Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms


Kayleen007

Recommended Posts

Kayleen007 Rookie

First off..I don't even know for certain if I have celiac disease. I have been diagnosed with a few other things like Irritable Bowel..but when I had a horrible attack at my father's house (and it was not long after I ate a bunch of French Toast) he said it looked and sounded like celiac disease (a friend of his has it) and gave me this website to go to. And it sounds exactly like what I have. The thing is, I don't have the money (and no insurance) to be tested.

So..I've just gone completely gluten-free. It's only been about a week, and for the first few days (even now) I was still getting the hang of it. Exactly how long should it be before I start feeling even a little better?? I've had a few severely bad attacks in the last week. I know that depending on the damage to your intestines, it could take a while before you feel better. But exactly how long should I give it before I start to think that maybe it's not celiac disease? Any suggestions?? :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

Hi, it can take some people months to feel better. I can tell you that after I was gluten-free for a couple of days the (daily) abdominal pain I had lived with for over a year was GONE!!! If you continue to have problems after a coule of weeks you need to make sure you are not getting any "hidden glutens".

Also when you get a little money you could be tested through Open Original Shared Link it is a stool panel test which is more sensitive than blood and you DO NOT have to be eating gluten for it to be accurate. The test I bought (gluten sensitivity) was around $120.00 (overnight shipping charges were included).

There is a lot of info on this site, in particular the section where you posted this message. If you get a chance read through some of the stories, I think it will help you.

Good luck and take care :D

kaylee Rookie

Hi,

I think everyone must wonder about this question - it's such a seemingly simple treatment for often a whole host of problems. And, in reading previous answers to this question as mentioned above it quickly becomes evident that the gluten-free diet treatment works almost immediate wonders for some people, takes a lot longer for others, and is only part of a solution to what turns out to be more than one problem (frequently people with celiac find out they also have other food intolerances/allergies).

As many people have said in other posts, you might consider going for a dairy-free spell as well, at least for a while at the beginning while your body works things out. Taking things more simply foodwise for a while seems to agree with many people newly gluten free.

Best,

Kaylee

travelthomas Apprentice

One human trait seems to be the belief that if it

celiacfreeman Contributor

I feel younger and more energenic. gluten-free for 4 months and feel fully recovered from

anemia. I have had 7 or 8 people tell me I look 10 to 15 years younger. Gotta love that. I thank the lord for giving me a physicain who pushed me to a gastro doc who looked at me and said, I wonder if you have Celiac disease. It's incredible, given my symptoms as just being anemic.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to sadiec123's topic in Coping with Celiac Disease
      4

      mental health struggles

    2. - knitty kitty replied to Sarah Marie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Bloodwork Help for my Teen

    3. - knitty kitty replied to emily 1's topic in Coping with Celiac Disease
      11

      Black Pepper Reactions

    4. - emily 1 replied to emily 1's topic in Coping with Celiac Disease
      11

      Black Pepper Reactions

    5. - knitty kitty replied to emily 1's topic in Coping with Celiac Disease
      11

      Black Pepper Reactions


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,059
    • Most Online (within 30 mins)
      7,748

    Steve58
    Newest Member
    Steve58
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      How are you doing, @sadiec123?  Did you get through the holidays alright?    Have you been checked for nutritional deficiencies?  Many newly diagnosed Celiacs  are low in Vitamin D and many of the B vitamins like thiamine.  Thiamin insufficiency can cause weight loss and loss of appetite (anorexia) as well as affect mood.   Benfotiamine has been shown to promote intestinal healing and improve mood.
    • knitty kitty
      I agree, @Sarah Marie, it's best to keep eating gluten and get on the doctor's cancellation list.  Some people have extreme symptoms when reintroducing gluten after a brief abstinence.  Be sure she consumes six slices of bread or gluten-y equivalent a day in the two weeks prior to the endoscopy.  There are different amounts of gluten in different products.  Chewy pizza crust and artisan breads have more gluten than cookies and cakes. Keep us posted on your progress!
    • knitty kitty
      Those are links to articles on this site.  I don't do Instagram either. https://www.celiac.com/celiac-disease/cross-reactivity-between-anti-gliadin-antibodies-and-proteins-in-spices-may-trigger-symptoms-in-some-people-with-celiac-disease-r5900/ And  https://www.celiac.com/celiac-disease/beyond-gluten-exploring-lesser-known-triggers-and-cross-reactivities-for-celiac-patients-r6350/  
    • emily 1
      Wow! That's really good information. I have noticed that my Celiac symptoms are ever increasingly seeming like allergy symptoms as well. Stuffed up head, horse throat post navel drip symptoms. I'm afraid I'm not sure I understand how to follow the links you sent for the expanded version of non-histamine diet? Are those Instagram addresses? Because I don't do Instagram. Thank you so much for that reply. To my knowledge, I'm okay on all of those things. Although I don't think that I've been tested for zinc. I do know when the flu's going around I try taking zinc mixed with quercetin but that seems to put my autoimmune into overdrive. As does some of these over-the-counter things which are recommended for traveling. To boost the immune to prevent sickness. Also things like echinacea and elderberry which you would think would be innocuous
    • knitty kitty
      Canker sores can be more frequent if deficient in zinc, Thiamin B1, Riboflavin B2, Pyridoxine B6, Cobalamine B12, Folate B9, iron and Vitamin D.   Following a low histamine paleo diet helps heal.  Mast cells in our body make histamine and release it as a part of the inflammation process.  Foods that contain high histamine levels can make inflammation worse.  Mast cells get "itchy triggers" and can release histamine when exposed to some spices and foods.  The vitamins listed above are also required to clear histamine along with Vitamin C.  Following a low histamine diet like @Mari and @Blue Roanand keeping a food journal like @Blue Roan does are excellent ways to travel on our Celiac journey.
×
×
  • Create New...