Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Worse


lemonade

Recommended Posts

lemonade Enthusiast

I have been gluten-free for about 10 days now and alhtough my stomach symptoms are less, my fatigue is horrible and getting worse by the day. Have you exerience this before? Is this normal when starting out the gluten-free diet?

HELP

Lemonade :o:huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luceydiana Explorer
I have been gluten-free for about 10 days now and alhtough my stomach symptoms are less, my fatigue is horrible and getting worse by the day. Have you exerience this before? Is this normal when starting out the gluten-free diet?

HELP

Lemonade :o:huh:

Well, I've been gluten free (I think) for about 4 months now and when I started I felt awful. Tired, sick, just like crap. Then it got better. Then I think I was glutened by some stuff in my kitchen like strainers, tupperware, etc. and I changed everything now I feel like crap again, but my stomach is getting better.

Maybe your body does like a detox when it is really gluten free and that makes you feel like crap.

I don't know the answer but I know how you feel.

Diana

lemonade Enthusiast
Well, I've been gluten free (I think) for about 4 months now and when I started I felt awful. Tired, sick, just like crap. Then it got better. Then I think I was glutened by some stuff in my kitchen like strainers, tupperware, etc. and I changed everything now I feel like crap again, but my stomach is getting better.

Maybe your body does like a detox when it is really gluten free and that makes you feel like crap.

I don't know the answer but I know how you feel.

Diana

thanks for the relpy, i feel like utter crap :(

tarnalberry Community Regular

make sure you're getting enough food - and high quality food, not just highly processed rice based carbs out of lots of gluten-free substitutes. and plenty of rest. you're body is in overdrive trying to repair itself right now, and is going to use its energy for itself.

Lisa Mentor

I would suggest that you go to the dr.office and get a full blood work up. I was deficient in lots of things, including B-12 and folic acid. It does not cost alot and it is a base line test to show improvement in the future.

keburns Newbie

Hi,

Just an fyi...you're going through a withdrawal period. It usually takes 3 to 6 weeks before you even start to feel better, unless you're sensitive to all grains (including white potatoes). If that's the case, you will just feel worse as you ingest other gluten-free flours/grains in place of the wheat, etc. My 2 grandchildren and I are unable to eat any grains without a reaction of some kind (bone, muscle, joint pain, colitis, depression, whining, foul bowl movements, an so on). It was a nightmare when they were infants and daycare is a special challenge.

Good luck. Karen

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,986
    • Most Online (within 30 mins)
      7,748

    Vickie Clancy
    Newest Member
    Vickie Clancy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      I am a male and had developed osteopenia by age 50 which is when I finally got dx with celiac disease. I am sure I had it for at least 13 years before that because it was then I developed idiopathic elevated liver enzymes. I now have a little scoliosis and pronounced kyphosis (upper spine curvature).  All of your symptoms scream of celiac disease, even if the testing you have had done does not. You may be an atypical celiac, meaning the disease is not manifesting itself in your gut but is attacking other body systems. There is such a thing as sero negative celiac disease. But you still have not given me a satisfactory answer to my question of why do you need a differential dx between celiac disease and NCGS when either one would call for complete abstinence from gluten, which you have already been practicing except for short periods when you were undergoing a gluten challenge. Why do you want to put a toxic substance into your body for weeks when, even if it did produce a positive test result for celiac disease, neither you or your doctors would do anything different? Regardless of what doctors are recommending to you, it is your body it is affecting not theirs and they don't seem to have given you any good justification for starting another gluten challenge. Where you live, are doctors kings or something?
    • WildFlower1
      Sorry to put it clearly, at 15, infertility started (tried to word it nicely) meaning menstruation stopped. Which is in correlation to celiac I mean. Thank you. 
×
×
  • Create New...