Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach Still Bad, More Testing..

num1habsfan

By num1habsfan
in Coping with Celiac Disease

Recommended Posts

num1habsfan Rising Star
num1habsfan
Posted

So after my not that long (but not that easy) midterm, I got home, relaxed for a bit, and went to the hospital @ 5:30 .. well it made me mad, because the nurse (who i've never seen before) checked my temp/blood pressure, asks whats wrong, I had to tell HER how to spell Celiac, and told me to wait .. and so I sat there for 45 minutes, and she comes back to the room and says the doctor wont be here til 7.

So i walked home, at 7 I went back, and got home around 9...

More bloodwork, more urine sample ...

This time, the bloodwork actually SHOWED something. He said that my white blood cell level is high, so I may have an infection of some sort (but the urine was normal)..

This was the other doc in town that i'd never seen before, so now I have seen them all :P

He said finish what I had from my last week's prescription, and take another strong antibiotic that supposed to help (for a week) .. gotta take it 3 times a day with food..

And then if that dont work, he'll get me scheduled for an ultrasound in Yorkton (but said waiting list will be around a month) :blink:

Blah I just want to feel bettterrrrr. :(

~lisa~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Hi Lisa--That does sound frustrating! It's terrible to do all the right things, see the doctor and still not get any real answers. Been there, and completely understand :( . I wish I could offer more, but its good that you're on something for the infection (be sure to finish all of it & take it on schedule). Let's hope that will take care of it, if not, they can do the ultrasound--but in the meantime, be good to yourself. I know you're busy with school, etc. but it's important to get as much rest as you can, eat well and get plenty of fluids. You must be about worn out from all of this! Keep in touch. :)

PS--It may be a good idea to take probiotics along with the antibiotics, if you aren't already, since you've been on them for a while now.

Becky6 Enthusiast
Becky6
Posted

I am sorry! It is so furstrating to be sick with no cause! I hope you feel better soon! Def taking probiotics while you are on the antibiotics.

minibabe Contributor
minibabe
Posted

More bloodwork, more urine sample ...

This time, the bloodwork actually SHOWED something. He said that my white blood cell level is high, so I may have an infection of some sort (but the urine was normal)..

Lisa,

I feel really bad for you, I totally understand. This is my third year of college and I basically missed the first year because I always felt sick. I feel really bad for you.

This might help....

My doctor told me once, that having a high WBC count it shows that there is an inflamation somewhere but we dont know where. This was before I was diagnosed. To my understanding, if I get glutened my WBC count goes up because there is an inflamation in my body somewhere. You should go over the things that you have been eating to see if possibly you have been contaminated. You might be on all of these medications for no reason....and I know how much of a pain it is to take it regularly, plus the side affects are horrible.

I hope that you feel better soon, I have to take all of my midterms in about 3 weeks <_<

Hope that you did good. :)

Amanda NY

num1habsfan Rising Star
num1habsfan
Posted
  • Author

Thanks guys. I dont think I did very well on the exam at all.

And you know, I was planning to study tonight, but I ended up falling asleep for 3 hours after taking my medication. :blink:

The one I am on, Clavulin, the main side effect is stomach pains (which I am definitely getting those side effects). So I dont even know the difference between my normal pains and these, only worse..

Thats my update..

~lisa~

num1habsfan Rising Star
num1habsfan
Posted
  • Author

Well so much for this medication making me dopy enough to sleep :P

Its after 2 am right now, i have to wake up in 5 hours, and even though I am dozy/dizzy i cant sleep because my stomach is throbbing/burning .. how nice :rolleyes:

~lisa~

ravenwoodglass Mentor
ravenwoodglass
Posted
Thanks guys. I dont think I did very well on the exam at all.

And you know, I was planning to study tonight, but I ended up falling asleep for 3 hours after taking my medication. :blink:

The one I am on, Clavulin, the main side effect is stomach pains (which I am definitely getting those side effects). So I dont even know the difference between my normal pains and these, only worse..

Thats my update..

~lisa~

Do you know for sure that this med is gluten free? Check with a pharmacist to be sure. It is surprising how many meds have gluten in them.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


num1habsfan Rising Star
num1habsfan
Posted
  • Author
Do you know for sure that this med is gluten free? Check with a pharmacist to be sure. It is surprising how many meds have gluten in them.

I've talked to both of my pharmasist, and they say theres nothing you could really do about it (because if I need it, I need it, and none of them have had any substitutes)..

~lisa~

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. DayaInTheSun
      - DayaInTheSun replied to DayaInTheSun's topic in Coping with Celiac Disease
      5

      Being a burden to family/friends

      Interesting you mention MCAS. I have come across mcas before but I wasn’t entirely sure if that’s what it was. When I eat certain food like dairy or soy my face gets so hot and I feel flush and my heart rate shoot’s up. And sometimes my bottom lip swells or I get hives somewhere. This started happening after I had a really bad case of Covid. Before that ...
    2. Kiwifruit
      - Kiwifruit replied to Kiwifruit's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Years of testing - no real answers

      This is all really useful information, thank you so much to you both. I have a history of B12 and vit D deficiency which has always just been treated and then ignored until it’s now again.
    3. trents
      - trents replied to Gill.brittany8's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      9 Year Old test results - help interpret

