Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Elevated TTG IgA


tbery

Recommended Posts

tbery Newbie

Hi Everyone,

My 16 yo daughters TTG IgA came back at 18.7, the normal range is up to 14.9 so it seems mildly high, is this correct. She has always had stomach issues, but recently she has had terrible fatigue with cramping and more diarrhea. My question is, back in 2010 she two test 3 months apart because we saw a homeopathic doc that did a stool test and it came back positive for celiac- or at least a high likelihood. We then went to our primary doc and they did a TGG IgA then and it was 10, then in three months it was 11. They did not do any other testing at the time. She has some food sensory issues so her diet is not good. She is chronically anemic and low in many vitamins like Vit D and Vit B12. Im not sure if I should request a biopsy at this point. It should be noted during her blood draw they had a very difficult time getting her blood and kept pushing on the needle and eventually had to use her other arm, so Im not sure if that sample could have been damaged or not. I appreciate all your help. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Is there any way for her to get the rest of the celiac blood panel?  I completely get the blood draw.  (My kid (19 years) always needed a pediatric needle.  We always asked for the best phlebotomist, but my kid always passed out.  It was always painful.  Her veins were so tiny.)   I doubt the blood sample was damaged.   Or is the doctor willing to give her a diagnosis without an endoscopy and then trial the diet?  My own anemia resolved within months of the gluten-free diet.  That can be another indication  of healing besides a repeat TTG test.

Know that mildly elevated TTG  results does not mean mild small intestinal damage.  There could be a lot of damage.  

Eating  disorders are often common in undiagnosed celiac kids.  

I hope this helps.  

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,210
    • Most Online (within 30 mins)
      7,748

    TerryinCO
    Newest Member
    TerryinCO
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      knitty kitty makes a good point. Avocados are high in histamines. So are bananas. Both also trigger histamine production in the body when consumed so there's a double whammy with those two foods for those struggling with histamine intolerance/MCAS
    • knitty kitty
      @Sharke, The updated guidelines for a gluten challenge are to eat ten grams of gluten per day for two weeks minimum.  Lesser amounts of gluten (3 grams) don't provoke an immune response strong enough that the antibodies leave the gastrointestinal tract and get into the blood where they can be measured in tTg blood tests.   Have no doubt that the antibodies made in the small intestine are doing damage there, even if you don't suffer severe symptoms, yet. Did you react to barley prior to going gluten free? Have you been checked for chronic autoimmune gastritis which is another autoimmune disease that sometimes occurs with Celiac Disease? Have you been checked for nutritional deficiencies?  Thiamine deficiency (Gastrointestinal Beriberi) can cause constipation and/or diarrhea, abdominal pain, and weight loss.   Thiamine Deficiency Disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/  
    • knitty kitty
      @sillyyak52, Count another one in the same boat!  My family has always been in denial.  They said my tummy aches were a ploy to miss school.  My parents passed from health problems associated with uncontrolled Celiac Disease (Abdominal Aortic Aneurysm and Glioblastoma brain tumor).  My sister still has her head buried in the sand.   I agree with @Rogol72, try the consequences of untreated celiac disease shock treatment.  Sometimes people are just scared of having to change their comfortable lifestyle.
    • Lotte18
      I have never been tested for tTg 6 antibodies but I will certainly do that next time I'm at the doc's.  Maybe there's a home test kit for that?  I drink lactose free milk and seem to be ok so I'm probably not a casein case but...who knows?!
    • knitty kitty
      I take Life Extension brand Mega Benfotiamine, (250 mg with each of two meals) and Maxlife Natural TTFD-B1 Max Thiamine (100 mg).   I try to take my Benfotiamine and TTFD before four pm, otherwise I have so much energy, it can be hard to fall asleep.    
×
×
  • Create New...