Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Celiac Go Into Remission & Come Out With Stress?


Debra Leigh

Recommended Posts

Debra Leigh Newbie

Hello Everyone...

I am new here- I was diagnosed with Celiac 2 years ago. A final test - biopsy - confirmed the disease. I haven't had what I'd like to term as an 'outbreak' in several months. My stress level was down until recently, & I am asking if stress can really bring this out of 'remission'?

I have been fatigued more than usual for about a week now, & the nausea is back, waking me up in the middle of the night with burning in my stomach, & lasting throughout most of the day. Another symptom has been depression - not feeling sad- simply depression. I have dealt with depression in the past - a long time ago- & I know the difference. There has been nothing new or very different going on in my life to create the depression - feeling just plain down! I know that often times in the past when I have been 'coming down' with 'something' - a cold, the flu - I have felt very fatigued & down....Is this somewhat common with us??

I have other medical problems too - Hypothyroidism - Aortic Regurgitation (moderate to severe) - Lymphedema in my arms (genetic not from a Mastectomy) - Esophagus Reflux - Edema.......

All of the above I have been 'dealing' with for many years, so I know that these problems can also affect how I feel.....but, even though I have read information about this disease, I am not, by any means, completely educated as to how it can affect us.

Thank you for your time in reading this ..

Debra Leigh


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Are you following the gluten free diet?

Debra Leigh Newbie
Are you following the gluten free diet?

No - I haven't been - except to say that for about 8 days I have been eating mostly green salads & apples. But, my diet has not been gluten free....

When one does go on a gluten free diet does the beginning of the diet create a difficulty for the body to adjust?

Thank you for responding Laura...

Debbie

loraleena Contributor

Wait a minute, I am confused. If you are diagnosed with celiac, why aren't you on a gluten free diet. If you were and then went off because you thought you were better, than that is why you feel bad again. Gluten free diet is for life. There is no getting better and going off. Even if you don't feel symptoms, damage is being done. Also if you haven't eaten gluten again for the last 8 days, you are probably feeling withdrawal symptoms. You absolutely must go back on the diet. Good luck.

Rachel--24 Collaborator

I agree... you need to be on the diet. Celiac doesn't go into "remission"...you may not feel like its there...but it is and it still does damage and it will catch up to you.

Debra Leigh Newbie
Wait a minute, I am confused. If you are diagnosed with celiac, why aren't you on a gluten free diet. If you were and then went off because you thought you were better, than that is why you feel bad again. Gluten free diet is for life. There is no getting better and going off. Even if you don't feel symptoms, damage is being done. Also if you haven't eaten gluten again for the last 8 days, you are probably feeling withdrawal symptoms. You absolutely must go back on the diet. Good luck.

Thank you for your reply loraleena....

Sorry for the misunderstanding that I though I was better, so I went off the diet. I have never been on a completely gluten free diet. Why? Perhaps all only excuses....

I did find your comment ".....withdrawal symptoms" educational as I didn't know this could happen. Again, I am really just learning about how this disease can affect us. Also, I didn't know that even though we can seem to feel better, the damage continues on.

I do know that since I have lost weight (from a size 16 to a 10) in the last 6 months (except for the past week ), I have not had any of the following near to the degree that it was: joint pain, nausea, burning/pain in the stomache, fatigue, constipation/diarrhea, emotional downs, edema, etc.

Also, since I have left a negative situation/lifestyle, and have been living within a positive lifestyle with a positive attitude, I have felt better emotionally & physically. And, now since I am learning, and paying attention to the fact that a gluten free diet can make even more of a difference, I'm going to 'go for it'!!

Thank you for helping me...

Debbie

mouse Enthusiast

The doctor who diagnosed me knew nothing about this disease, except that I had to go gluten-free. But, after a year he said that I could cheat once a month since I was feeling so much better. NO YOU CAN'T CHEAT. The first month I cheated, I had no symtoms and I thought this was great. The second month I did my once a month cheating, I felt some minor symptoms. The third month, I felt MAJOR symptoms. I have never cheated since. My doctor is NOW educated that there is not cheating on this - NO MATTER HOW WELL YOU FEEL. This is really not too difficult, once you get the hang of it. We eat just like normal people in our home and I am the only one with Celiac. We have pasta and all the things necessary to feed three people who can eat gluten. But, ALL of the things I serve are gluten free and I feed an 18 yr old and a 20 yr old. They love my gluten-free brownies and even eat my pasta. This diet is VERY dueable. Good Luck and keep posting.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lollie Enthusiast

I agree with everyone else. You have to go on the gluten free diet. I was sick alot, and since going gluten-free I haven't had all the downs. Did your doc not tell you to cut ALL gluten out? I know it seems hard, but it is easier then you think. And it's very healthy. You said you had lost weight recently, the gluten-free diet would be a good way to keep it off! :D (I'm just trying to give you insentive)

Good Luck!

-Lollie

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,070
    • Most Online (within 30 mins)
      7,748

    Sashley
    Newest Member
    Sashley
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • KRipple
      Thank you so much! And sorry for not responding sooner. I've been scouring the hospital records and can find nothing other than the following results (no lab info provided): Component Transglutaminase IgA   Normal Range: 0 - 15.0 U/mL >250.0 U/mL High   We live in Olympia, WA and I will be calling University of Washington Hospital - Roosevelt in Seattle first thing tomorrow. They seem to be the most knowledgeable about complex endocrine issues like APS 2 (and perhaps the dynamics of how APS 2 and Celiacs can affect each other). His diarrhea has not abated even without eating gluten, but that could be a presentation of either Celiac's or Addison's. So complicated. We don't have a date for endoscopy yet. I will let my husband know about resuming gluten.    Again, thank you so much for sharing your knowledge with me!
    • trents
      Scott makes a good point about the prednisone. It has a general suppressing effect on the immune system. Don't misunderstand me. In view of your husband's several autoimmune afflictions, it would seem to be an appropriate medication therapy but it will likely invalidate endoscopy/biopsy test results for celiac disease.
    • Scott Adams
      I also want to mention that using prednisone would likely also make the endoscopy results invalid. This steroid will cause gut healing and could mask the damage caused by celiac disease. 
    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
×
×
  • Create New...