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CELIAC DISEASE AND POLYCYTHEMA VERA


SamIPD

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Raquel2021 Collaborator
On 2/15/2021 at 9:48 PM, Posterboy said:

Cristina and Scott,

If you continue to have high Iron levels and hemogloblin levels......try some Turmeric.

I have taken it in the past.....not knowing it's connection....but since I have this condition too I have begin studying what else I can do....my ferritin levels went down at the time....but I didn't think much about it at the time.....now I  know there is a connection......

Turns out Turmeric can help lower ferritin and iron levels in those who have artificially high levels...

See this research on it entitled "Iron Deficiency Anemia Due to High-dose Turmeric"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6414192/

You will probably have to play with it a little to see how much you need and adjust up or down accordingly....

Might be better than giving them blood every month etc....

I hope this is helpful but it is not medical advice.

Posterboy,

I have the opposite problem.  I have normal hemoglobin after 3 years on the gluten-free diet (I used to have low hemoglobin)and high iron supplements but still struggling with ferritin of 9 sometimes 5 (normal range is 15 to 275). Can someone help? I deal with a lot of fatigue.  And I am.not able to raise my ferritin levels. 

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