Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello Newbie Here :d


pauli

Recommended Posts

pauli Newbie

hey my names pauli im 19 and have recently realised i cannot handle gluten and dairy as it has made me very ill since childhood

i gave up dairy a year ago and all that horrid diahrea i grew up with has gone completly.

i have continued to eat grains. mostly oats lot's of them but always felt tired after eating them . and i sneeze a lot usually after eating any grains.

i have these purple circles under my eyes and my eyes are also somewhat sunken. this got really bad when i hit my teens.

i also have noticed since last year this sallow complexion that i have. which is making a sickly yellow around the purple circles. my eyes are not clear but they are not yellow :D so no jaundice.

my tounge has had this huge crack right in middle which i guess is spleen and stomoch.

i sneeze quite a bit and rub my eyes usually at night because they get a little itchy. my nose is pretty clear but i t's runny quite a bit also.

soi have decided enough is enough ive got to cut out everything that could potentionally be harming me.

i eat very healthily im a vegan since last year and i feel much better since my meat days.

so can i expect cutting out all these foods to make a difference for me :) thankyou for your time


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nettiebeads Apprentice

Glad you're feeling better. Are you gluten-free? The fatigue is a major symptom of being glutened. My fatigue can last for over a week from one small cross-contamination. Feel free to ask any questions here - none to personal or embarassing!

Annette

pauli Newbie
Glad you're feeling better. Are you gluten-free? The fatigue is a major symptom of being glutened. My fatigue can last for over a week from one small cross-contamination. Feel free to ask any questions here - none to personal or embarassing!

Annette

starting today i am gluten free i havn't had any grains or anything at all.

can i expect the fatigue to go as the weeks go by? and the paleness and circles i guess are the biggest cincern

thx for replying :) nice to meet you

elonwy Enthusiast

I had raccoon eyes all the time too. Mine took about a month to start fading. I've been gluten-free six months now, the fatigue is much better, my skin is much better. When I accidentally get gluten, it all comes roaring back though. I still have itchy, watery eyes, but its because I'm allergic to dust and pollen and smog. ( I was really hoping it was the gluten too, but no such luck :) ) I hope this helps you feel better. I had really bad insomnia too, which was horrific, I'd be completely exhausted and unable to sleep, and that went away after the first two months. I've had issues since I was a teen, but was only badly sick for about a year before I got diagnosed, so I think I bounced back quickly because of that, and I still think I have a ways to go, but hopefully it won't take long for you to feel better.

Elonwy

pauli Newbie

hey elonwy thx for replying :D

that makes me feel heaps better. i prob am allergic to dust and pollen aswell well actually prob just dust i don't sneeze outdoors.

im hoping for improvement in the next few months. i hope you feel better aswell to. i bought aciddophilus today it works well for me i only ever took it once when i was 16 so ill take this to aid the recovery quicker. i suffered insomnia last year now just restless sleep which may aswell be the same.

oh elonwy are your circles the purplish type? i read the darker ones are to do with organs.

is there anything in particular i should eat lot's of ie certain fruits and veggies oh and are sunflower seeds flax and sesame pumpkin ok?

thnx for the help guys appreciate it

Guest nini

I always had really really dark purple circles under my eyes. I think they went away when I was about 3 months into the gluten-free diet. I've read that dark circles under eyes were def. indicitive of food intolerances, so hopefully yours will go away as you get healthy.

pauli Newbie
I always had really really dark purple circles under my eyes. I think they went away when I was about 3 months into the gluten-free diet. I've read that dark circles under eyes were def. indicitive of food intolerances, so hopefully yours will go away as you get healthy.

hey aww wow now im determined thankyou for replying :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

it got really really bad before my dx, my mom used to comment on my dark circles all the time... anyway, I'm glad they are gone!

pauli Newbie
it got really really bad before my dx, my mom used to comment on my dark circles all the time... anyway, I'm glad they are gone!

