Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It Takes Time To Heal


Claire

Recommended Posts

Claire Collaborator

I posted this once but it never showed up so here goes again. If you see this twice please excuse. Claire

RECOVERY OF HEALTH OF THE INTESTINE TAKES TIME AFTER STARTING GLUTEN-FREE DIET

In this study, 158 people with celiac disease had their small intestines examined after starting a gluten-free diet. After 2 years, 65% of the people had healed intestines; after 5 years, 85.3% had healed, and beyond that 89.9% had healed. Children recovered up to 95% within 2 years and 100% in the years after. For 10.1% of people, there was little or no recovery of health of the intestine.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Little Northern Bakehouse
Little Northern Bakehouse



Celiac.com Sponsor (A8-M):
Holidaily Brewing Co.


mommida Enthusiast

This link could be helpful in a lot of the other posts too.

Thank you for posting.

Laura

Guest BERNESES

Claire- Thank you SO much for posting this. I know it's not great news but it's definitely reassuring to those of us who aren't progressing as quickly as we thought we would. . I know that I expected the gluten-free diet to work miracles over night, and while it might for some, it takes a lot longer for others. Thank you! You made my night with this one. Sigh.... (of relief)

Claire Collaborator
  BERNESES said:
Claire- Thank you SO much for posting this. I know it's not great news but it's definitely reassuring to those of us who aren't progressing as quickly as we thought we would. . I know that I expected the gluten-free diet to work miracles over night, and while it might for some, it takes a lot longer for others. Thank you! You made my night with this one. Sigh.... (of relief)

So glad this was a good post for you. Hope it is for others too. So many people here seem to be struggling with this issue. So many with such high hopes and then getting discouraged when it doesn't quite work out that way. That discouragement causes a lot of very negatives feelings - not good for recovery. This piece shouldn't discourage people from checking into exacerbating food intolerances as a cause of their discomfort as well. Claire

jerseyangel Proficient

Claire--I found the article most interesting and encouraging, also. I have an appt. with an allergist, who's nurse told me on the phone tests for food allergies and also does the RAST test. I told her I was a Celiac who seems to be having issues with other foods. I go the 1st. week of March. I've looked into the independant labs--I may still try going that route, but deceided to go and talk to this dr. first. Thanks for posting the article :)

tiredofdoctors Enthusiast

Wow -- what an eye-opening article. It's good that your body can heal -- but this idea that a lot of MD's have -- that you'll be "fine" in a few months -- according to some things I've read, some things I've heard -- was certainly shot down. Jersey Angel -- find out if your allergist is also an IMMUNOLOGIST. Usually it is a combined specialty. If that is the case, I would talk in-depth about the immunology portion of your disease as well. Allergies are one thing -- immunology issues are quite another. Found this out the hard way. Good luck to you. Will be keeping you in my thoughts and prayers.

thomas3000 Rookie

I think that article is interesting of course, but lacking in vital information. As I have said before, most if not all people with celiac disease have some type of infection(s) that delays healing. That's where testing for GI pathogens come into play.Using Hawthorne Berry extract and L-glutamine will speed up the healing process. I started a thread on this topic called "Radio program on Gluten Intolerance" and Dr. Bill Timmins ND explains this in great detail...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Smith & Truslow
Tierra Farm



Celiac.com Sponsor (A8-M):
Little Northern Bakehouse


Guest BERNESES

Thomas- I started taking LGlutamine and I HIGHLY recommend it. I will listen to the radio program you posted later- thank you for doing that.

Claire Collaborator

Hi Thomas.

Most non-technical articles on celiac are not 'thorough' - even wrong on some of the specifics and long on omission but some, like this one, contain a gem that makes up for any shortcomings. The posted paragraph is information badly needed by many on this forum who are discouraged because they set high expectations for 'recovery' that are not supported by the evidence.

Celiacs with neurological issues need to watch the intake of L-glutamine - if they even take it at all. Claire

jerseyangel Proficient
  tiredofdoctors!!! said:
Wow -- what an eye-opening article. It's good that your body can heal -- but this idea that a lot of MD's have -- that you'll be "fine" in a few months -- according to some things I've read, some things I've heard -- was certainly shot down. Jersey Angel -- find out if your allergist is also an IMMUNOLOGIST. Usually it is a combined specialty. If that is the case, I would talk in-depth about the immunology portion of your disease as well. Allergies are one thing -- immunology issues are quite another. Found this out the hard way. Good luck to you. Will be keeping you in my thoughts and prayers.

