Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Survival Kit

Guest nini

By Guest nini
in Gluten-Free Foods, Products, Shopping & Medications

Recommended Posts

Guest nini
Guest nini
Posted

After 3 years of this, I have put together a large zip file of lists and articles that are very helpful to the newly diagnosed celiac.

If you are interested in having a copyof this survival kit e-mailed to you

PLEASE E-MAIL ME AT nisla@comcast.net

in the subject line put "Request Newbie Survival Kit"

this is a large file and it's just helpful stuff I have compiled over the past three years. It includes the Delphi list and several Restaurant menus, School supplies, Candy, articles, information that you can print out and share with others to help explain this diet and the reason for it.

If you have a cable modem it will be a fairly quick download, but if you are on dial up, be prepared to let it sit for a while!

disclaimer:

I did not come up with this info all by myself, I've compiled it with the help of other helpful celiacs over the past two years, and it's all been helpful to me. Also, this file is just a guideline, as always you will need to make your own decision on what works for you and what doesn't.

also, it's a zip file so you will need a program like pk unzip to open it... or any program that opens up archived files.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jaten Enthusiast
jaten
Posted

Request has been sent. Golly so many great folks here.

I can see the headlines now.....

Scientists Discover New Symptom of celiac disease: Extreme Kindness & Generosity!

minibabe Contributor
minibabe
Posted
I can see the headlines now.....

Scientists Discover New Symptom of celiac disease: Extreme Kindness & Generosity!

That is all I have recieved.....except from doctors <_<

I love everyone here! It is such an amazing website :D

Amanda NY

Guest nini
Guest nini
Posted
Request has been sent. Golly so many great folks here.

I can see the headlines now.....

Scientists Discover New Symptom of celiac disease: Extreme Kindness & Generosity!

it's my pleasure to help... I relied on the kindess and generosity of others when I was first dx'ed too...

Guest nini
Guest nini
Posted

bump... just in case any newbies haven't seen this...

ebrbetty Rising Star
ebrbetty
Posted

nini...how kind of you..I wish someone offered this to me last month. your always so helpful

Lisa Mentor
Lisa
Posted

:):):) That is really cool. I sure wished that I had that in August. I know that it will be a great help to all the newly diog. Kinda pay it forward. Very cool. Thank you for your time to do this.

Lisa

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 months later...
Chako Apprentice
Chako
Posted

What is the Delphi list?

And would this survival kit be good for a Canadian? :)

Lister Rising Star
Lister
Posted

not a newb but still could be helpfull, i dont need the delphi lists though but anything else is kewl

Guest nini
Guest nini
Posted

Lister, I thought I already sent you this... But maybe it was just the delphi lists... I'll send it again.

What is the Delphi list?

And would this survival kit be good for a Canadian? :)

I suppose so, just e-mail me at nisla@comcast.net and in the subject put "request newbie survival kit" and I'll send it... and you can judge for yourself if it's useful for a Canadian...

Kaycee Collaborator
Kaycee
Posted

Nisla, I am a New Zealander, (have only been diagnosed since February) so not too sure how much of the kit would be useful, but would like to have it sent to me.

The gluten free forum has been a life saver and wonderful to follow, and I am getting to feel I know quite a few of you all.

Your picture is a bit scary, but hey you obviously have a heart of gold. And when I see your picture with your piece of advise it is comforting.

I must admit that when first diagnosed, I thought coeliac would be a piece of cake, and that with everybody saying to watch this and watch that, I thought they were being a bit too severe. But hey, everybody was right, and I do have to be that careful. I never would've thought I would 've been so sensitive. Most of my immediate family have cast iron stomachs, and I was so used to having quite good health, apart from the diahrea. But now I have arrived here to where any little bit of gluten manages to keep me grounded for a few days, it is quite scary.

This sight is proving to me that I am now on the right track for me, trying to eliminate all manufactured products, and start mostly from scratch. I don't need the treats, as they are not always weight friendly, and I do carry a bit of excess weight. But sometimes I tend to push the boundaries, and that is when I get unstuck, and get to know the loo intimately again, but I am determined to get past that.

I'm quite proud to say, last night was my first dining out in a restuarant for a few months, it was my 49th birthday, and I am happy to say, I survived without any reactions what-so-ever, but I did push boundaries, luckily nothing untoward happened.

Thanks again Nisla.

Daxin Explorer
Daxin
Posted

Bump. Do not need the kit. Just trying to help all those other newbies out there who may be looking for answers.

Guest nini
Guest nini
Posted

Kaycee, I got your e-mail, you should have the kit by now... thanks for your comments!

  • 4 weeks later...
Guest nini
Guest nini
Posted

Open Original Shared Link

Attention!!! I now have uploaded the Newbie kit to my website! Click on the above link, scroll down until you see the link for Newbie Survival Kit, you can then just simply download it on your own computer!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jess270
      - Jess270 replied to AnnaNZ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Bitters for digestion?

      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions...
    2. cristiana
      - cristiana commented on Jefferson Adams's article in Origins of Celiac Disease
      7

      Why Bananas No Longer Cure Celiac Disease

      I missed this article when it was first put up. It is interesting to read, as my old neighbour who sadly passed away a few years ago was a trainee midwife during WWII. Bananas disappeared from the shops in Britain during the war, but she told me that those that did get to the UK were kept back for infants with coeliac disease. I didn't realise that...
    3. trents
      - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    4. GeoPeanut
      - GeoPeanut replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease, and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with...
    5. trents
      - trents replied to KRipple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac or Addison's complications? Can someone share their experience?

      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,054
    • Most Online (within 30 mins)
      7,748
    Carlie
    Newest Member
    Carlie
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jess270
      Bitters for digestion?

      By Jess270 · Posted

      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      Vaccines

      By trents · Posted

      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Vaccines

      By GeoPeanut · Posted

      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
    • trents
      Celiac or Addison's complications? Can someone share their experience?

      By trents · Posted

      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
      Are they close to a drug that will help celiacs with cross contamination

      By kate g · Posted

      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
×
×
  • Create New...