i bet it must be a thrill not wake up looking like you got punched! lol

i have made a really nice breakfast today ill just share it . it's not quite oats but it's close

sunflower seeds half cup

flax seed 1/3

handful of raisins

and lot's of pumpkin seed also to get rid of those parasites

i read that if you take pumpkin with sweet things it drives them out there hiding place

anyway i add cinnamon also and a little licorice.

stick it all in the blender and switch it on for a few secs

then either use hot water or rice milk . i havn't tried rice milk just yet but im gonna get some today :D

hope you enjoy it also . what do you guys do for breakfast? :)

Guest nini

for breakfast? well, I'm eating a banana right now... usually I eat ceral bars by Enjoy Life Foods... I love em... chock full of yummy stuff...

if I'm in the mood for a hot cereal I like Barkat's Porridge... add a lil cinnamon to it and some honey... or bananas... yum

pauli Newbie

mhhm that sounds good :D. i found barkatts yesterday :D yaya tatses good.

is it normal to go through some detox while coming of gluten today i have been a little tired

but im guessing this probably jus withdrawal right? :)

Guest nini

yep very normal to go through detox... I def. remember going through that. I told my mom that it felt like I was withdrawing from some kind of drug... it was crazy. Didn't last too long though.

pauli Newbie

thats good i feel better today :D

i just made myself some butter beans with garlic and onions and some unpasterized miso

i have just noticed it says may contain gluten on the label. obviously i will never have this one again . it's the same with rice dream may contain traces of barley protein.

will i be ok?

elonwy Enthusiast

When you first start out theres going to be "accidents" as you learn to read labels and understand where stuff hides. As you go along these should get less and less. Mark it as something unsafe, and move on. You may not feel good for a couple days, or however long your "glutened" time is, but you'll get eventually. Really earlyon, you may not even notice the difference, but as it begins to clear out of your system you'll probably start to feel it more definitly ( at least I did) everyone is different though. Just be careful not to cheat deliberately, and the wonderful motto of "When in doubt, go without," treats me very well.

Elonwy

plantime Contributor

My racoon eyes come with my allergies. I never stopped to consider it as a gluten reaction. Something for me to think about!

pauli Newbie

great moto :D yup i felt very different after that little bit of gluten so it's a no no for that :)

munchkinette Collaborator

I've always had problems with dark circles too. I was even looking into that Hylexin stuff last month because I'm so sick of them. (That stuff is way too expensive though) Wow, it seems like almost everything that's bothering me could potentially be from wheat. I'm sure that a lot of us notice the circles more just on account of being so pale (based on the ethnic origin thread).

pauli Newbie

ive never been much of a wheat person more oats which are just as bad. im loving barkats porridge so good i grind sunflower seeds and pumpkin seed with lin and add it into the porridge makes it taste so earthy and natural :D

is there anything i should be eating lot's of to heal in right time?

also did anyone have that sallow pale complexion? i reckon it's probably anemia im suffering with on the count of gluten.

jerseyangel Proficient

The best things to eat while you are healing are basic, whole foods--fruits, veggies, meats, fish, good oils, water, etc. More complicated, packaged foods should wait until you are feeling better. If you have bad days after you begin adding more foods (and you probably will!), you can always go back to the simple foods until you feel better. The pale complexion could be a symptom of anemia--it's common in Celiacs because we don't absorb iron. I was extremely pale. Since I've been gluten-free, I have color in my face for the first time in years. The best thing to do would be to have a blood test--that will tell you whether or not you are anemic. I took iron suppliments for years--the gluten-free diet has gotten rid of my anemia completely.

Guest nini

I used to be so pale and sickly looking before gluten-free... but now, I get compliments on my "color" in my face... I even had people ask me if I've been tanning! (I'm NOT that colorful yet) but shows you how pale I was before.

