopy, Endoscopie , X-ray ... and all were negative. 

I'm doubting Mast Cell Activation Syndrom or Reactive Hypoglycemia  but non of the doctors are willing to investigate und they always advice me to visit a Psychiatric.

I have no idea what to do and I'm very desperate. 

Can someone please help

Thanks in Advance 

 

  • 8 months later...
Primrose Newbie
On 5/13/2017 at 6:27 PM, flashpack said:

I have a question for Anil 

Can you please tell me if you had other symptoms other than this headache.

I also suffer from a tension headache plus other symptoms like bloating , depression, Irritability and Anxiety after eating

I had this tenstion headache since about 5 years  now but they getting worse since the last summer. I also lost 17 KG  recently.

I visited more than 7 Doctors in two countries, been hospitalized for one week und had blood tests, Gastroscopy, Endoscopie , X-ray ... and all were negative. 

I'm doubting Mast Cell Activation Syndrom or Reactive Hypoglycemia  but non of the doctors are willing to investigate und they always advice me to visit a Psychiatric.

I have no idea what to do and I'm very desperate. 

Can someone please help

Thanks in Advance 

 

I also experience this after eating such as sweets, sour and those with caffein. I feel dizzy, bloated and irritable and an air head pressure whenever I ate those. 

I consulted a doctor and wants me to conduct different laboratory examination.

And by the way, my doctor told me to avoid food such as chocolates, juices, caffein, dairy food and spicy food. Now I am only eating veggies and water only. And I feel better.

  • 3 months later...
John1375 Newbie

Hello all with these horrible pressure headaches I get all the exact symptoms and the nasty pressure points in my skull at the base and upper area. I get these associated when I'm glutened but it's actually from lectins and GMO foods. GMO foods are exactly the splicing of several plant lectins combined and all livestock ie chickens cattle have same issues with gut and yes it's in the meats too also Google meat allergy, I've a type o neg blood, I FRUSTRATEDINGLY DONT GO TO ANY DOCTORS OF ANY KIND OF WHICH THE WORD LECTINS PROBABLY ISNT ALLOWED ON THIS SITE..Google GMO LECTINS and MONSANTO..they take plant's lectins which are BACTERIA hence the flu like ill feeling, sweats, bad brain fog which is a neurotoxicity affect from lectins, my sinuses go hay wire!, muscles ache badly, eyes face, baggy eyes, major histamine release..I've had all the typical symptoms over yrs change...msg and sulphites, salycilates, amines..and the  immune systems so to speak for plants. My small intestine swells , and I'm glutened from tomatoes (sauce), potatoe and corn, wheat, SOY...all wang me out horribly. That's what lectins do naturally to animals the thwart being digested ...they disrupt our digestive tracts horribly..took me 20 plus yrs, I'm 46, to figure it out...GO TO A NUTRITIONIST..GMO LECTINS ARE WHAT MAKE WHEAT AND PEANUTS SOO ALLERGIC..IM SO FED UP AND DISGUSTED READING LOST PEOPLE MISGUIDED IVE NEVER POSTED ON ANY SITE BEFORE...currently I'm a dishwasher at a ruby Tuesday's..I used to be an aircraft mechanic for a major airline..my health and slowly went down hill. So very very recently I've discovered this, they're also blood type specific..where and how have I learned this...chiropractors also. One forum explained that a patient's Harvard educated G.I. specialist vaguely even heard of lectins. Thank you Monsanto and big pharma , also BT pesticide causes leaky gut too, it's designed to do same to catipillars too. I never believed it until my gut is now so sensitive my symptoms last for almost  a full seven day week. I just have to ride it out and take chamomile tea, organic $ brands using several tea bags and helps. Good luck to you all and leave no stone unturned in your journeys. Also look up psoriasis info caused by lectins too.

i also simultaneously get uti symptoms ie bacteria from lectins, detox tea and fresh lemon flushes it out,...

Soo all gluten free foods are using GMO ingredients corn starch, potato starch " modified food starch", etc etc so I can't and don't bother with shopping gluten free...read any and all Gluten Free labels..and compare non-GMO labels vs gluten free without GMO free label, most health and gluten-free bars are all soy, personally we're being scammed...this wont be posted I'm sure...why haven't I ever had a allergist explain this to me ..I'min the U.S., I've learned this from European, Australian, based nutrition sources online.

Kristin.com to start 

Open Original Shared Link

leave no stone unturned and do your own homework

 

kareng Grand Master
7 hours ago, John1375 said:

