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My symptoms for past few weeks

emmelinejane
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emmelinejane Newbie
emmelinejane
Posted

I have been suffering from diarrhea and bowel issues all my life with zero explanation as of why. I'm also on the autism spectrum.

But as I await my celiac test results, I want to see if anyone else is going through the same thing in order to ease my anxiety.

I have been having severe diarrhea since quarantine started. So bad that it feels like pin needles poking around my intestines. I figured I just needed some bread in order to slow things down, and consumed lots of wheat. I then started feeling very dizzy every day, and as of now I can barely get out of bed because I feel so dizzy and fatigued. A blood test yesterday showed increased liver enzymes. I'm also having brain fog, memory trouble, and shaking muscle cramps.

I also have been having heart palpitations as well, either from this or my anxiety.
What do you guys think?

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GFinDC Veteran
GFinDC
Posted

Sounds like you might have celiac disease.  You want to get the celiac disease test panel, which checks several different type of antibodies.  After a positive celiac test panel, they schedule an endoscopy.  During the endoscopy they take 4 to 6 small bisopsy samples of the small intestine lining.  Those biopsies are sent to a lab for review.  If the biopsies show damage typical of celiac disease then you have celiac disease.  Often the endoscopy takes several months to get done.

You need to keep eating gluten until all the testing is done.  But you only need to eat about 1 slice of gluten bread a day.  In the meantime, if you want to feel better, cut out all dairy, sugar, and carbs.  Gluten is a protein in wheat, rye and barley.  When/if you go gluten-free, you should also cut out oats for 6 months.  Some people react to oats also.

Welcome to the forum! :)

 

Scott Adams Grand Master
Scott Adams
Posted

This article will give you some more details about blood tests for celiac disease: 

 

Awol cast iron stomach Experienced
Awol cast iron stomach
Posted

A lot of check marks of your symptoms match my own personal experience. 

Finish your testing and then if gluten is the confirmed as the issue. Go whole foods only in the early stages no processed including processed gluten-free.

Review all the 101 info on this site to truly be cc free, so you can heal asap.

Welcome and good luck on your healing journey.

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    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

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    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

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