Guest Robbin

I am so excited to get rid of the "black eyes" I have had since childhood. I always thought it was from sinus/allergies, but I guess its all from the causative chain of celiac. Wow, a group of people that are like me. This is like finding a long-lost family or something (!) Wish it were for a different reason, though I am glad to feel like I'm not a crazy hypochondriac. Only others with this problem can understand. :rolleyes::blink::D

pauli Newbie

i was just thinking the exact same thing robin. it's so great to hear everyones success storys :D i look forward to colour in my face ather than left over acne marks and yellowness lol

thanx for everyones replys love you all :D

pauli Newbie

before you all went gluten free did you have a reaction to oats? ive been reading that celiacs may tolerate it but i don't think it means that we still won't get symptoms later on.

im thinking silent celiac maybe.

this is what i ate loads of.

jerseyangel Proficient

Before I went gluten-free, I did have a reaction to oats. I liked oatmeal, but only would eat it when I knew I'd be home that day. It would always give me mild D--nothing terrible, but predictable enough to limit them. Stupid me, I thought it was because of the fiber and it was really doing me some good. Knowing what I do now, I can't believe I was so naive about the way foods affected me :ph34r:

plantime Contributor

I still eat oats. I only use McCann's Irish Oats. They did have a cc issue a while back, but they have taken care of it. I am quite sensitive, in that I will feel the pain in my gut if a reaction is taking place, and I have not had that pain with the McCann's oats. I did have that pain with the Quaker oats, though, so if you are going to eat oats, be careful. Pay attention to what your body is telling you, as some celiacs are intolerant of oats.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,461
    • Most Online (within 30 mins)
      7,748