Hello all with these horrible pressure headaches I get all the exact symptoms and the nasty pressure points in my skull at the base and upper area. I get these associated when I'm glutened but it's actually from lectins and GMO foods. GMO foods are exactly the splicing of several plant lectins combined and all livestock ie chickens cattle have same issues with gut and yes it's in the meats too also Google meat allergy, I've a type o neg blood, I FRUSTRATEDINGLY DONT GO TO ANY DOCTORS OF ANY KIND OF WHICH THE WORD LECTINS PROBABLY ISNT ALLOWED ON THIS SITE..Google GMO LECTINS and MONSANTO..they take plant's lectins which are BACTERIA hence the flu like ill feeling, sweats, bad brain fog which is a neurotoxicity affect from lectins, my sinuses go hay wire!, muscles ache badly, eyes face, baggy eyes, major histamine release..I've had all the typical symptoms over yrs change...msg and sulphites, salycilates, amines..and the  immune systems so to speak for plants. My small intestine swells , and I'm glutened from tomatoes (sauce), potatoe and corn, wheat, SOY...all wang me out horribly. That's what lectins do naturally to animals the thwart being digested ...they disrupt our digestive tracts horribly..took me 20 plus yrs, I'm 46, to figure it out...GO TO A NUTRITIONIST..GMO LECTINS ARE WHAT MAKE WHEAT AND PEANUTS SOO ALLERGIC..IM SO FED UP AND DISGUSTED READING LOST PEOPLE MISGUIDED IVE NEVER POSTED ON ANY SITE BEFORE...currently I'm a dishwasher at a ruby Tuesday's..I used to be an aircraft mechanic for a major airline..my health and slowly went down hill. So very very recently I've discovered this, they're also blood type specific..where and how have I learned this...chiropractors also. One forum explained that a patient's Harvard educated G.I. specialist vaguely even heard of lectins. Thank you Monsanto and big pharma , also BT pesticide causes leaky gut too, it's designed to do same to catipillars too. I never believed it until my gut is now so sensitive my symptoms last for almost  a full seven day week. I just have to ride it out and take chamomile tea, organic $ brands using several tea bags and helps. Good luck to you all and leave no stone unturned in your journeys. Also look up psoriasis info caused by lectins too.

i also simultaneously get uti symptoms ie bacteria from lectins, detox tea and fresh lemon flushes it out,...

Soo all gluten free foods are using GMO ingredients corn starch, potato starch " modified food starch", etc etc so I can't and don't bother with shopping gluten free...read any and all Gluten Free labels..and compare non-GMO labels vs gluten free without GMO free label, most health and gluten-free bars are all soy, personally we're being scammed...this wont be posted I'm sure...why haven't I ever had a allergist explain this to me ..I'min the U.S., I've learned this from European, Australian, based nutrition sources online.

Kristin.com to start 

Open Original Shared Link

leave no stone unturned and do your own homework

 

Just an FYI - wheat is not GMO.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,827
    • Most Online (within 30 mins)
      7,748

    Michael P.
    Newest Member
    Michael P.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      First, the IGA score of 415 probably refers to what we call "Total IGA" rather than a specific IGA test for celiac disease per se. Physicians should always order this test along with other IGA tests to look for IGA deficiency. Total IGA checks for IGA deficiency. If you are IGA deficient, then other IGA tests will be artificially low and false negatives can result. You didn't included a scale along with the raw test score for the total IGA so I can't say for sure but it looks a little on the high side. Can you post back and include the scale for that? Or, was there a qualitative comment that came with that one like "High"? So, the long and short of this one is that it is not a test for celiac disease per se. A high value for total IGA can indicate other health problems, however and you may want to google that. Your TTG-IGA is barely out of the normal range and likely indicates some hidden gluten contamination in your life. If you eat out, you can expect to get some gluten even when you order the gluten free items from the menu since most eateries don't guard against cross contamination. They cook their gluten free food on the same surfaces and in the same pots and pans as their gluten free food and handle them with the same utensils. It is also possible to be getting some gluten from meds, pills and oral hygiene products.  But one thing I don't understand. How can you assume your test values are fluctuating when you don't mention that you have any other lab result score to compare the recent ones to? You were 10 when that was done. How long ago was that. If you haven't been tested since then, what do you have for comparison to say there is fluctuation? This might be helpful: and this:  
    • PA Painter
      I have non celiac sensitivity. I used to eat oatmeal with no problem. It causes a three day nightmare just as if it were wheat now. I seem to be an extremely sensitive case though.
    • thejayland10
      Hello,  I was diagnosed around age 10 with Celiac via endoscopy. I have been on a gluten-free diet ever since and have been taking my gluten-free diet way more seriously then I used to for the last 5 years. I only eat out at dedicated gluten-free places or make food at home.     I had not had blood work done for celiac since diagnosis and I checked in with a GI doctor as my primary care isn't a specialist. I was very surprised to see my IGA was 415 and my TTG IGA was 16 (Lab said over 15 is positive for antibody). My Endomysial Antibody SCR was negative and all my vitamin levels were normal.  I am meeting with a dietician next week but I am a bit stressed with these results now wondering if I have been somehow wearing gluten without knowing or if something else is going on.   Is it normal for IGA and TTG IGA to fluctuate like this ? 
    • AdelaW
      Thank you so much! I appreciate it, I was thinking the same thing so I guess it's just waiting for the biopsy results now! Thanks again!
    • trents
      Well come to the forum @AdelaW! One positive celiac blood antibody test with flattened villi in the small bowel would strongly support a diagnosis of celiac disease. There are some other medical problems that could cause these things but the odds of this being the case are very small when compared to the likelihood of celiac disease being the culprit.
×
×
  • Create New...