Lynne--Thank you for the good advice--I will certainly keep it in mind when talking to the doctor :)

ebrbetty Rising Star

claire, thank you for posting the link...I came on here tonight thinking I'm going to give up on the gluten-free diet starting tomorrow. My blood work came back borderline positive the first week of Jan [after years of severe daily stomach pain] ..I've been gluten-free since and was about 80% gluten-free for 4 weeks before the blood tests.

I'm still having stomach pain everyday, not as bad as before but its still a problem, even gluten-free bread hurts. my family thinks I should give it more time, and after reading that article I might continue the diet, but I think I should be feeling a whole lot better at this point.

would someone please tell me where the post on the radio program is?

thanks, Betty

i canary Rookie

Claire,

Thank you for posting this article. I'm taking a long time to heal and was beginning to wonder why.

Canary

  Claire said:
I posted this once but it never showed up so here goes again. If you see this twice please excuse. Claire

RECOVERY OF HEALTH OF THE INTESTINE TAKES TIME AFTER STARTING GLUTEN-FREE DIET

In this study, 158 people with celiac disease had their small intestines examined after starting a gluten-free diet. After 2 years, 65% of the people had healed intestines; after 5 years, 85.3% had healed, and beyond that 89.9% had healed. Children recovered up to 95% within 2 years and 100% in the years after. For 10.1% of people, there was little or no recovery of health of the intestine.

Open Original Shared Link

Claire Collaborator
  ebrbetty said:
claire, thank you for posting the link...I came on here tonight thinking I'm going to give up on the gluten-free diet starting tomorrow. My blood work came back borderline positive the first week of Jan [after years of severe daily stomach pain] ..I've been gluten-free since and was about 80% gluten-free for 4 weeks before the blood tests.

I'm still having stomach pain everyday, not as bad as before but its still a problem, even gluten-free bread hurts. my family thinks I should give it more time, and after reading that article I might continue the diet, but I think I should be feeling a whole lot better at this point.

would someone please tell me where the post on the radio program is?

thanks, Betty

Don't give up the gluten-free diet! Some of the results of neglected or untreated celiac are very, very serious p far worse than anything you have right now. Do investigate other causes of your discomfort. Food intolerance really flare up after going gluten-free - so consider that you have more than one thing going on and probably did even before going gluten-free. Claire :rolleyes:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse



  • Member Statistics

    • Total Members
      128,773
    • Most Online (within 30 mins)
      7,748

    kateys
    Newest Member
    kateys
    Joined

  • Celiac.com Sponsor (A20):
    NutHouse! Granola Co.


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Authentic Foods



  • Upcoming Events

  • Posts

    • MichelleGrant
      I received my blood test results for celiac serology (attached file). Results were negative. Only thing not great is CRP at 5mg/L (indicating inflammation), High ferritin at 165 (also indicating inflammation). My doctor said to keep following a strict gluten-free diet and that my tolerance to gluten seems to have gotten worse, and created inflammation with all the diarrhea/ stomach issues. She said to also stay away from my other triggers which are alcohol, soy, legumes and some vegetables (eg. cabbage / cauliflower / brussel sprouts). I generally follow a low fodmap diet. The gluten-free diet is going well - things are returning to normal.
    • fritz2
      So what relieves the joint pain?
    • trents
      Welcome to the forum, @Nikki03! What was the other result from the other physician's lab work? The test result you report in your post is not a celiac disease diagnostic test. It is a test for IGA deficiency. It is also known as "total IGA". There are other IGA antibody tests that are used to diagnose celiac disease but if you are IGA deficient, their scores will be artificially low. Obviously, you are not IGA deficient so if there were other IGA antibody tests run they should be trusted as accurate unless you had been on a gluten free or reduced gluten diet before the blood sample was taken. So, if you have other test results, please post them along with (this is important) their reference ranges. Raw...
    • Nikki03
      I had celiac labs done and got two different result from two physicians. I have tons of celiac symptoms and suspected it for a while now but this has me so confused can you help?    my labs results read as follows  immunoglobulin A QN =419 which was off the chart high but everything but that was in normal range.               Thanks sincerely confused!   
    • trents
      As I mentioned above, NCGS stands for Non Celiac Gluten Sensitivity. Celiac disease and NCGS share many of the same GI distress symptoms but NCGS does not damage the lining of the small bowel as does celiac disease and is not an autoimmune condition, as is celiac disease. NCGS is 10x more common than celiac disease but there are no tests for it. Celiac disease must first be ruled out. We actually know much more about celiac disease than we do about NCGS. Some experts believe NCGS can be a precursor to celiac disease. The only known antidote for either is total abstinence from gluten. Joint pain is a well-established symptom of celiac disease, one of the more than 200...
×
×
  • Create New...