    Shafran
    Newest Member
    Shafran
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @jimmydee! Celiac disease is an autoimmune disorder, meaning the consumption of gluten triggers a response by the immune system that causes the body to attack it's own tissue. Celiac disease has a genetic base that requires some kind of trigger for the genes to be turned on. We know that there are two primary genes responsible for providing the potential to develop celiac disease and we know that about 40% of the population carries one or both of these genes. However, only about 1% of the population actually develops celiac disease. So, that tells us that something more than just having the genes is necessary in order to develop celiac disease. Something must trigger those genes to wake up and produce the active disease. It's that "something" that we are struggling to understand and that is somewhat of a mystery. But there is a growing body of evidence pointing to the culprit being a disruption of the proper balance of microorganisms in the gut. Apparently, the microorganisms that live in our intestines produce chemicals that regulate the size of the openings in the mucous lining of our small bowel. A disruption in the healthy balance of this microorganic community causes an increase in the size of the openings in the mucous lining. This in turn allows protein fragments from the food we eat that are larger than normal to invade the mucous lining where they are detected as threats by the immune system. This is what is happening with gluten for those with celiac disease. The attack in the mucous lining of the small bowel by the immune system on these incompletely broken down gluten components causes inflammation and, over time, as we continue to consume gluten, it damages the mucosal lining of the small bowel which results in the loss of efficiency of nutrient absorption. This mucosal lining is made up of millions of tiny finger like projections that create an enormous surface area for the absorption of nutrients when healthy. The "wearing down" of these millions of finger-like projections due to celiac inflammation greatly reduces the surface area and thus the ability to absorb nutrients. This in turn typically results in numerous health issues that have a nutrient deficiency base. But the answer to the question of why there seems to be an epidemic of celiac disease in recent years may not be simple. It may have many facets. First, we don't know how much of this epidemic is real and how much is apparent. That is, how much of what we perceive of as a dramatic increase in the incidence of celiac disease is simply due to greater awareness and better detection methods? Celiac disease is not new. There is evidence from ancient writings that people suffered from it back then but they did not have a name for it. And it wasn't until WW2 that gluten was identified as the cause of celiac disease. Current thinking on what is causing imbalance in gut biology has put forth a number of causes including overuse of antibiotics and pesticides, environmental toxins, fluoridation of drinking water, preoccupation with hygiene and sanitation, and the western diet. https://www.celiac.com/celiac-disease/theories-on-the-growing-prevalence-of-celiac-disease-and-gluten-sensitivity-over-the-last-half-century-video-r6716/?tab=comments#comment-25345 All this to say that I doubt your UTI or the low dose aspirin had anything to do with the onset of your celiac disease. It was probably just coincidence unless the UTI was the stress trigger that activated the celiac potential genes. The onset of celiac disease an happen at any stage of life and many people report it following a period of illness. But what is interesting about your low dose aspirin theory is that aspirin is in a class of medications known as NSAIDs (Non Steroidal Anti Inflammatory Drugs). Scientific studies have shown that long term use of NSAIDs can damage the villous lining of the small bowel in the same way as celiac disease.  The other thing I wish to point out is that unless you have actual testing done for celiac disease, you can't be sure if you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms, the difference being that NCGS doesn't damage the lining of the small bowel. There is no test for NCGS, celiac disease must first be ruled out. NCGS is 10x more common than celiac disease. The antidote for both is a gluten free diet.
    • julie falco
      BRAND NAME: NOT BURGER PLANT-BASED PATTIES  A product I came across labeled gluten-free bought it when I got home I read the back ingredients further to notice that it says gluten with a line going through it u will see in the attached pics.     The label says down below that it is processed in a facility that also processes "WHEAT".  I tried to put this on the Gov. website as false advertisement but couldn't do it.  Maybe on here at least the word can get out to others not to purchase anything gluten-free without throughly reading the whole label....It won't let me upload 2 pics.  says to contact manager.   The products name is Not Burger    INGREDIENTS: Water, Pea Protein, Coconut Oil, Sunflower Oil, Natural Flavors, Bamboo Fiber, Less than 2% of: Methylcellulose, Dried Yeast, Rice Protein, Salt, Cocoa Powder Processed with Alkali, Psyllium Husk, Potato Fiber, Red Beet Juice Powder (color), Chia Protein Concentrate, Spinach Powder.   Manufactured in a facility that also processes wheat and soy.          MANUFACTURED FOR: The NotCompany, Inc, 438    Treat Avenue, San Francisco, CA 94110.
    • jimmydee
