Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Treatment Post Glutening?


silly-yak-mum

Recommended Posts

silly-yak-mum Apprentice

Sorry if this has been posted before but I read many many posts and couldn't find any suggestions.

My son can go many months without an accidental glutening but inevitabley it happens. This last month has been tough as he's been glutened 3 times! (I think he's trying to "self select" his food and doesn't have the experience yet to find those hidden glutens.)

But, in addition to the long term effects, I feel bad that I can't ease his immediate pain. He does use Pepto Bismal now but does anyone have something that works for them? His symptoms are usually quite severe and he has to come home from school. I'd even try an old wives tale if you have one!

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

There's not a lot you can do but supportive measures. Rest, easy to digest foods, ginger or mint teas, etc and plenty of water.

Canadian Karen Community Regular

When I am glutened, my heating pad is my best friend...... :D

Karen

plantime Contributor

All I can do is curl up in bed. Tiffany, how do I make ginger tea? I found some premade bags of it, but they were blended with teas I am allergic to.

Guest MyKidsMom

I find that the Aloe Vera Juice from GNC really helps with the tummy pain...I still have the brain fog, muscle and joint pain, etc. But for me the relief is instant and saves me from curling up into a ball. It is an acquired taste and I like the Mixed Berry best. Just as big a gulp as I can take and then more gulps if needed. Stay away from the flavors with pulp, too.

thomas3000 Rookie

Try alka-seltzer gold

TCA Contributor
I find that the Aloe Vera Juice from GNC really helps with the tummy pain...I still have the brain fog, muscle and joint pain, etc. But for me the relief is instant and saves me from curling up into a ball. It is an acquired taste and I like the Mixed Berry best. Just as big a gulp as I can take and then more gulps if needed. Stay away from the flavors with pulp, too.

How long does it take the joint pain to manifest itself and how long does it last? trying to pinpoint glutening....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aikiducky Apprentice
All I can do is curl up in bed. Tiffany, how do I make ginger tea? I found some premade bags of it, but they were blended with teas I am allergic to.

Buy some fresh ginger root, peel it, cut in pieces, and boil in plenty of fresh water. Don't use too much at once, a few small pieces will be enough for several cups of tea. You can add your favorite tea to this, or drink it with honey, or just plain.

Pauliina

Guest MyKidsMom

My joint pain usually comes on within 4-6 hours and lasts anywhere from 4-7 days, usually the longer amount. The brain fog lasts a couple days longer than that for me.

nogluten- Newbie

Imodium works better than Pepto, but if you can get an rx I would say Robinal Forte, Symax or Bentyl really helps cramps a lot. Also if you can eat a banana and honey will soothe your stomach, along with as much water as possible. Everyone is different, but that is what helps me with Celiac and Crohn's too. When I have the joint pain I take a warm bath with epsom salt and then curl up in bed. Good luck. I hope your son is doing better.

Guest MyKidsMom

Before my gallbladder was removed I used Bentyl, too, and loved it. It was very expensive though. The warm baths are a great idea, too. I like to go to Aquasize for exercise and it feels great when I am aching.

silly-yak-mum Apprentice

As always! Thanks so much for the ideas. I will try them all!

Today is a better day - we have survived another glutening but I want to be ready for the next time.

Have a fun & healthy day!

penguin Community Regular

Bentyl is awesome!

Also, if you are throwing up and have abdominal pain that's really bad, and you can get a prescription, phenergan works well. Um, it's kind of gross to take, because it's not oral

Knocks you flat on your butt, but at least it doesn't hurt as bad :blink:

I find that laying on my back on a triangular stack of pillows helps, so does a heating pad

plantime Contributor

Thank you Pauliine.

tarnalberry Community Regular
Buy some fresh ginger root, peel it, cut in pieces, and boil in plenty of fresh water. Don't use too much at once, a few small pieces will be enough for several cups of tea. You can add your favorite tea to this, or drink it with honey, or just plain.

Pauliina

Yep. you can get bagged ginger tea that's just ginger at health food stores (I do this for work, where it isn't as convenient to use fresh ginger) or you can get ginger juice (at Whole Foods, by "The Ginger People") I like it pretty strong, and will use about four or five *very* thin slices off of a piece of ginger in a single mug of water.

Lollie Enthusiast

I do the heating pad, water, and I really like diet sprite. I have always drank it when I was in pain, prior to finding it was celiac. I like a hot shower, too! i actually have muscle relaxers that work well when I'm really sick....cramping and all. But I don't know if that would be appropriate for your son.....

Anyway, that is what works for me!

Lollie

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,062
    • Most Online (within 30 mins)
      7,748

    Robinlee
    Newest Member
    Robinlee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I also want to mention that using prednisone would likely also make the endoscopy results invalid. This steroid will cause gut healing and could mask the damage caused by celiac disease. 
    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
    • trents
      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
×
×
  • Create New...