      Welcome to the forum, @Gill.brittany8! There are two main genes that have been identified as creating potential for developing celiac disease, HLDQ2 and HLDQ8. Your daughter has one of them. So, she possesses genetic the potential to develop celiac disease. About 40% of the general population carries one or both of these genes but only about 1% of the...
    4. Gill.brittany8
      - Gill.brittany8 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      9 Year Old test results - help interpret

      Hi everyone After years of stomach issues being ignored by doctors, my 9 y/o daughter finally had an upper endoscopy which showed a ton of stomach inflammation. The GI doctor ordered some bloodwork and I’m attaching the results here. Part will be from the CBC and the other is celiac specific. I’m not sure what’s relevant so I’m just including extra i...
    5. Mnofsinger
      - Mnofsinger replied to Mnofsinger's topic in Related Issues & Disorders
      7

      Food Tasting Salty

      Those are great points and some follow up thoughts and ideas. I think you're both stating the same thing in two different ways, but I appreciate the "accuracy" of what you're getting to. 1. Are you both stating that the "too salty of a taste" could be triggered by a histamine reaction, and the flavor is coming from the electrolytes? If...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,835
    • Most Online (within 30 mins)
      7,748
    Art Glassman
    Newest Member
    Art Glassman
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DayaInTheSun
      Being a burden to family/friends

      By DayaInTheSun · Posted

      Interesting you mention MCAS. I have come across mcas before but I wasn’t entirely sure if that’s what it was. When I eat certain food like dairy or soy my face gets so hot and I feel flush and my heart rate shoot’s up. And sometimes my bottom lip swells or I get hives somewhere. This started happening after I had a really bad case of Covid.  Before that I was able to eat all those things (minus gluten) I was diagnosed with celiac way before I had Covid.  Hmm, not sure really. I may look for a different allergist my current one told me to take Zyrtec and gave me an epi pen. 
    • Kiwifruit
      Years of testing - no real answers

      By Kiwifruit · Posted

      This is all really useful information, thank you so much to you both.    I have a history of B12 and vit D deficiency which has always just been treated and then ignored until it’s now again.
    • trents
      9 Year Old test results - help interpret

      By trents · Posted

      Welcome to the forum, @Gill.brittany8! There are two main genes that have been identified as creating potential for developing celiac disease, HLDQ2 and HLDQ8. Your daughter has one of them. So, she possesses genetic the potential to develop celiac disease. About 40% of the general population carries one or both of these genes but only about 1% of the general population develops celiac disease. It takes both the genetic potential and some kind of triggering stress factor (e.g., a viral infection or another prolonged health problem or an environmental factor) to "turn on" the gene or genes. Unfortunately, your daughter's doctor ordered a very minimal celiac antibody panel, the tTG-IGA and total IGA. Total IGA is not even a test per celiac disease per se but is a check for IGA deficiency. If the person being checked for celiac disease is IGA deficient, then the scores for individual IGA tests (such as the tTG-IGA) will be abnormally low and false negatives can often be the result. However, your daughter's total IGA score shows she is not IGA deficient. You should consider asking our physician for a more complete celiac panel including DGP-IGA, TTG_IGG and DGP-IGG. If she had been avoiding gluten that can also create false negative test results as valid antibody testing requires having been consuming generous amounts of gluten for weeks leading up to the blood draw. Do you know if the GI doc who did the upper GI took biopsies of the duodenum and the duodenum bulb to check for the damage to the small bowel lining caused by celiac disease? Having said all that, her standard blood work shows evidence of possible celiac disease because of an elevated liver enzyme (Alkaline Phosphatase) and low values for hemoglobin.
    • Gill.brittany8
      9 Year Old test results - help interpret

      By Gill.brittany8 · Posted

      Hi everyone  After years of stomach issues being ignored by doctors, my 9 y/o daughter finally had an upper endoscopy which showed a ton of stomach inflammation. The GI doctor ordered some bloodwork and I’m attaching the results here. Part will be from the CBC and the other is celiac specific. I’m not sure what’s relevant so I’m just including extra information just in case.   The results are confusing because they say “No serological evidence of celiac disease. tTG IgA may normalize in individuals with celiac disease who maintain a gluten-free diet. Consider HLA DQ2 and DQ8 testing to rule out celiac disease.” But just a few lines down, it says DQ2 positive. Can someone help make sense of this? Thanks so much.  result images here: https://ibb.co/WFkF0fm https://ibb.co/kHvX7pC https://ibb.co/crhYp2h https://ibb.co/fGYFygQ  
    • Mnofsinger
      Food Tasting Salty

      By Mnofsinger · Posted

      Those are great points and some follow up thoughts and ideas. I think you're both stating the same thing in two different ways, but I appreciate the "accuracy" of what you're getting to.   1. Are you both stating that the "too salty of a taste" could be triggered by a histamine reaction, and the flavor is coming from the electrolytes? If that is the case, wouldn't the individuals mouth always be salty during a "Glutening" situation, or are we saying that the person could get "use to the flavor" until introducing food or beverage and that could be enough to "stir the pot" and notice the salty flavor? 2. To push back on "#1": If that were true anyone with issues of histamine releasing foods/treatments would experience the same thing. Also, I did not experience a situation where most beverages were "too salty". Thoughts?
×
×
  • Create New...