      Let me start by saying that I am self- diagnosed Celiac. I didn't want to pay for tests, because I don't have health insurance and the doctor said I would HAVE to eat gluten for the tests and I am afraid it will kill me. I diagnosed myself by quitting dairy, sugar and gluten for a couple weeks and figured out the problem by process of elimination.  ANYWAYS.......here's why I blame "Aspirin low dose safety coated" for my Celiac Disease.  I started taking regular Aspirin for a couple weeks for back pain and decided to switch to low dose safety coated Aspirin because I thought a smaller dose was safer for regular use. Well about 3 days after starting low dose safety coated aspirin, I got a terrible UTI. I didn't know what to do (should have gone to doctor) I started taking cranberry pills and read Aspirin can cause UTIs, so stopped taking that. A week later, the UTI was getting worse but then my Dad gave me some probiotic pills and the next day I felt better, so I took those for a week and the UTI was gone. About a week later, I bought my family cake and pizza for a birthday party. I ate a whole bunch and there was some leftover the next day, so I ate a bunch again. Welp, that was my first Gluten attack. I was home alone and almost called an ambulance, my stomach was so full of gas I couldn't breathe, I was covered in sweat and thought I was having a heart attack.  Since quitting Gluten I haven't had the "gas attacks" or had the awful constipation that lasts 3 days. So I'm certain I'm Celiac and I absolutely blame low dose safety coated Aspirin, I think it's the time release binder that is the problem, because I was fine with regular aspirin, I was just breaking those into halves or quarters. Actually now that I think about it I may have even used the regular aspirin at other times in my life before that, just not the little low dose safety coated Aspirin, that's what I think caused it. What's weird is my Dad took the low dose safety coated Aspirin for years and years, for it's reported heart benefits, and he never got Celiac.  Anyways, I felt this was important to share, so they can find the cause of this disease, which seems to be affecting more people than ever before. At least Gluten Free Pizza exists, that's been my new staple food in my diet.         
    • knitty kitty
      Welcome to the forum, @Karen Chakerian, We need more information, please.   What homeopathic remedies or medications are you taking now?  Do you still have the blood pressure and other symptoms?  What is included in your diet currently?  Dairy? Oats?  Processed gluten free foods?  Vegetarian?  Other food allergies?  Do you take vitamins?  When gluten is removed from the diet, the body stops making the anti-gluten antibodies that are usually measured in blood tests used to diagnose Celiac disease.  To measure the anti-gluten antibodies, you would have to consume 10 grams of gluten (4-6 slices of bread or equivalent) per day for a minimum of 2 weeks or longer.   A DNA test which looks for the most common genes for Celiac Disease may be a less invasive avenue to pursue.  Has your doctor checked you for nutritional deficiencies? Glad you're here!
    • knitty kitty
      @SaiP, Insomnia is listed as one of the side effects of Loratadine.   Niacin B3 in the form Tryptophan, Pyridoxine B 6, Folate B 9, Cobalamine B12, Magnesium, and Thiamine B 1 are needed to produce the sleep hormone melatonin.  Insomnia can also be caused by low Vitamin D and low Vitamin A.   A strict gluten free diet can be low in essential  vitamins.   Gluten containing products are required to replace vitamins lost in processing and milling.  Gluten free processed foods are not required to have vitamins added.  White rice is not a good source of B vitamins.  Brown rice is little better.  Exposure to light (even grocery store lights) and heat (during transportation) can destroy B vitamins.   B vitamins are easily lost in urine and diarrhea because they are water soluble.  If you have had diarrhea longer than two weeks, you are probably low in B vitamins.  Fat based vitamins, like Vitamins D and A, can be low due to fat malabsorption in Celiac disease, too.   Damaged villa in Celiac Disease do not absorb B vitamins and fat based vitamins and minerals well.  Supplementing with essential nutrients while villi heal boosts the ability to absorb essential vitamins and minerals.  Vitamins are stored and utilized inside cells.  Blood levels are not accurate measurements of vitamin deficiencies.  You can have normal blood levels while having deficiencies inside cells.  The brain orders cells to release their stores so the brain and heart can keep functioning.  This results in normal blood levels, but vitamin deficits inside cells.   Your indulgence in a little bit of bread is providing some, but insufficient amounts, of vitamins needed to make sleep hormone melatonin while keeping your inflammation and histamine production high.   In addition to a B Complex, I took 1000 mg of tryptophan before bed to correct my insomnia caused by high histamine levels.  Correcting my Vitamin D level to between 75-100 nmol/ml helped as well.  Also Passion flower extract is helpful in falling asleep quickly.   Please stop eating gluten bread as this will keep your autoimmune response triggering and your antibody levels won't go down and your histamine levels will stay up as well.   Celiac is a marathon, not a sprint.  P.S. I wanted to reiterate that insomnia and weight loss are symptoms of Thiamine deficiency.  Benfotiamine is a form of thiamine that promotes intestinal healing.  Thiamine is water soluble and nontoxic even in high doses.  High doses are needed to correct thiamine deficiency. All mitochondria in cells utilize thiamine.  The World Health Organization says to take 500 - 1000 mg per day of thiamine and look for health improvement.  Diets that are high in carbohydrates like rice and gluten require more thiamine.  For every 1000 calories from carbohydrates, we need 500 mg more thiamine.  Thiamine is found in meat.  Few veggies contain thiamine. Can you rise from a squat without assistance?  This is the field test for thiamine deficiency used by WHO.  If you cannot rise easily from a squat you may be thiamine deficient.
×
×
  • Create New...