Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible celiac struggling to manage


daisyb00

Recommended Posts

daisyb00 Rookie

Hi, I’ve been really struggling to manage my symptoms of possible celiac disease and was just hoping for some guidance. (This is about to be very long so I’m sorry) 
 

Early December I had a bad fall and suffered some trauma to the head and was also under a lot of stress due to mock examinations. For a while I had been feeling fatigue but all of this was amplified after the fall and I was struggling to stay awake in lessons/ would just collapse after college. I was also having bad pain sometimes after eating and would get my worst fatigue after meals/ during the afternoon/ evening. I paid a visit to the GP and got some blood work done which came back low in iron and also high for celiac (very surprised but I do have a cousin with very bad celiac, been hospitalised etc). I got put on iron tablets and booked in for an endoscopy however this got cancelled due to the COVID-19 situation. 
 

My issue now is that my GP has advised to stay on the iron (I am starting my 5th month on 210mg 3x a day) and also keep eating gluten as we don’t know when my endoscopy will be as it could be a quick turn over (as in find out about it and then have it the week of) so we want to minimise chances of a false response. However I’m in such bad pain and so fatigue, my bloating is so severe I go up a dress size/ 2 and it’s like rock solid. My mum thinks I should cut out gluten for the foreseeable future to ease my pain. Just wondering if anyone can help with suggestions/ a bit of hope that things won’t stay like this. 
 

Many thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi,

You don't need to eat a lot of gluten to keep the antibodies active for testing.  The equivalent of about a slice of wheat bread daily is enough.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - glucel replied to Bindi's topic in Super Sensitive People
      30

      Refractory or super sensitive?

    2. - cristiana replied to jadeceoliacuk's topic in Doctors
      3

      How to choose a Naturopath for 6yr old

    3. - jadeceoliacuk replied to jadeceoliacuk's topic in Doctors
      3

      How to choose a Naturopath for 6yr old

    4. - Wheatwacked replied to Gluten is bad's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Gluten Free ADHD medications

    5. - Scott Adams commented on Scott Adams's article in Gluten-Free Foods & Beverages
      10

      What Brands of Energy Bars are Gluten-Free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,908
    • Most Online (within 30 mins)
      7,748

    Rallyman
    Newest Member
    Rallyman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • glucel
      Depending on which source you research sprouting or fermentation can reduce lectins. I sprout rice, buckwheat and quinoa. However, I admit that gas and intestinal inflammation still plague me after 5 1/2 mo gluten-free. I have been resisting but I may try the aip diet at some point.
    • cristiana
      Hi @jadeceoliacuk I am a UK based coeliac and I have used a private nutritionist a few times. She is very highly qualified and having just googled her details, she is listed on this website (see link).  For that reason, I think you could trust the listings here as I am quite sure she would not want to associate with this website unless it was a professional, trustworthy resource. https://www.nutritionist-resource.org.uk/ I hope this helps. Cristiana  
    • jadeceoliacuk
      thank you knitty kitty. I will give those articles a read. Yes he is deficient in Iron and Vit D, that is all they tested for. Do you have any tips for finding a pediatric nutritionalist? He has an NHS dietician who has been helpful sending me generalised info on increasing Iron and cutting out dairy but they won't see him now for another year and I feel like I need more support than that...
    • Wheatwacked
      Yes,  Lisinopril gave me an inguinal hernia from the persistant cough. Amlodipine doubled urine output and dry eyes so I could not wear contacts, another had me walking bent over like a ninety year old and one knocked out control of my quadracepts so knees would give out.  None lowered my blood pressure. Average BP  132/67 for Oct 21 - 26.  Lowest was 100/59. High 157/62.
    • pasqualeb
      Yes, thank you and I am seeing a neurologist , getting a script for a steroid followed by some  PT when inflammation goes down. Good luck to  you pasquale
×
×
  • Create New...